Posts by lindsayjean

Oh they didn't tell me that risk when we were thinking we needed OHS the week we were in (also about albs at that point) ... maybe they would've if we gad decided to do surgery  then.  I just found a message board for moms of...

So glad she is doing well.  Since we'll be there soon.... what part of surgery affects suck/swallow?  We need open heart surgery and nobody told us that as a side affect.  Hoping chest tubes come out soon!  Thinking...

So glad it went well!!  I've been thinking of you since we'll be doing the same thing soon.  Lots of restful thoughts your way.  Sounds weird but take pictures to show her someday when she's a heart surgeon ;-)   

oh gosh, babies TOTALLY know if mom is close.  Mine does NOT sleep away from me.  Rarely.  And for like 10 minutes max.  My other 2 were like this as babies as well.  I feel like by 3 months-ish they are...

not saying you should have to stay with her, just want you to know that you are in charge if you want to!!  I had a really hard time standing up for myself when we first got there.  

Do they have ICU private rooms to request?  Even when I wasn't allowed to hold June (way too many chord and a ventilator breathing for her, yuck!!) I still slept in her room.  If she is in a nursery are other kids with her in...

Oh my word!!  We just got back from a 9 day stay at Children's hospital when our baby June was just a week and a half old.  My daughter also has a pretty severe heart defect and had to be on a ventilator there for 3-4 days of...

We are home!!  And they hope to hold off open heart surgery until she is 4-8 months old. I'm so not an anxious mom, but it's pretty stressful being home with a baby with a heart defect and no monitors telling me she is okay AND...

Thanks guys, it's crazy, you never think it's going to be you.... and then it is.  She is hopefully going to be weaned off the ventilator tomorrow and then I might get to HOLD HER!  

So we went from one of the most amazing birth experiences ever to one of the most tragic things ever just a week and a half later.     Here is our birth video slideshow and the news story on my birth (yep, there was a...