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plagiocephaly in 8 m old

post #1 of 22
11/27/08 at 7:21pm
Thread Starter 
we just had our first physiotherapy session, and are to do stretching and strengthening exercises 3-4 times a day, 10 min at a time.

anyone has similar issues? was physiotherapy helpful? what else can be done?

we have been seing a cranio-sacral therapist for the last 2 months, and at this point she feels she's done all she could.

dd's symptoms: one cheek larger than the other, a mass at the bottom of the skull, head tilt.

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post #2 of 22
11/27/08 at 10:57pm
My adoptive little brother (who is the same age as my second son) has plagiocephaly. I remember my parents taking him in a lot to have his head looked at. His ears aren't even and one of his cheeks is pushed forward a bit. He never had any sessions or wore a helmet. I don't know *a lot* about it but I wanted to post a reply giving you some support and encouragement that he is now 2 and is extremely cute and loving and developing fine! Are there issues with brain developement in your dc?? I know that was one of the concerns with my brother, but all is well with him. Like I said, I don't know too much but wanted to let you know I'm out here with a little experience and wanted to encourage you!
post #3 of 22
11/28/08 at 9:32am
Thread Starter 
Quote:
Originally Posted by Happy Becky View Post
My adoptive little brother (who is the same age as my second son) has plagiocephaly. I remember my parents taking him in a lot to have his head looked at. His ears aren't even and one of his cheeks is pushed forward a bit. He never had any sessions or wore a helmet. I don't know *a lot* about it but I wanted to post a reply giving you some support and encouragement that he is now 2 and is extremely cute and loving and developing fine! Are there issues with brain developement in your dc?? I know that was one of the concerns with my brother, but all is well with him. Like I said, I don't know too much but wanted to let you know I'm out here with a little experience and wanted to encourage you!
Thank you! No, they are not concerned with brain development, and they say the case is "mild"--but yes, the ears, the cheeks are different. How do his features look now? I somehow feel I'd feel better if DD were a boy...I'm hugely relieved that there's nothing more serious about it, but I'm worried too that she will grow up looking so assymmetrical...

Thanks again for replying...
post #4 of 22
11/28/08 at 4:23pm
My youngest DS had positional plagiocephaly and we treated it with both physcial therapy and a cranial helmet...he only had to use the helmet for two months ...
post #5 of 22
11/28/08 at 4:42pm
Be encouraged MoodyMaximus!!! I've known little girls with plageocephaly too and the benefit for your daughter is that with a full head of long hair, some of the assymetry will be disguised!! Boys don't get this benefit!!
post #6 of 22
11/28/08 at 4:46pm
Thread Starter 
Quote:
Originally Posted by sewingmommy View Post
My youngest DS had positional plagiocephaly and we treated it with both physcial therapy and a cranial helmet...he only had to use the helmet for two months ...
the therapist said the helmet wasn't needed. i don't know if this is good or not...i'd rather do the helmet for 2 months...
post #7 of 22
11/28/08 at 4:48pm
Thread Starter 
Quote:
Originally Posted by Happy Becky View Post
Be encouraged MoodyMaximus!!! I've known little girls with plageocephaly too and the benefit for your daughter is that with a full head of long hair, some of the assymetry will be disguised!! Boys don't get this benefit!!
i'm more worried about her cheeks--one is visibly bigger / protruding...i wonder if they will stay the same...
post #8 of 22
11/29/08 at 11:12am
My DS had plagiocephaly as an infant. We took him to his doc (which we stopped seeing soon after for vax issues, not this) and he thought it was mild and to have him sleep on the other side. So, that's what we did. Most of the asymmetry has disappeared over the years (he's 5 now). If he's upside down or looking in the mirror, I can see it slightly...but I'll never know if that's how he's meant to look or not (no one is perfectly symmetrical). I asked a friend candidly about it a couple weeks ago, and she said she never noticed and can't see it. Plus, people always tell me how cute he is. So, I guess it's up to what you feel you need to do. Ds's asymmetry was at it's worst around 4 months of age and had improved the most by 6-10 months IIRC.

