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Formula company advocating eliminating breastfeeding.

post #1 of 28
Thread Starter 
Could someone suggest a course of action regarding this VERY misleading statement on the Neocate formula web site: http://www.actagainstallergy.com/aaa...k-allergy.html



Quote:
Quote:
For allergic children, elimination diets can take several forms. In particular it can be done:

--by the lactating mother - breastfed infants may suffer allergic reactions to food antigen found in the mother’s diet (small quantaties also found in the breast milk) so in this case control of allergic symptoms and normal growth cannot be achieved. Therefore, prolonged breastfeeding is not recommended and instead infants should start feeding on hypoallergenic formulas;
Thanks, Pat
post #2 of 28
Puh-Leeze!!!

Of course this formula company wants new mothers to believe that BF *could* be the cause of allergies, but to make it sound like this website is a website about allergies is RIDICULOUS!! Isn't that against the WHO code? Off to research!
post #3 of 28
From the WHO code-

Quote:
The WHO Code PROHIBITS certain aggressive infant formula marketing strategies, such as:

1. Promoting infant formula through health care facilities
2. Lobbying health care personnel with free gifts
3. Providing free formula samples to new mothers
4. Using words or pictures in advertising which idealize bottle feeding
From the AAA website

Quote:
Welcome to Act Against Allergy, a global educational initiative designed to increase the awareness of childhood food allergy, with a focus on dairy allergy or more commonly referred to as cow milk allergy.

Allergies of all kinds are becoming increasingly common in industrialized countries and many children suffer from one or more allergy to food, including cow’s milk, diary food and soy.

Food allergies can cause frustration and distress, both for children who suffer from the condition and the parents who care for them.

Act Against Allergy provides a medium for both parents and healthcare professionals to share information, give assistance and guidance so all families can enjoy a normal life!
Again, bolding mine.

Under "credits" on the website is this-

Quote:
SHS International is a leader in clinical nutrition specializing in the manufacture, marketing and distribution of medical foods and infant formulas for the dietary management of rare genetic, metabolic, allergic and gastrointestinal disorders.
Bolding mine again.


::::: GRRRRRR!
post #4 of 28
Just curious....I hear people talking about WHO violations alot...but isn't it true that there is nothing that makes companies or businesses adhear to their guidelines/reccomendations?
post #5 of 28
Quote:
Originally Posted by Jemmind View Post
Just curious....I hear people talking about WHO violations alot...but isn't it true that there is nothing that makes companies or businesses adhear to their guidelines/reccomendations?
yes, in the states I'm sure, Canada may have something to enforce it. The WHO code gets thrown around a lot around here, but I don't agree with it, they also recommend vaxing.

I'm still irked they would make statements like that. I'm 20 wks preggo and had to buy breast pads the other day, and they snuck in a formula coupon. THATS horrible, get a woman when she's tired of leaking through her shirt and her nipples hurt.
post #6 of 28
Quote:
Providing free formula samples to new mothers
They obviously don't abide by that either. Got a "gift bag" at the hospital and a "gift" at home from Enfamil.

I wish there was a way to enforce this and stop this bf'ing sabotage...
post #7 of 28
I know were all pro BF'ing but Neocate is a formula of LAST RESORT. Its very $$$, were talking $600 mo expensive. In some cases the baby has so many allergies the mother can't successfully do an elimination diet and in these cases formula like Neocate is needed. Continued BF causes FTT and a whole host of other problems if mom continues to BF. There are some cases were BF is not best for baby and in the case of needing Neocate BF is not best. Neocate is a MEDICAL FOOD and can not be compared to regular off the shelf formula.
post #8 of 28
Quote:
Originally Posted by Satori View Post
I know were all pro BF'ing but Neocate is a formula of LAST RESORT. Its very $$$, were talking $600 mo expensive. In some cases the baby has so many allergies the mother can't successfully do an elimination diet and in these cases formula like Neocate is needed. Continued BF causes FTT and a whole host of other problems if mom continues to BF. There are some cases were BF is not best for baby and in the case of needing Neocate BF is not best. Neocate is a MEDICAL FOOD and can not be compared to regular off the shelf formula.
I agree with everything you said, but the fact is, this website is pretending to be an allergy site when it's really a formula site. There's a big difference.
post #9 of 28
Quote:
Originally Posted by mom2snugbugs View Post
I agree with everything you said, but the fact is, this website is pretending to be an allergy site when it's really a formula site. There's a big difference.
Then you are misunderstanding the site, Neocate is for babies/toddlers with multiple severe food allergies who can not tolerate breastmilk. I look at Neocate more like a drug that's needed to live. Needing Neocate is not a lifestyle option like BF vs FF, its a choice to live without severe pain option. Have you had the fortune to birth a child who needed Neocate? Have you listened to your child scream and writhe in agony for hours becasue your milk is poison to them? These are the children SHS is targeting, not your run of the mill parents. Besides, have you tasted the stuff? It makes Similac taste fantastic by comparison.

