Posts by MotherWhimsey

He sounds very normal. Walking at 13.5 months is nowhere near late. Anything before 18 months is totally normal.   My son wears braces for toe walking but for him it wasn't so much the toe walking that was the main problem but...

I don't know what you guys are willing to do or not, but my son has an appendicostomy that has been awesome for him. He has poor motility and would get backed up and start puking. He was enema dependent for a couple of years and...

Is she going to be going to the hospital where I met you once? There IS a down syndrome support group in that area. My little sister has downs and they live in that city. I can ask what resources there are if you'd like.

Shoot man, I wish mine were healthy. I don't think that's a bad sentiment at all. Who wouldn't want their baby to be healthy? Doesn't change how much you love them, it just means the child's road is an easier one and I think any mom...

Linden got his new AFO's yesterday...     The hinge in action...     We had them done at a prosthetics place in town and they asked if he wanted any picture put on and he chose...

So a couple of weeks ago L was in the backseat of the car and started crying and moaning because he had a really bad stomach ache. This isn't an unusual thing for him, so I told him I was sorry and we'd be home really soon and I'd see...

Quote: Originally Posted by Earth Momma  g-tube over ng tube any day BUT mic key button is the BEST of all good luck Momma no dude, the AMT mini-one button is WAY better than the mic-key IMO. But I...

My son is one of the weird ones that has funky labs in a not typical mito fashion. He usually has lactic alkalosis (much more common in mito to have lactic acidosis) although in looking over his old labs recently, his was elevated...

http://www.youtube.com/watch?v=D2Z04X86mLw

we blended food for a while. We got a vita mix and had a log of how many calories, protein, fat, etc he needed. Then I found foods and put them in the vitamix until he met those requirements, added water and blended. It took about an...