I'm still looking Devon. I've looked on the internet and not turned up anything close to home. I finally found one other mom to share experiences with through a neighbor's church, and that's really lucky. I know some of these kiddos have stuff that's so rare the only groups you will find are online unless you live in a major city. When we get our final diagnosis I may just start my own. Statistically, there should be two to five other kids in town similar to my son.
3/10/11 at 10:45pm