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Tongue Tie Question - Page 15

post #281 of 346
I just asked Dr. Gita the other day about when we'll be at a point when DD's palate is as good as it's going to get. She said the cranial bones don't fuse until around 6-7 years old so that until then we can continue working on it. So...while we didn't specifically ask the question you are asking, perhaps that answers your question a little bit???
post #282 of 346
So I guess I'm stuck with it huh? I never thought to ask Dr. Gita about it... I will have to do that at our appointment on Monday!
post #283 of 346
Would this be the reason why DD has a clicking sound when she DID nurse, and now that she's on the bottle or pacifire, it seems she still is sucking air? It sounds like as if we put our tongue to the top of our mouths and then make that clicking noise. Or is it that she doesn't know how to use a bottle yet? Or do I just need to change the nipple?? I'm using Born Free bottles. :/

If you have a high palette, what does that entail? Her's looks pretty high to me, but I don't know what a normal one would look like?
post #284 of 346
Quote:
Originally Posted by AimeeJules View Post
If you have a high palette, what does that entail? Her's looks pretty high to me, but I don't know what a normal one would look like?
I have been trying to take a picture of DS's for a month now and I just can't get the lighting right & in focus. His looks sort of like I took a block of clay and jammed my thumb in it. It just juts up real high real fast.
post #285 of 346
Also wanted to say that I just got the official write-up from our eval at the physical therapist (she in is a mainstream pediatric office but also does CST). It was an interesting read because while we were there, she didn't say much to me beyond "yes his palate is high and his tongue mobility isn't what it should be." She spent the hour working w/ DS and observing him talk and eat.

Anyway, here is a bit of what she said in the report:

*low oral muscle tone
*hyporesponsive to touch around his mouth
*poor lip rounding
*limited tongue elevation and lateralization
*jaw stability poor
*poor dissociation of movement of the tongue, lips, and jaw
*oral motor feeding skills are disordered and closer to a 10-11 month old level for chewing

She also included a plan which listed 6 month goals -- being able to age-appropriately control the food bolus, etc

The NEXT day after spending some time working with him, he was saying words more completely and clearly. Like "hat" instead of "ha". I wasn't expecting anything to change that quickly and was really shocked by the overnight significant speech improvement. He is also chewing better, but could be because he is getting the hang of his nine new teeth. (I still can't get over the tooth thing!)

So I don't think she'd know a PTT if she saw it because it sounds like that's hard to diagnose, but maybe we can get proper motion w/ some therapy. I'm hopeful!

Things she said to do at home:
*overemphasize consonant sounds and show him how my tongue moves (he will stare at my mouth when I do this, it's cute)
*blow into a whistle
*have him use a straw
post #286 of 346
Quote:
Originally Posted by changingseasons View Post
I can touch the roof of my mouth with my tongue only when my mouth is closed.
should you be able to touch the roof if your mouth is open all the way? ( i cant do that)
post #287 of 346
Quote:
Originally Posted by ellasmama2007 View Post
should you be able to touch the roof if your mouth is open all the way? ( i cant do that)
I think so. Maybe not like all the way open...

DP can. He's got a beautiful palate, and absolutely no tension in his lingual frenulum. He can lift his tongue straight up!
post #288 of 346
I asked my inlaws when they were visiting. Of the 9 of us (me, dh, mil, fil, bil, 4 neices/nephews), everyone could touch the roof of their mouth but me. One neice and I, though, could 'unhinge' our jaws, opening extra wide. Dn could only touch when her mouth was open a 'normal' amount, but I can't touch in either position. I can completely stick my tongue out, though.
post #289 of 346
dp,
you've got a beautiful palate, and absolutely no tension in your lingual frenulum. happy vday!
love,
cs

p.s.
wanna get funky with a virgin chicken under the harvest moon?
post #290 of 346


Quote:
Originally Posted by ellasmama2007 View Post
dp,
you've got a beautiful palate, and absolutely no tension in your lingual frenulum. happy vday!
love,
cs

p.s.
wanna get funky with a virgin chicken under the harvest moon?
post #291 of 346
Quote:
Originally Posted by ellasmama2007 View Post
dp,
you've got a beautiful palate, and absolutely no tension in your lingual frenulum. happy vday!
love,
cs

p.s.
wanna get funky with a virgin chicken under the harvest moon?
: omg, I'm dying over here!!
post #292 of 346
Bumping.


