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Originally Posted by rhombus
my 15 month old had his first open heart surgery a year ago, on Valentine's Day, when he was 3 months old. We were all hoping, his cardiologist included, that it would be a "one...
My 2.5 year old son, Apollo, was born with a double aortic arch. He had two heart surgeries in two different states last year and a g-tube placed. He is doing well (though still struggles with his health). I didn't do anything...
We don't use a recipe since it doesn't need to taste good We basically mix beans ( for proton and bulk) with lots of veggies and fresh veggie juice. He was on a nonfat diet for two months and it was a nightmare Are you hanging in there?
My son is 2.5 and has has his g-tube for seven months. He had heart surgery in October and developed chylothorax. He is now on a fat-free diet. He can't tolerate the special chylothorax formula so I have to make each meal in the blender....
My ten year old son was borning missing fingers and toes . He had part of a finger amputated this summer due to pain from a claw-like nail. I blog at: www.bakersdozenandapolloxiv.com.
I don't talk about it much on the blog because he is...
Quote:
Originally Posted by anj_rn
We have a g-tube as well, although we do not publish pics of our kidlets on the internet.
Thanks! I totally understand. I read these forums every day, but usually on...
My son had heart surgery this March, at age 20 months. He slept in our bed starting the night we came home from the hospital. We wanted to be able to keep a close eye on him. He had a lot of fear and trauma surrounding sleep after his...
I just started a new blog; Have G-Tube, Will Travel. It is going to me mostly pics of kids tube feeding and maybe a little info. I am just trying to spread the word about tube feedings so my little guy, Apollo, never feels the need to...
