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Mothering › Health Articles › Please Help Charlie Heal

Please Help Charlie Heal


This family is in need of donations to afford an important surgery for their son. Find out how to help in this blog post or visit the Help Charlie Heal blog.


Meet Charlie Greenman.


At 9 months old, Charlie has already endured severe medical problems and setbacks.  His community has banded together to offer support, and I would like to share this heartwarming story with you.


Charlie began having seizures 12 hours after he was born.  A subsequent MRI revealed that he had suffered two strokes in utero.


Doctors diagnosed Charlie with craniosynostosis — a condition in which the joints in an infant’s skull fuse too early, causing irregular skull growth.


Craniosynostosis —which affects approximately 1 in 2,000 births—can lead to a host of severely debilitating medical problems, including brain damage, seizures, eye problems, and delays in cognitive function and development.


For the Greenman family, each day has been both a struggle and a reminder of their son’s resilience and courage.  They applaud Charlie’s small achievements, treating each one as a momentous victory.


Like any family, the Greenmans want to give their child the very best medical attention possible—but for a child with craniosynostosis, this means a steep financial commitment.  Charlie’s condition requires appointments with numerous specialist doctors, including a neurologist, a cranio facial surgeon, and a neurosurgeon.  Charlie also needs cranio MRIs, renal ultrasounds, echo cardiograms, spinal ultrasounds and MRIs, and physical therapy, which equates to enormous medical costs.


Of most pressing concern is a cranio-facial surgery, scheduled for July, which will separate Charlie’s fused skull.  The surgery is of crucial importance, as the family’s physician recently reported that Charlie’s head circumference has dropped below the 0 percentile. Although the Greenman family has medical insurance, several of Charlie’s doctors are out-of-network, forcing the family to pay a significant portion of the costs out-of-pocket.  The insurance company is unwilling to fully cover Charlie’s upcoming cranio-facial surgery, and so the Greenmans must come up with 40% of the cost of the procedure.


In a touching and meaningful show of support, friends, family, and complete strangers have come together to raise funds for Charlie’s medical expenses.  Donations are being collected on the “Help Charlie Heal” blog—all contributions are deposited directly into a special savings account for Charlie’s medical needs. Even Charlie’s older brother, Walker, has found a way to support his sibling: Walker’s paintings have been made into notecards and are being sold on Etsy, to benefit Charlie’s medical fund.


I invite you to visit the Help Charlie Heal blog (charliesfund.blogspot.com) and learn more about Charlie.  And if you feel moved, help support Charlie’s fund.  Be a part of the loving community that is doing everything in its power to help Charlie heal.


For more information on the Help Charlie Heal campaign:


Charlie’s Blog | Notecards on Etsy | Walker’s paintings have also been made into a book | Information on craniosynostosis



Melanie Mayo-Laakso

About

Melanie Mayo-Laakso is the Content Manager for Mothering.com. Mothering is the birthplace of natural family living and attachment parenting. We celebrate the experience of parenthood as worthy of one's best efforts and are at once fierce advocates for children and gentle supporters of parents.



Comments (5)

Thank you for sharing your story. I wish that I could help more. I hope many people help even if it's a little bit. Much joy and healing!
To the Greenman's: My nephew had the same surgery at 6 months old. I can only imagine the strength and hope you have in your heart and soul. I wish Charlie the best during this time. My nephew, Noah, recovered; is living a beautiful life. I can only send my thoughts and prayers at this time :). Stay strong, embrace the now. And Charlie- know that you are thought of, along with your family with healing prayers and caring thoughts of your recovery. Namaste'
I wanted to comment and first say..I know how scary this is. My LO was thought to have this, but she did not. I even at her looked at by Dr. Jimenez at University Hospital in San Antonio. The reason why I am mentioning this is because this is where the technique for craniosynostosis which is used widely today was developed. Maybe you can call them and see if they can help, as it is an University Hospital. Their website is: hhttp://www.craniosynostosis.net/ Their number is::: Department of Neurosurgery UT Health Science Center at San Antonio 7703 Floyd Curl Dr (MC7843) San Antonio TX 78229-3900 Phone: 210-567-5625 | Fax: 210-567-6066
My best friends baby was diagnosed with this same condition - she is now 4 months old and will be having the surgery next month. Today I am so grateful that we live in Canada, and it would never be a question of her family becoming financially bankrupt in order to pay doctors bills....I can't even imagine what this surgery must cost if you had to pay for it!!! Absolutely heartbreaking And for those who might question - our health care is not "free" its paid for by us - everyone pays in little bits each month in their taxes and then we never, ever have to face a challenge like this. It is worth every penny
Thank you all for your comments, compassion and contributions for Charlie. We have a date for craniofacial surgery on August 9th at the Craniofacial Center, Medical City Dallas with Doctor Fearon. In addition to Craniosynostosis, Charlie is also a stoke survivor. So, to supplement our insurance, we have applied for government aid. Charlie's medical expenses will be ongoing given his unique challenges and we are so grateful to everyone who is praying for Charlie near and far. From the bottom of my heart, thank you. Yours, Sarah Greenman (Charlie's Mama)
Mothering › Health Articles › Please Help Charlie Heal