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Simon May have BPD

post #1 of 7
Thread Starter 
Xrays are going to be done on wed. This will probobly explain why he is still reqiring o2 and why it is such a minute amount.

Has anyone else had any experience or knowledge with bpd bronchopulmonary dysplasia?
post #2 of 7
BPD is something that's caused from the high pressures used on a ventilator over an extended period of time (typically several weeks). This is also the reason why the doctors try so hard to get the kids onto CPAP because the lungs can be saved from scarring. Was he on the ventilator?
post #3 of 7
Thread Starter 
yes but for only a short period of time, and the research I have done also indicates babies who have this have difficulty gaining and maintaining weight Im not sure if that is indicative to just prematurity or the actual bpd. I'm going to talk to simons pedi wed. Hopefully I can get some answers. He had the on call see him today and discuss the x rays on wed and possible bpd diagnosis.
post #4 of 7
Thread Starter 
And Simon Has no trouble gaining. He is almost a full pound over his birth weight. Only a couple of ounces to go.
post #5 of 7
Quote:
Originally Posted by Adensmommy View Post
yes but for only a short period of time, and the research I have done also indicates babies who have this have difficulty gaining and maintaining weight Im not sure if that is indicative to just prematurity or the actual bpd. I'm going to talk to simons pedi wed. Hopefully I can get some answers. He had the on call see him today and discuss the x rays on wed and possible bpd diagnosis.
Typically babies with BPD are going to be chronic babies. The ones born before 30wks who've been on the vent for weeks, then moved to CPAP, then moved to oxygen and just can't get off of it because their lungs are so damaged from the time they spent on the ventilator. They typically do have trouble gaining weight and need higher calorie milk because they expend so much energy trying to breathe. Personally I would be very leery of a dx of bpd with a kid like Simon and would want to be sure they had ruled out all other possible causes of him needing oxygen.

Have they done a swallow study to look for aspiration or an upper GI to look for reflux and subsequent aspiration? Silent reflux and aspiration could easily damage the lungs and leave him in his current state and it could also make his x-rays look like he has BPD.
post #6 of 7
From what I remember a diagnosis of BPD is made if a baby is still needing O2 at 36 weeks gestations. It seems like Simon may just need extra help because he had pneumonia. I also understood BPD as being caused by too much mechanical ventilation. (7 weeks, in our case). I wonder if even small amounts of ventilations combined with the pneumonia caused BPD? Really, I think they may be using the "02 at 36 weeks" criteria and it may not be accurate here. Let us know what the x-rays show! Oh, and if everything else is good, try to take him home on 02. Annoying but very doable. Have you seen the pediatric pulmonologist? If you go home on 02 you will likely see one, I would ask to talk to a pulmonologist for sure!
post #7 of 7
They dx Maggie w BPD and discharged her w O2 (a very very small amount like a puff) since she was 24 weeks. I later heard from other parents and Drs they give most babies the BPD status for later on. Such as getting RSV shots, EI quickly, and a whole other list of reasons. When they told us Maggie was BPD, we were floored. But it made life easier that first 2 years getting appts, care, RSV shots etc. I do think she has a touch of it even though her Drs say otherwise.

For one thing- she keeps a cold or sickness longer than her sister has ever done. Then has a runny nose for days after. We waited 2 plus years to fly again and DH wants to hold off a trip to Colorado etc until her lungs are fully matured from her preemie status- about 7 yrs old. We were also told dont be surprised if she develops asthma.
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