eta: its formula becasue its customers are usually to young to eat solid food and even for the adults needing it its still liquid, its pretty hard to get solid food from straight amino acids.
post #10 of 28
Quote:
Originally Posted by Satori View Post
Then you are misunderstanding the site, Neocate is for babies/toddlers with multiple severe food allergies who can not tolerate breastmilk. I look at Neocate more like a drug that's needed to live. Needing Neocate is not a lifestyle option like BF vs FF, its a choice to live without severe pain option. Have you had the fortune to birth a child who needed Neocate? Have you listened to your child scream and writhe in agony for hours becasue your milk is poison to them? These are the children SHS is targeting, not your run of the mill parents. Besides, have you tasted the stuff? It makes Similac taste fantastic by comparison.

eta: its formula becasue its customers are usually to young to eat solid food and even for the adults needing it its still liquid, its pretty hard to get solid food from straight amino acids.

I am not misunderstanding the site. The site says

Quote:
Welcome to Act Against Allergy, a global educational initiative designed to increase the awareness of childhood food allergy, with a focus on dairy allergy or more commonly referred to as cow milk allergy.
when it is actually a site for infant formula. When talking about the "elimination diet", the site says-

Quote:
by the lactating mother - breastfed infants may suffer allergic reactions to food antigen found in the mother’s diet (small quantaties also found in the breast milk) so in this case control of allergic symptoms and normal growth cannot be achieved. Therefore, prolonged breastfeeding is not recommended and instead infants should start feeding on hypoallergenic formulas;
and in no way does it say that the MOTHER should try the elimination diet, by taking the food out of her system. It just says that child should eliminate breastmilk and go immediately to the formula.

I understand that there are mothers out there with children with food allergies. I also understand that sometimes mothers, who DO try their OWN elimination diet still have a baby that does not tolerate breastmilk. Yes, absolutely, in this case the child needs medicinal formula to survive. My problem is NOT with these mothers. My problem is that this site claims to be about allergies when its really selling formula. And it is saying to eliminate breastfeeding without the proper steps being taken.
post #11 of 28
Quote:
Originally Posted by mom2snugbugs View Post
I am not misunderstanding the site. The site says



when it is actually a site for infant formula. When talking about the "elimination diet", the site says-



and in no way does it say that the MOTHER should try the elimination diet, by taking the food out of her system. It just says that child should eliminate breastmilk and go immediately to the formula.

I understand that there are mothers out there with children with food allergies. I also understand that sometimes mothers, who DO try their OWN elimination diet still have a baby that does not tolerate breastmilk. Yes, absolutely, in this case the child needs medicinal formula to survive. My problem is NOT with these mothers. My problem is that this site claims to be about allergies when its really selling formula. And it is saying to eliminate breastfeeding without the proper steps being taken.
Very nicely put mom2snugbugs! An allergy site shouldn't be promoting a formula brand...wait...that's because it's not an allergy site, it's a formula commercial in disguise! And furthermore, if this is a 'medicine' than the info should come from the child's doctor, not from an advertisement.
post #12 of 28
hmm, that appears to be a British website, they do adhere to the WHO code here.... (no free formula samples/advertising)

I can't find on the site where it says that, OP?

edit, OH... in my browser it redirects to a co.uk site, I wonder if they took that part out for British audiences?
post #13 of 28
Plus the allergy issues in the child are likely to have been *caused* by the giving of inappropriate foods in the first place (as in - the disruption of the virgin gut through medication or formula use, or other exposures such as 'treatments' mandated in some states, although thank goodness not here in the UK...)

And there are plenty of children who are allergic to neocate itself, but fine with heattreated and filtered donor bm where the mother is unable (for what ever reason) to provide and HT/Filter their bm.

