Posts by UptownZoo

Quote: Originally Posted by BookGoddess I forgot how old he is. Remind me again. He turned 7 last July.

I've posted so many times over the past few years about Carter's weight; we've been on the verge of a g-tube several times and it's been a huge struggle. I thought I'd show you all what he's done recently. Here are pictures for...

Quote: Originally Posted by laohaire What's heartbreaking about this situation is that your love as a mother cannot reach her, cannot help. For mamas who have to deal with G tubes and surgeries and medications and...

Never underestimate the power of stress. Of course this is making you physically ill! My DH and I have both had physical symptoms of stress (headaches, backaches, intestinal yuckiness, and of course frequent viruses because our immunity...

Go ahead and keep reading.

Wow. How can people be so clueless? I'm just a person on MDC, and *I've* read more about Connor's syndrome (and most of the conditions/syndromes/disorders/diseases of the kids of regular posters here) than your family has! Boggles my...

Oye, I'm so sorry. My son's issues are very different, but I've been on the receiving end of the same crud from doctors a thousand times. It's hard to keep trusting yourself in the face of it, but sometimes you just have to keep shouting...

Listening is so, so important. It's what I need most in the world. In fact, I get very frustrated from constant advice from people - my son has plenty of doctors/providers and they're paid to give advice. Since she's continuing to...

Quote: Originally Posted by justKate That makes sense. She really can't control herself--she just HAS to move. So what do you use to swaddle them when they get bigger? Just a bigger blanket? Jersey sheet.

Quote: Originally Posted by Heavenly My truly thought we would have to hospitalize Elijah before we got him on his meds but I just could not do it. He has severe anxiety disorder on top of his bipolar disorder and he...