Wow, thanks Bella, for all of that. I am going to respond to some of what you wrote, in hopes that if someone comes across this thread, it might help in some way.
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Originally Posted by BellaClaudia 
She totally sounds like my DD.
I was on te edge of physycal exhostion and mental depression..
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Yes. What I always thought of was how in my EMT training they taught about the Good Samaritan Law. If you come across someone in cardiac arrest that needs CPR, if you begin CPR on them then you are obligated to continue until the person, heaven forbid, dies, or until more qualified help takes over. Otherwise you can bu sued (makes sense to me, have no problem with that.) The one exception to this? I forget the exact wording but if you are physically and/or emotionally unable to continue. It doesn't feel like an exaggeration to me to say that I was that desperately incapacitated. The heart wrenchingness of letting her cry that night for hours almost made me explode. I was weak with fatigue, so dizzy that I would careen around the room and smacked into the furniture. She had to be danced vigorously or she screamed. I tried to protect her as much as I could with my body. Others can judge, that's fine. Would I have avoided this if there was any way I could? Of course. Am I p!ssed off at DH and still carry anger about it because he refused to go in? Definitely.
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Originally Posted by BellaClaudia 
she had defenetely acid reflux although we decided not to take any meds for them as from what we research they were as helful as harming..
so we took it alla naturell..
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I wonder about this. I constantly asked that question throughout her being on the meds. I don't regret starting her on them, since her reflux was so pronounced and on the meds was the only way she could sleep, but I do wish we had weaned down sooner... getting off the Nexium onto Zantac... reducing doses. Such a guessing game because playing with the meds up and down can worsen the problem.
Same with us about needing to sleep elevated, quite drastically (even on the meds) and needing to be held. Sometimes it seemed like it was just about being vertical and sometimes just being held, even if not upright, was enough.
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Originally Posted by BellaClaudia 
We should have been cosleeping.
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I was against this because of what I read about "sleep habits" and also SIDS. I still think there is no way it would have worked because for so long she had to be held exactly vertical in order to sleep (even lying on my chest in a rocking chair she would scream and cry). But maybe if we had done the craniosacral sooner.... if I had known about oversupply/overactive letdown, maybe if I had gotten off dairy and started probiotics sooner... maybe if I had known about the candida and started treatment sooner, seen an ND sooner, had worn her from the start... maybe it could have worked. I would have tried an Arm's reach cosleeper, sounds like you rigged up something basically the same.
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Originally Posted by BellaClaudia 
Now I can't tell if my constant carrying and holding her and constantly giving her attantion was good thing or bad thing in terms if this contributed to her end result..
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My hunch is this was a good thing, you were addressing a need that if not addressed would have worsened.
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Originally Posted by BellaClaudia 
I was upstairs trying to get some sleep.. end result - her loosing trust to us, being panickly afraid of darks and more attachment in result.
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I think about things I did, too, that feel like mistakes. There were times DH would take her away from me and she would be so anxious and cry but I turned around and went to sleep. Because I needed it so badly and also because I felt that if I "gave in" to her DH would be angry and we would fight and I was so so so so so so so tired. Hugs to you. We did the best we could.
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Originally Posted by BellaClaudia 
I know enough about idiotic way sof burping babies by patting them on the back that leads to reflux alone.. or promotes drooling of milk..
NO THAT IS WRONG>. alll you do is gently rub the back from the mid back area up on and on and on.. patting is just plain wrong..
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This is interesting. I do think burping was key for us, especially because she was drinking so fast due to my overactive letdown. But in general I've heard burping can help. We tried that method you describe, with one finger on one side of the spine and thumb on the other, gently pressing upward, and never got anything. We supported her neck and head and walked around, bouncing, thumps on the floor, and this was the only way she would burp and also the only way to calm her. It may have been more damaging than helpful in reality, I don't know.
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Originally Posted by BellaClaudia 
I HAD TO PLAY WITH ROOM TEMPERATURE.. I BOUGHT A REMOTE CONTROL HOME THERMOSTAT SO IT WAS ALWAYS IN OUR BEDROOM OR WHERE BABY WAS AS OPPOSED TO SMACKED ON THE WALL IN LIVING ROOM. THAT LET US TO BE TOTALLY IN CONTROL FOR BEDROOM TEMPERATURES. I DRESSED HER UP TO MAKE SURE SHE IS COMFORTABLE. NEVER IN FLEECE, ALWAYS IN COTTON. FLEECE MAKES THEM OVERHEAT ON THE SPOT.
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We had a meat thermometer in her room so I could monitor the temp and adjust accordingly. We had a horrible thermostat and the house was impossible to regulate. She was really hard to keep just right, I blamed it on the house. She sweated at night, so I thought too hot, but then when I put more on her would sleep better. I then learned night sweats can be caused by sleep apnea, which could have been caused by her congestion, which was caused by her reflux. ??? This went on for awhile. Same conclusion regarding synthetic materials, BAD BAD BAD, so hard for them to temp regulate. She now sleeps in a sleep sack I made out of an old down comforter, and dressed in cotton or wool only. Still seems hard to for her to regulate her body temp, such a minor minor change can make her too cold or too hot, at last visit my ND thought possibly a thyroid condition in me is responsible so we are going to look into that. Also she has discoordination, clumsiness, that comes and goes, sometimes walking like a drunk person. And I've had this too.
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Originally Posted by BellaClaudia 
MAKE SURE YOU HAVE BESPHENOL FREE (BPA FREE) SIPPY CUPS AND PLATES AND EVERYTHING.
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We do this too, along with trying to minimize plastic toys and Tylenol and Motrin and no additives, no dairy, no gluten, no sugar, and as much as possible organic, etc. But I've felt like I have to keep some of the things that are gifts even if I don't want her to have them. Hard to know if I'm going overboard or not.
She has never accepted a paci or teether, only my boobs which are so tired out. I will look more into the Hylands. She has been refusing it and I don't know if it's helping anymore.
I am sad right now because talking about baby #2 and DH just doesn't think he can do it. I need to adjust my attitude and just be thankful for what we have. It might be a blessing to not be pregnant and nursing again as my body needs to recover.