That 'site' is there to market neocate as the 'solution' not to actually provide accurate information. Sadly, even in the UK/Europe, where information is intended for 'health professionals' it can promote formula as the solution as long as they 'say' that its medical advice and can provide some 'evidence' for it. And yes, they get to say what the evidence is ...

And people wonder why so many HPs in the UK give non-breastfeeding 'breastfeeding advice'...
post #14 of 28
Quote:
Originally Posted by Helen_A View Post
Plus the allergy issues in the child are likely to have been *caused* by the giving of inappropriate foods in the first place

And there are plenty of children who are allergic to neocate itself, but fine with heattreated and filtered donor bm where the mother is unable (for what ever reason) to provide and HT/Filter their bm.
Obviously you're not a BTDT Neocate mom. I've BTDT 2x now, it's not by choice, and it's not something I would want for anyone. This baby will start on Neocate from the get go as a supplement when and if I have supply issues again (working hard to avoid that). Allergies have no real cause that we know of, but since I'm 3 for 3 on kids w/ them, I'm assuming it's part genetic. The inappropriate foods they had included things I was eating. Last I checked, bfing moms need to eat too.

I would like to know where you get your info on kids who are allergic to Neocate, but can handle heat treated bm from a mom on a normal diet? Donor milk would be great if I could find a mom willing to donate milk to my kids who ate the same 4 foods I did when I nursed Evan. Good luck w/ that.

Did anyone click on the link and read it? I don't see anything wrong w/ it. It does talk about eliminating at the top. I think it's a matter of bad wording and people not understanding severe allergies/intolerances and bfing. I know babies who have done fabulous by taking a formula vacation by using Neocate or similar for a week and then go back to bfing w/ mom on a strict diet. Sometimes that is the fastest way to heal a child who has severe damage.
post #15 of 28
I have children with allergy issues - and yes, one of whom were made that way *purely* because of what I was eating at the time (and, it wasn't anything 'unusual' by any means, or 'easy' to eliminate). To the point one night in A&E where *I* wondered if I should stop, and that childs specialist telling me in no uncertain terms that he does not support the use of neocate, especially instead of BF because there are a *lot* of children who are allergic to it who are then left with no options at all. He always looks to, in severe severe cases, admitting the child to be intraveneously fed with clean nutrients (i.e. in a saline solution) and the mother for a period of time, whilst the mothers diet is a) cleaned down and b) balanced nutritionally for the child. He believes that this action, whilst extreme, saves time and save lives, as the giving of any formula (including 'elemental' does damage all of its own *because it is not what the body is designed to encounter at that time in its life*)... and the results of a 5 year audit of this policy has shown that this method saves the NHS here around 10 million pounds sterling *per child* to adulthood, through all the other things that they do not then need to go through, even though there will be follow up as they start to eat for themselves etc etc. But by catching allergies soon, you avoid (for the majority of children) the gut issues that lead to them becoming more widely allergic

Now he is often dealing with the sickest children of all, there are huge numbers who don't live anywhere with access to him and his clinic, or one of the other 5 specialist clinics/teams in the *whole* of the UK; and these children often cycle through the whole gamut of inadequate and wrong 'advice' and 'treatment' until at some point they die (and often then their parents get investigated!) or they grow past the worst of their issues, often having had invasive and major operations to excise tissue, put in shunts and a whole matter of other things.... We are lucky that we live in a country with the NHS - it has its problems with underknowledged staff (and a huge number of people who end up 'trained' by commercial firms and believing that what they say is correct, always), but where you find yourself somewhere with an educated and experienced set of people you can avoid so many of the outcomes that are horrendous if left untreated. It is accepted that atopic tendancies and allergies *are* genetic - it may not express itself in the same foodstuff or environmental factor as the parent or the siblings, but that it is there is a risk factor, and you can eat and live to minimise those. It isn't guaranteed to work, but then what is guaranteed in life?

My 3rd child has no allergy issues at all - his pregnancy, birth and early life were eaten well but carefully through to avoid all the issues that the previous two pregnancies/children encountered. He has never been medicated (and yes, I do believe that that is a factor to watch for) and five years in has had absolutely no issues at all, at a calculated risk factor (by the specialists team) of over a 80% likelihood of issues/allergies even with 'all precautions'... so who knows what made the difference... but it did.

