Posts by 2boyzmama

I need ideas for ways to increase immune function.  Connor, 4 years old now, has a diagnosis of Velocardiofacial Syndrome/DiGeorge Syndrome/22q Deletion (take your pick on names!)  He has a mild t-cell deficit, suspected...

Thanks! So I talked to the boys about it last night. They have no concept of what a "wish" is.  The best Connor could come up with is to "go to a play place and ride my bike" the best Ian could come up with is to "go to Ryan's...

Hi MDC friends!!  It's been quite a while since I've posted or even visited at all!  I had several reasons for taking an MDC break, but there were lots of times that I found myself wishing "I wish I could post this!" ...

Well, we got a pulse ox and I've been checking him sporadically. At rest or during normal activity, he's always above 95. But after a long tickling match with his Papa, I tested again and he was 84. I made them stop and a few minutes...

My friend's 23 weeker is turning a year old on Christmas Day. I have been following her since her water broke spontaneously at 22 weeks 2 days and baby was born 8 days later at 23 weeks 3 days.  They detailed their experience...

Congratulations on your new son!  It's always a shock when our babies aren't born the way we expect them to be, and it takes a lot of time to get over that.  Basically there's no "wrong" way to grieve what your...

Yep, I just check no.  Often it isn't even mentioned.  Once in a while a specialist might ask about a particular vaccine (like the example above, our Pulmonologist focusses on vaxes available for respiratory diseases, but he...

Yep, what cassie said!   My son has numerous "soft" defects, meaning things like his eyes being spaced further apart, upper lip being more smooth, lower jaw is small and recessed, ears are mis-shapen, etc.  In...

My grandparents adopted their great-niece when her parents were killed in a car accident when she was 2.  By age 5 it was obvious that something was different about her, and as she got older, the differences were much more...

The boys and I were having a wrestling/tickling match tonight and I stopped because I noticed Connor's lips turning purple.  After a few minutes we started up again and they turned purple again.  I was kind of "testing...