Oh, and my DS's teachers say he's most likely gifted...so no issues with his brain or anything.
post #9 of 22
11/29/08 at 7:46pm
Quote:
Originally Posted by moodymaximus View Post
the therapist said the helmet wasn't needed. i don't know if this is good or not...i'd rather do the helmet for 2 months...
We waited hoping he wouldn't need the helmet but our physical therapist really thought we should ....our ped didn't but we were able to get the prescription for the helmet and it worked great .....like you I would've rather used the helmet than take the chance that it would go away... can you take her for an evaluation at the place that makes the helmets ...they will tell you if they think it is serious enough for the helmet or not
post #10 of 22
11/29/08 at 8:05pm
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Quote:
Originally Posted by sewingmommy View Post
We waited hoping he wouldn't need the helmet but our physical therapist really thought we should ....our ped didn't but we were able to get the prescription for the helmet and it worked great .....like you I would've rather used the helmet than take the chance that it would go away... can you take her for an evaluation at the place that makes the helmets ...they will tell you if they think it is serious enough for the helmet or not
which kind of place would be making them? i googled and didn't find anything.
post #11 of 22
11/30/08 at 5:17pm
Can you get a second opinion from another therapist? Or perhaps another doctor?
post #12 of 22
11/30/08 at 5:32pm
did you have a 3d ct scan?
post #13 of 22
12/3/08 at 5:07pm
we went to Cranial Technologies ...they are in several states but also some hospitals will make them as well....See if your dr will suggest someone
post #14 of 22
12/4/08 at 10:16am
Thread Starter 
Quote:
Originally Posted by lindberg99 View Post
Can you get a second opinion from another therapist? Or perhaps another doctor?
we had already two pedis looked at her. one said there was nothing wrong at all. the other refered to physio.
post #15 of 22
12/4/08 at 10:17am
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Quote:
Originally Posted by Britishmama View Post
did you have a 3d ct scan?
we have an appointment on the 19th, but everyone says it is not needed, and doesn't have any clinical significance. i think we will cancel.
post #16 of 22
12/4/08 at 10:17am
Thread Starter 
Quote:
Originally Posted by sewingmommy View Post
we went to Cranial Technologies ...they are in several states but also some hospitals will make them as well....See if your dr will suggest someone
oh, we're in canada. thanks.
post #17 of 22
12/4/08 at 3:29pm
Our physical therapist suggested the cranial helmet and our pedi didn't think it was necessary and sent us to a pediatric neurosurgeon who ended up giving us the prescription for it even though he said it wasn't necessary in his opinion but if it would make us feel better he was okay with it ....he told us that Nathan would be all better by the time he was three (he was 9 months when we did this ) and honestly even though he is the top in his field we really felt better going with the helmet.....and Nathan only had to wear it for two months and it looks so much better you could never tell he had to wear one......

Nicola
post #18 of 22
12/6/08 at 2:52pm
Quote:
Originally Posted by moodymaximus View Post
we have an appointment on the 19th, but everyone says it is not needed, and doesn't have any clinical significance. i think we will cancel.
only true way of seeing if sutures are closed
post #19 of 22
12/6/08 at 3:16pm
Thread Starter 
Quote:
Originally Posted by Britishmama View Post
only true way of seeing if sutures are closed
really? everyone who checked her said they were "normal". the x-ray report also mentioned they were normal. could you tell me more about it?
post #20 of 22
12/6/08 at 4:08pm
Quote:
Originally Posted by moodymaximus View Post
really? everyone who checked her said they were "normal". the x-ray report also mentioned they were normal. could you tell me more about it?
if they xray is very clear it could be correct but a 3d CT scan is like a window inside the head.

What people "think" are only opinions vs fact. Everyone ASSumed my DD had a saggital fusion but she does not, we're still up in the air what to do with her head shape but just by opinion she'd have surgery, it still may lead to that but it's not a 100%.

How bad is your babies head? the ct scan took us 5 mins
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