The Neocate information site is flagged here in the UK (by the Dept. of Health) as an 'unreliable source' but that doesn't stop them advertising and pushing themselves as one to medical professionals :-(
post #16 of 28
I don't like the wording on the site; I think that many health professionals simply assume that elimination diets are too difficult and onerous for a mother to follow (and the site's wording does as well). There are a lot of HCPs who just don't think that (most) mothers can maintain a strict elimination diet. How they think the same mothers keep their diagnosed food-allergic children on a strict food elimination diet without resorting to an epi-pen every week, I'm not sure.

However, count me among those who won't be criticizing Neocate itself. It cost us about $40 every two days when our eldest had to be on it (severe allergies and near-FTT, restricting feeds due to her reflux and my supply was about 12 oz/day as a result of retained placenta). For babies with severe dairy and soy allergies for whom milk from a mother on an elimination diet isn't available, it can be very necessary.

That said, however - Ina's allergies had cascaded to the point where she couldn't digest any proteins and needed the Neocate to heal up. She did well on Neocate, but once she was well-healed and able to return to breastmilk (about a month) - she gained faster on my breastmilk, the same milk she hadn't been able to digest a month earlier (no changes to my diet). I'm glad my Pediatrician told us to pump and maintain/rebuild my supply so she could return to breastmilk. I am afraid that many doctors who might see a babe in similar condition might assume that breastmilk is out of the question in the future, instead of waiting for babe to heal before returning to 100% breastmilk [and note, this is a very very rare circumstance].

I recommend the Food Allergies board here for moms who are worrying about allergies in subsequent kiddos - both of mine have had them thus far, and #2's have persisted longer than her older sister's unfortunately, but we have also had less issues with them and she has, unlike her sister, never had the FTT issues, reflux, or weight gain concerns (and never has had anything but mother's milk, and now some juice, water, or rice milk now that she's over 2). Probiotics have made a difference for us I think. She and I both take them.

That said, I think it behooves those of us who have knowledge/experience with elimination diets to contact the Neocate manufacturers and ask that they alter the wording on their site.
post #17 of 28
There are many DRs (in the US anyways) who don't even think about Neocate when thinking about allergies and specifically ffing babies are suffering b/c the DRs just aren't in the know or don't think it's necessary. I personally am thankful for the GI who finally reccomended Neocate to us (I think he helped in it's creation so is a pusher of it, but also supported our bfing to a point as well, wasn't thrilled at the TED which helped a TON) and am glad it's out there. Yes, it's poorly worded and I just don't think they realize it.
post #18 of 28
For a child that needs a true elemental diet, breastmilk can not suffice. Our bodies unfortunately can't break our milk down that way. Trust me, I wish they could and did everything short of living on an elemental formula myself to make my milk safe. If you read on (click the "The elimination diet and hypoallerginic formula in details.." at the bottom) it actually goes on to be much mre clear about what they mean re: moms who are breastfeeding - Its actually pretty dead on. If you can safely eliminate from diet and keep yourself healthy, great. If the child is not thriving however, other options should be considered. And as to "alelrgies" to Neocate, 99.8% of all children needing an elemental formula tolerate one of the elementals currently on the market (There are 3 main, plus a variety of takes on them totalling about 12 last I knew). My own child doesn't tolerate Neocate but tolerates Elecare. She also doesn't tolerate Pediatric Vivonex (3rd option) or any of the flavored options of Neocate or Elecare. But she does tolerate an elemental, so the likelihood of having an infant that is not thriving on breastmilk due to rare conditions that doesn't tolerate an elemental is very close to nil. This site is not for the average baby.
post #19 of 28
Quote:
Originally Posted by thepeach80 View Post
Yes, it's poorly worded and I just don't think they realize it.
I think this is the lactivism issue the OP had in mind, and not whether or not elemental formulas are necessary.
post #20 of 28
Quote:
Originally Posted by annettemarie View Post
I think this is the lactivism issue the OP had in mind, and not whether or not elemental formulas are necessary.
I guess it's how you read it. Before I had this happen to me, I would've thought a mom was crazy to tell me bm wouldn't work for some babies and I KNOW there are a lot of moms here at MDC like that. Unfortunately some moms have to stop bfing and it may be best for them and people need to know that. Unfortunately bfing isn't reccomended by DRs for a lot of reasons, we've all seen it and it's extremely sad, but this site is just about the least of my worries as it effects so few people to the degree where Neocate is needed.
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