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Need some experienced advice...  

post #1 of 5
Thread Starter 
I'm pretty new here at MDC, but it seems like there are a lot of experienced BF'ing mamas on here, so please help!
I'll try to keep the story short. DD is now 10.5 months old. Our BF problems started when she was born. She had pretty bad jaundice for a couple of weeks and was never awake enough to latch on past day 1. During those next 2 weeks we had to stir her enough to be able to fingerfeed her my milk. I was pumping every couple of hours. When she finally did get over the jaundice I couldn't get her to latch on. We started seeing a LC (that I now know wasn't much help). She worked with us for a couple of weeks but no luck getting DD to latch on. I was still pumping and my supply was pretty good so she was getting 100% my milk. Then poor DD was diagnosed with GERD (I won't go into details but severe issues feeding her, Sandifer's Syndrome, screaming, arching, etc). She was in pain for so much of the time she was awake. I think the stress of that started bringing my supply down?!?! Not to mention she wouldn't latch on. About 1.5months I ordered a Lactaid and tried using it. She would only latch on for a few seconds at a time. Finally at 2 months I got referred to a LLL Leader (amazing woman!) and she helped as much as she possibly could. By this time my supply was pretty much nothing. And she said that while DD was screaming and in so much pain from GERD and even drinking BM from a bottle she was screaming, arching, etc. that we weren't going to be able to address the latching issue until her GERD was under control. But she wanted to work as much as we could in the meantime to up my supply. I did everything she recommended (pumping every 2 hours, fenugreek, blessed thistle, More Milk Plus, massaging, warm compress, skin-to-skin, etc, etc) but to no avail. By about 5 months I was only getting less than 1 ounce per day and supplementing with donor BM. When DD was 7 months old GI specialist finally suggested maybe she was Milk/Soy Protein Intolerant. We (VERY reluctantly) agreed to try Neocate amino-acid based formula. DD improved dramatically within 2 days! I felt SO bad for her suffering that whole time. Oh...if I only knew then what I know now! Anyway, I've been able to get some donor milk from a mama on TED, but we're still having to use some Neocate . In the meantime I've continued to pump as much as I possibly can but I'm still just getting just drops and that is usually only when I do hand expression.
So...my questions for you ladies are...since DD is 10.5months old now and we are just about out of donor milk do I just give up? Should I try Domperidone (which was never brought up to me as an option)? I can't even get 1/2oz per day. I want so badly want to be able to give her my milk for as long as I possibly can. The fact that I wasn't able to have a nursing relationship with my daughter upsets me so much. I just cry and cry to myself every time I think about it. DH is supportive and tells me not to beat myself up, that we did everything we possibly could do at the time, but I still do.
And, maybe this is a dumb question, but do you think it's too late to get her to nurse?!?!?
Any other thoughts/suggestions? I'm willing to do anything!!
Sorry for all of the rambling.
post #2 of 5
It's not too late. I used domperidone to induce lactation for my adopted daughter. It works great and is pretty much free of side effects. I got my daughter to nurse for the first time at 5 months and my son for the first time at 22 months. I would contact your local La Leche League for some help. Good luck.

ETA: Once you have more milk, I would have your daughter watch other babies nurse. It is probably the best way to get her interested in nursing.
post #3 of 5
Certainly if you want, you can try Domperidone. Check out both the low milk supply stickie and the adoptive nursing stickie at the top of this forum.

To find other babies nursing, go to a LLL or an AP playgroup. Nursing is certainly contagious, in my experience; once a baby / child sees others doing it, they become interested too!
post #4 of 5
Thread Starter 
Thanks for the support. When I read that your LO's started nursing at 5 months and 22 months I started crying. Just to know that there is hope is so uplifting to me. I knew adoptive mamas have been able to lactate and nurse. I just never imagined (my ignorance) that a baby could learn to nurse later than a couple of months. I had pretty much lost all hope.
I'm going to keep trying to get what I can. And check into the medication. And I'm going to try to find a closer LLL leader with meetings I can get to. I'm more than an hour away to all of them I can find right now.
Anyway, I won't give up hope.
Thanks!!
post #5 of 5
I'm glad my post was helpful. It was A LOT of work to get my 5 month old to nurse. I don't know what I would have done if I hadn't had some great support. I hope you can find some people who will encourage you and help you out. My 22 month old just watched his sister nurse and wanted to do it too. Very easy except getting the latch just right. Wish you the best.
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