Pat
post #293 of 346
When we went to get DS's tongue tie clipped, the doc asked me and DH and my father to open our mouths all the way and try to touch our tongue to the roof of our mouths. I can't do it, and neither can my father.
post #294 of 346
Quote:
Originally Posted by Lady Lilya View Post
When we went to get DS's tongue tie clipped, the doc asked me and DH and my father to open our mouths all the way and try to touch our tongue to the roof of our mouths. I can't do it, and neither can my father.
oh wow! do you or your dh have any speech difficulties? or did you growing up?

i took my dd to visit the dentist when she was just passed 3 months to see if they could see anything with her tongue. i wanted to continue to breastfeed but she kept pinching the nipple and wanted to see if she needed her frenulum cut more. the dentist said her mouth looked fine and her tongue looked fine.
post #295 of 346
No, neither of us have ever had any speech difficulties.

When I was working for a Japanese company, I was always told that I spoke extremely clearly and they could understand me better than anyone else.

DS isn't speaking very much yet, but what he says is perfectly clear. Except that he turns S into SH (which everyone tells me is normal in Russian-speaking kids).

Even though I can't touch my tongue to the roof of my mouth, my tongue seems to function fine. I don't seem to have any swallowing difficulties. Dr Coryllos said that people with TT often have difficulty with the tongue "sweeping" the mouth after eating something crumby, but I have no problem with that at all. My tongue can easily get anywhere in my mouth.
post #296 of 346
I can't touch the roof of my mouth with it all the way open, but I can unhinge my jaw too. Hm. Ds really has a lot of texture issues, wonder if it's related (doesn't like crumbly foods or pureed foods)? Wonder if I could find someone here who could help? He's six though so probably not a lot can be done.
post #297 of 346
Dr Coryllos said that TT kids generally shy away from crumby or grainy foods due to the inability to properly sweep their mouths with their tongues after eating.
post #298 of 346
So if I tend to find crumbs in my mouth hours after eating, that's a bad sign, huh? Checking with my tongue... There are definitely pockets on the side of my mouth I can't reach. I don't know what to think of that.
post #299 of 346
I think I'm going to re-join this thread. Just recently it's occurred to me that I'm not sure my son is as understandable to strangers as he should be. He's 3y2m, and his anterior TT is pretty clear, he has a heart-shaped tongue that doesn't extend out far at all. Looks just a bit worse than mine. I'm not completely clear how you'd tell if a person has both, because the tightness in front is one reason you couldn't lift your tongue to the top of your mouth, and my daughter has a high, arched palate but she can touch the top of her mouth with her tongue.

Anyway, I think I'm going to make an appointment with our pediatrician to talk about his pronunciation, and then see if she knows anyone who clips TTs in older kids.

Pookietooth--I think clipping and CST can help at any age--it's supposed to take longer with older kids, I really don't know how long, but I think I may be going down this path with my 3yo sometime soon. :
post #300 of 346
Quote:
Originally Posted by Pookietooth View Post
I can't touch the roof of my mouth with it all the way open, but I can unhinge my jaw too. Hm. Ds really has a lot of texture issues, wonder if it's related (doesn't like crumbly foods or pureed foods)? Wonder if I could find someone here who could help? He's six though so probably not a lot can be done.
Find someone you trust. I'm having it worked on right now. It's been several months but my teeth are more widely spaced and things have moved. I had NO expectation that this would happen. We started working because my pituitary wasn't functioning correctly....but the changes have been amazing. I am most certainly older than your son!
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