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Tongue Tie Question - Page 2

post #21 of 346
11/25/08 at 10:55pm
Quote:
Originally Posted by changingseasons View Post
Mary- this information is mostly for you.

I sent an email to the IBCLC that runs the parent support group at Valley Medical Center (that we used to go to) and asked if she knew any doctors in the area that knew a lot about tongue ties. This is part of the response that she sent me:


So that's great to know- I wonder if she worked with Dr. Coryllos? I will definitely take her number with me to my ped and see if she will give us a referral.
Fabulous! I have actually heard her name come up many times as a stellar practitioner (through my business listserves and whatnot) but I did not know of her particular interest in tongue ties. I think I will give her a call!!

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post #22 of 346
11/25/08 at 11:01pm
Quote:
Originally Posted by DoulaMary View Post
Fabulous! I have actually heard her name come up many times as a stellar practitioner (through my business listserves and whatnot) but I did not know of her particular interest in tongue ties. I think I will give her a call!!
Yeah- I'm thinking I might just call her tomorrow too- maybe I can just go see her and skip my ped.
post #23 of 346
11/25/08 at 11:45pm
Changingseasons, do you have contact info for her? We are going to be in that area over the winter, so maybe we would be able to see her. I googled her briefly, but couldn't find anything.

FF, how would you address a tight anal sphincter? And how are you addressing your own crowded teeth? Nutritionally?
post #24 of 346
11/25/08 at 11:56pm
Quote:
Originally Posted by SAmama View Post
Changingseasons, do you have contact info for her? We are going to be in that area over the winter, so maybe we would be able to see her. I googled her briefly, but couldn't find anything.
We're going to the baby group tomorrow, and the LC is going to give me her info then. I will let you know when I find out! (Remind me if you don't hear from me by tomorrow eve.)
post #25 of 346
11/25/08 at 11:58pm
I don't have crowded teeth, I just have a wacked out palate. My teeth are very even, but there's no space between them. I had braces as a child so my teeth did suffer at one point.

In terms of the anal sphincter I'd say either CST or homeopathy. I can't say what did work as I used both. Dr. C recommends digital massage but I just couldn't do that. Two of my kids who had it both received CST and homeopathy....it resolved in both. Just my experience.
post #26 of 346
11/26/08 at 12:56am
Wow! I was just thinking about this topic today (that is, the connection between poor tongue coordination and food intolerance). I haven't been keeping up with the CSS thread - its too overwhelming, I'm too far behind, so I didn't know you were already discussing it.

My dd never had a tt, but she had a poorly coordinated suck/ tongue movement as a newborn. I'm really not sure she nurses 'correctly' even now but she makes it work. But she also has a really high palate. I've taken her to CST but her palate is still really high and she has the overactive gag reflex. Wondering now if there is anything else I can do for her. The thing is, the palate is a common thing in girls with Turner Syndrome like my dd. So maybe her head structure just isn't going to allow that palate to come down. Do you think there is something else I can do?
post #27 of 346
11/26/08 at 12:58am
was she evaluated for posterior TT?

How often do you go for CST? It would take several times a week for several weeks to really see a difference even in an infant.
post #28 of 346
11/26/08 at 1:17am
Quote:
Originally Posted by firefaery View Post
was she evaluated for posterior TT?

How often do you go for CST? It would take several times a week for several weeks to really see a difference even in an infant.
Well, I don't really remember now how they came to this conclusion but the IBCLC, OT, and SLT I took her to all agreed that she didn't seem tongue tied although her tongue at times behaved in a similar way. It really baffled them all.

I'm not taking her anymore to CST. I took her 3 times a week for a few weeks as a newborn to a chiropractor who did some CST work, then I took her once a week for a bit to a woman who specializes specifically in CST. I basically ran out of money, not to mention the stress involved in taking her to so many people all the time. So we stopped it on the basis that she seemed to be nursing effectively by then. But she does seem to have trouble now with solids so I'm revisiting the topic.
post #29 of 346
11/26/08 at 1:35am
Quote:
Originally Posted by LaurieG View Post
Well, I don't really remember now how they came to this conclusion but the IBCLC, OT, and SLT I took her to all agreed that she didn't seem tongue tied although her tongue at times behaved in a similar way. It really baffled them all.

I'm not taking her anymore to CST. I took her 3 times a week for a few weeks as a newborn to a chiropractor who did some CST work, then I took her once a week for a bit to a woman who specializes specifically in CST. I basically ran out of money, not to mention the stress involved in taking her to so many people all the time. So we stopped it on the basis that she seemed to be nursing effectively by then. But she does seem to have trouble now with solids so I'm revisiting the topic.
The CST has to be ongoing for some time, although of course any amount will be nice. My DD started going to her chiro/CST 3x/wk then slowly tapered to 1x/wk and now I take her once every 4-6 weeks. It's definately not a quick fix kind of thing. I take her to this doc for overall health maintenance and not just her palate but she has been seeing this doc since she was a few months old so....she's been continuously treated for probably 13-14 months now. Totally understand the $$$ issue though. ALL of this stuff sure adds up.
post #30 of 346
11/26/08 at 1:36am
not many people know how to evaluate PTT. I'd start there, were it me.
post #31 of 346
11/26/08 at 1:54am
I just did a quick scan of the CSS thread discussion. I have the lipstick shaped nipple after most nursing sessions, and (I didn't see this in the other thread but maybe I missed it) my nipples turn white a few seconds after dd releases and they remain white for a few minutes. Is this all indicative of a tongue tie?

