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Posts by queencarr

Thank you all again.  Beenmum, ordering melatonin caps tonight:)   Just1more, I appreciate the thought.  My other two sleep with water sports bottles by their bed, so I can believe that will be helpful down the road.  Thanks:)   We had the neuropsych appt today, and I think it went really well.  here is what I posted on the adoption board: So we had the appt today, and I really like her.  Isaac did fantastic with her, boisterous but well behaved.  But enough to see...
UPDATE 2 So we had the appt today, and I really like her.  Isaac did fantastic with her, boisterous but well behaved.  But enough to see that he is hyper LOL  Was complimented on how well we have done, and on some parentimg moments in the office.  Took me seriously! and started problem solving.  Feels like I'm on the right track with the sleep being the root of the behavior and where we need to start first.  She needs to do some consults on her own (ped, attachment...
Sesa, I am so sorry it is so hard!  It is really difficult to live with that level of stress day in and day out.  A couple of thoughts, just to rule htings out.  have you seen a neonatologist to go over any preemie related issues.  Their neuro systems can still be "disorganized" and so they respond to touch and such differently and developed a "learned" response that is different than what you would expect.  Swaddling can help sometimes for this, along with low light and...
UPDATE   Just got off the phone with the office, and the insurance confusion is straightened out.  No auth is needed ( I knew that LOL) and appt is set for Monday at 4. The secretary is trying to work it so we have a workable plan in place before PreK registration in May.   Have to say, I like them so far!  Once I called them, they had the insurance problem solved within 24 hrs, an appt in less than a week and taking school choices/timing to register for next Fall,...
Have I mentioned lately how great you all are???  The support is really helpful right now.  I have been feeling discouraged that this is where it is and that is where things will stay.  So thanks!   As far as getting away, it is not really in the budget right now. And TBH, dh is just as exhausted.  He is doing more night time right now than I am.  I don't know that I can put it all on him, either.    Talked to the neurospych office yesterday, trying to find out...
  Not sure I'm really functioning LOL  More like surviving...it does feel much like that newborn fog but much, much longer, with no end in sight...I kept thinking "after he grieves"  then "after her attaches better" then "after he weans" (he's never going to wean, I'm convinced of it! None of my bag of tricks works, which means he's not ready to wean, right?  But he's almost 4, and should be nightweaned, but he acts like it is a need still and I then go in circles)...
Hey, sorry I disappeared--it was my last week of my practicum and I had a final paperwork push to get it all done (2 evals, 3 reevals and 3 discharges and their reports to write in addition to my regular caseload LOL)!  I am going to ask the neuropsych to recommend another sleep study unless we see the ped again first for one of the boys.  I feel like I need to talk to him about it if I ask for  it rather than just a phone call request, and I don't want to make another...
ROM, I thought the slowness was just my little netbook being overwhelmed LOL  I am still waiting on a call from them to set up the app, which is annoying.  Actually, it is on my to do list for Monday, now that externship is over, to call them back.  Its been a crazy 2 week push to finish up and I just had to put if off a few days.  I would be interested in the name of the med if you don't mind, as we I have got to get some sleep. At least the middle of night tantrums and...
beenmum,  I'm a SLP grad student (graduate in 6 weeks!!!), and my CF teacher passed on that nugget about adenoids and VPI:)  She was adamant that they not be removed in kids with cleft issues unless it was an absolute last resort.    Isaac has Binder's syndrome, or maxillo-nasal hypoplasia.  So yep, midface hypoplasia is an issue.  So far, it's not too bad.  He has an essentially flat profile, but it is not scooped in (yet).  Since you are familiar with the sleep...
beenmum, every 3-4 months, really?  The only thing I remember about repeating is that we would need them periodically, unless we had a new specific issue. I guess I need to check that then.  Although his disorder is extremely rare (250-400 cases ever dx), the literature suggests that obstruction/apnea is not usually an issue (and it wasn't in the 1st sleep study, although there were a couple of minor episodes).  He is missing the anterior nasal spine and most of the...
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