Lydiah and birdhappy85, I'm so sorry you're both having such a rough time. Lydiah, if you know you are in for a rough time tapering off steroids, I would do literally whatever it takes to ease that. If that's a higher dose of meds, so be it. It sounds like they might just need to be higher during the weaning process? I like your approach of "keeping yourself comfortable." I've known many people who have taken steroids--including my husband--and they have all had a pretty brutal time both on them and weaning from them. I hope you are noticing more improvement and are overall starting to feel better.
And birdhappy, mental health is the final frontier with medicine, I'm sure of it. That and geriatrics, maybe--2 (huge) segments of the population who are forgotten and belittled. I don't know how you convince someone that you CANNOT work while your anxiety and depression are flaring like that. I work for the HOSPITAL and my therapist, who works at the same hospital, agreed with me that I shouldn't tell my bosses; even though they have a campaign to "support mental health in the workplace and address the needs of employees with mental illness." Are you filing an appeal? Is that even possible? Did you quit your job or take sick leave? How are things today?
Hi Surfacing. I had a bit of a setback a couple of days ago, because I had a specialist appontment for my now 6-cm ovarian cyst. She said she "highly doubts it's cancer, but can't be certain until she sees it in a jar." So she wants another ultrasound and I will probably be scheduled for surgery. BIG trigger for me; although I've known about the appointment for 4 MONTHS (that's how long it takes here) and with the medication, I was really okay until about 2 days before. I know without medication, the upcoming appointment would have ruined my summer. So I guess that's progress.
As for school, I'm planning to take courses this fall, too. I don't know what to say about memory. What meds are you on? I haven't found that particular side effect with clomipramine. I would at least give it a try with school. You might be surprised. I know for me, anxiety really killed by academic potential way back when. Memory loss can at least be worked around somewhat. Hope to hear updates from the mamas soon. My heart is with you all, brave ladies!