Ay iy iy. This poor baby. I swear I just jump from one thing to another to give me an excuse to take her to yet another specialist.
post #32 of 346
11/26/08 at 2:01am
white nipples sound more like vasospams (in which you get the blanching) and that has little to nothing to do with her or her latch. That could indicate mag/vitamin D deficiency in you though. Is it only your nipples?
post #33 of 346
11/26/08 at 2:07am
Quote:
Originally Posted by LaurieG View Post
Ay iy iy. This poor baby.
But with such a dedicated mom to keep asking questions and seeking answers!
post #34 of 346
11/26/08 at 2:31am
Quote:
Originally Posted by firefaery View Post
white nipples sound more like vasospams (in which you get the blanching) and that has little to nothing to do with her or her latch. That could indicate mag/vitamin D deficiency in you though. Is it only your nipples?
I found this on Kellymom about blanching nipples. I don't fit neatly in to any of the categories as I don't have pain with it, the nipple generally doesn't come out of dd's mouth white - it turns white a few seconds later. Nothing else turns white. But since it isn't painful and happens following feedings (though, to be honest I really don't generally watch my nipples outside of BF'ing ) I figured the lipstick shape and the white were related. Mag deficiency would not be a surprise. I'm really bad about remembering my supplements.

Tanya - Thank you.
post #35 of 346
11/26/08 at 7:22am
Thank you CS!

FF, where do I start finding a homeopath that knows their stuff? And a CST while I am at it. I know you (or someone) posted about what to look for and where, but don't know where to look for that post. I have tried finding your tribe before, no help there.
post #36 of 346
11/26/08 at 11:45am
Quote:
Originally Posted by LaurieG View Post
I found this on Kellymom about blanching nipples. I don't fit neatly in to any of the categories as I don't have pain with it, the nipple generally doesn't come out of dd's mouth white - it turns white a few seconds later. Nothing else turns white. But since it isn't painful and happens following feedings (though, to be honest I really don't generally watch my nipples outside of BF'ing ) I figured the lipstick shape and the white were related. Mag deficiency would not be a surprise. I'm really bad about remembering my supplements.

Tanya - Thank you.
oh it is related-dont' get me wrong. Without the compression you probably wouldn't have the blanching it's just that I don't think that TT is the cause. I'd guess YOU have an underlying reason. I'm glad it doesnt' hurt! I would make sure to take my supplements to keep it that way.
post #37 of 346
11/26/08 at 11:48am
Quote:
Originally Posted by SAmama View Post
Thank you CS!

FF, where do I start finding a homeopath that knows their stuff? And a CST while I am at it. I know you (or someone) posted about what to look for and where, but don't know where to look for that post. I have tried finding your tribe before, no help there.
well, good credentials mean you have a better bet, but really it's an ART. Homeopathy is something you either have a knack for or don't. It takes alot of creativity and intuition. I wouldn't run to see someone who has a weekend certification, but just because someone has YEARS of schooling doesn't mean they have the right minds for it. I like to be able to find referrals first and foremost...but the interesting thing is there are alot of homeopaths that do distance consulting. I'm actually going to be starting with one soon to try out his method. I dont' want you to wait to see if *I* have success but I want you to know it's an option. You can find a great master and see if they do phone consults.
post #38 of 346
11/26/08 at 11:58am
Quote:
Originally Posted by firefaery View Post
oh it is related-dont' get me wrong. Without the compression you probably wouldn't have the blanching it's just that I don't think that TT is the cause. I'd guess YOU have an underlying reason. I'm glad it doesnt' hurt! I would make sure to take my supplements to keep it that way.
Got it. Thanks.
post #39 of 346
11/26/08 at 2:07pm
My DS had a tongue tie and could not latch when he was born. We had it clipped when he was just a few days old by Dr O'Hara (in Seattle). I have her contact info if anyone needs it (PM me). I remember her telling us she knew a great doc up in Vancouver BC who could do posterior tongue ties. She said if our DS had had one she would've travelled up there with us to watch and learn how PTT is clipped. I thought that was great.
post #40 of 346
12/1/08 at 6:41pm
I just (finally) called Dr. O'Hara and chatted with her for a while. We have an appointment with her on Wednesday! The LC that referred me to her said that she does posterior clips now too. Side note: she said that she can (if needed) also clip DD's labial frenulum too.

Also, she said depending on the babe, she can do it without GA, which is really encouraging for me.

I will post an update after we see her!
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