Posts by MotherWhimsey

See, for us the muscle biopsy was easy. He had it done on his right thigh and they gave him a spinal and heavily sedated him (or tried to at least). When the spinal wore off, he got up and was walking on it immediately and never asked...

Linden has always had low specific gravity (and he pees base, his urine pH is usually 8.5) and no one has ever seemed to think it was terribly interesting at all except one nurse practitioner. That guy came in the room and was like...

mekat, when they put it together they put pneumatic tires on it just to see which worked better and he pushed on the tires on those. The tires he has are solid core and they don't have tread on them, so if he pushes from the tire his...

My son has had many and was diagnosed with Mitochondrial Disease. I'll give you a basic run down of how it went once we went to the neuromuscular clinic instead of just regular neurology.   They did the physical exam first and...

Here's a video. I was trying to get him to do a wheelie but he wouldn't. http://s835.photobucket.com/albums/zz275/CoureysWoodenSpork/Medical/video/?action=view&current=newwheels.mp4

It's just a clear plastic spoke guard and we stuck starwars wall stickers on it.

Here's a picture of it. Sorry, it's not a great one... I can't find my camera battery charger so I took it with my laptop.

I think there are two aspects that are the hardest for me. The first is just the basic daily medical chores. It just gets tiring after a while. Most of them are absolutely not optional (I would love to be able to say "oh hey, I'm...

yeh, we can leave L's port accessed for a week. After a week we have to change the dressing and needle (so basically access it all over again from scratch). He prefers me to access him rather than the nurse at the hospital for blood...

oh, and for whatever reason, with his last port, we never got to the point where the scar tissue made it painless. That port was put in his arm pit fat roll so it might be because there was a lot of tissue over it. This port is only 3...