DD had an ECI eval today. I'm trying to arrange oral motor therapy to get her tongue working better. The ENT won't clip her ptt. She's got Torticollis too so we're looking at PT and speech therapy each once a week. I thought, if I could get ECI to come to us instead of having to drive to the Children's Hospital for outpt therapy twice a week that would be great!! I've now changed my mind.
Here are excerpts from the conversation:
Therapist: "I see you are giving her probiotics. Did the doctor approve that?
Me: "Her pediatrician is aware and okay with it."
Well, since none of the 5 doctors I went to for help with this issue offered us the least bit of help I really could give a rats a___ how the doctors feel about it.
Therapist: "So the allergist said she doesn't have any allergies, but you feel she does?"
Me: "Yes."
I don't feel she does. I know she reacts to these foods. If you saw her poops you would too.
Therapist: You are really nursing her frequently. You should try to cut out at least 2 nursing sessions to allow for more solids.
Me: "I need to be careful about her fluid intake. There isn't anything besides breastmilk she can drink that gives her adequate nutrition."
Did you hear me tell you about her food intolerances?
Therapist: Her night wakings to nurse really aren't age appropriate. A baby should be able to sleep through the night by the time she is 10 lbs.
Me: "I know she is waking out of hunger. I don't want to limit calories, and I also don't want to do anything to jeapordize my milk supply so sleeping through the night entirely is not something I want to push."
If it doesn't bother me, why is it bothering you? The baby is 18 lbs at 15 months - let's feed her when she's hungry.
"If you are worried about your milk suppy you could pump during the day so that you could cut out those nursing sessions."
Me: I'm not worried about my supply during the day, I'm worried about it at night. During the day my concern is adequate fluid intake.
Why would I want to do that? When are you people going to leave?
Therapist: She doesn't really have any FUNCTIONAL problem. Yes, she has some unusual coordination of her tongue but she's able to eat solids, drink well, and is babbling nicely. So functionally she is doing fine.
Me: Yes, you are right. I didn't think she would qualify for services.
We'll just ignore the chomping breast move that makes me grit my teeth, or the arching until my nipple is stretched to its longest possible position. And then there is the tongue coordination / food intolerance connection that is also important to me.
People. Ugh.
Here are excerpts from the conversation:
Therapist: "I see you are giving her probiotics. Did the doctor approve that?
Me: "Her pediatrician is aware and okay with it."
Well, since none of the 5 doctors I went to for help with this issue offered us the least bit of help I really could give a rats a___ how the doctors feel about it.
Therapist: "So the allergist said she doesn't have any allergies, but you feel she does?"
Me: "Yes."
I don't feel she does. I know she reacts to these foods. If you saw her poops you would too.
Therapist: You are really nursing her frequently. You should try to cut out at least 2 nursing sessions to allow for more solids.
Me: "I need to be careful about her fluid intake. There isn't anything besides breastmilk she can drink that gives her adequate nutrition."
Did you hear me tell you about her food intolerances?
Therapist: Her night wakings to nurse really aren't age appropriate. A baby should be able to sleep through the night by the time she is 10 lbs.
Me: "I know she is waking out of hunger. I don't want to limit calories, and I also don't want to do anything to jeapordize my milk supply so sleeping through the night entirely is not something I want to push."
If it doesn't bother me, why is it bothering you? The baby is 18 lbs at 15 months - let's feed her when she's hungry.
"If you are worried about your milk suppy you could pump during the day so that you could cut out those nursing sessions."
Me: I'm not worried about my supply during the day, I'm worried about it at night. During the day my concern is adequate fluid intake.
Why would I want to do that? When are you people going to leave?
Therapist: She doesn't really have any FUNCTIONAL problem. Yes, she has some unusual coordination of her tongue but she's able to eat solids, drink well, and is babbling nicely. So functionally she is doing fine.
Me: Yes, you are right. I didn't think she would qualify for services.
We'll just ignore the chomping breast move that makes me grit my teeth, or the arching until my nipple is stretched to its longest possible position. And then there is the tongue coordination / food intolerance connection that is also important to me.
People. Ugh.
:
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