Posts by jackson's mama

It kind of sounds like you're looking at a Gtube as an alternative to night nursing, and that doesn't qualify as medically necessary. I doubt she's going to stop wanting to nurse just because she's getting feeds at night, KWIM? I'd...

Betsy, my girls' middle names are Lillian and Katherine . I always smile when I see your sig.

That definitely would have made me pause as well! I was at a fair the other day with my girls and a woman said "Double Trouble!" to me. I kind of rolled my eyes and said, "No, twice as nice!" She said - get this...

PM'ing you.

Our placements have always been outpatient. The port can be used immediately. Typically they access the port in surgery to make sure it's working, then deaccess before bringing the child to recovery. Last time we asked them to leave...

You've gotten some good advice already. Surgery is a drastic step, and it's likely that other interventions will be successful without requiring surgery. (And if surgery is required, it's probably going to be when she's older rather...

Hi Angela, My son has Krabbe Disease, another leukodystrophy. I'm so sorry to hear about your daughter's diagnosis. I know two other families with Alexander's that I can put you in touch with. Both children are quite a bit...

Quote: Originally Posted by preemiemamarach I simply DO NOT believe that any of you- faced with the situation I was- would have just watched your baby starve to death to avoid testing and medical intervention. It's all...

I'm so glad you're making progress and I hope you'll update with what happens at the skin clinic. My son also gets severe infections in his eczema - it sounds a lot like what you describe, although we get more yellow oozy crusty stuff...

That is awesome.