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Posts by queencarr

Beautyforashes he eats lots of solid food, he just still takes a bottle at night. Long complicated reasons, that basically boil down to a swallowing disorder...he won't drink thickened liquids from a cup.at.all. He can take sips of unthickened water safely, but milk and similar are not really safe unthickened. So he probably doesn't drink enough during the day...the ped and our very conservative dentist both consider the bottles at night the "lesser of two evils" for...
Congratulations! It has been such a long and emotional journey--I am so excited for you! Can't wait to hear all about it when you can
Sleep is amazing! Not only is he doing better, but I feel almost functional again. 6 hr with only one interruption (I have been waiting til after the first wake up to settle) feels incredible
So, we are up to .3ml 2x night, which is .9mg each dose, for the past 2 nights. He is sleeping really well ,much less restless, AND he woke only 2x last night! And up at about normal time. His mood and behavior is much improved--no meltdown tantrums at all since we started, and only about 2-3 small tantrums that normally would have escaled into big ones. His behavior is improved enough that his teacher at PS commented on it and also mentioned he has been going down for...
Congratulations!
So two nights ago, we gave him .05 ml, which was .15 mg at 7 and again at midnight. He seemed to be a bit less restless, according to dh (I slept in the LR, which lets me sleep a little less uninterrupted when it has been really bad) and he took a whole bottle less throughout the night. His breathing was nice and steady throughout, good heavy sleep breathing. He was in a better mood all day the next day, and not a single tantrum while he was home He even sat still...
APToddlerMama, I missed your post before giving him a dose tonight, but I think we should be ok with the breathing. It is a structural issue--the nasal spine and cartilage in his nose is missing, so there is no "structure" to his nose, and laying down kind of reduces the airway in his nose even more but sleep study didn't really show reduce O2 levels. He can mouth breath just fine, he just "forgets" and tries to breath through his nose, waking himself slightly, if that...
ROM, thanks. Isaac has to, has to sleep someday, right??? I can't imagine never having had a good night's sleep my entire life, and I try to think of that when he is on his 3rd or 4th (long) tantrum of the day Although, he is doing fantastic at preschool lately, so I am hopeful that translates to home soon. Yes, you will have to file an amended return on last year, if I am reading right. Then you can take the credit for this year and it is all fully refundable ...
Thanks. I don't feel like a very good mom much of the time anymore--I yell way more often than I should and have much less patience, probably because I am so tired myself. I feel like I am missing out on time with my other kids, between lack of energy and dealing with ds3 issues all the time. I will go look for some melatonin probably tomorrow then. I just don't know what else to try, what else to do. He takes prescription dose benedryl off and on for allergies and even...
We haven't touched Isaac's, and have rolled over most of Connor's credit. I miss chatting with everyone--things are still...intense here, with Isaac. 100x better but not great (just posted a thread of desperation in SN about sleep). I have been collapsing at night as soon as they all get to sleep
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