I'm x-posting this from the SN forum, because it just occurred to me that someone here may have a suggestion. Thanks in advance, mamas.
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This is crazy.
We were going back and forth between doing IV vitamin infusions weekly (basically TPN without the carb or lipids), and getting the same IV formulation prepared for oral administration. Turns out, the only place that can prepare this stuff is a compound pharmacy NOT contracted with our insurance. So, in order to do these vitamins, we have to pay $630 or something out of pocket each month and submit for reimbursement. We don't HAVE an extra six hundred bucks a month! And that's assuming it would be covered 100% (which I assume is the case, they have been good about everything else).
So now, we may actually have to get a PIC or port and do this stuff IV because it will be covered 100% if we do it that way. Which means I have to increase the risk of infection in an immune deficient 18 month old because of insurance restrictions. Granted, it would be nice to have venous access for blood draws (we get them at least every 2 weeks and he's an impossible stick), but still. AND another round of anesthesia in a kid with an undiagnosed metabolic disorder. His seventh, so he's had no issues before, but....still. The fact that this is a financial issue is insane.
I am
beyond measure.
UPDATE- talked to our insurance case manager- our particular BCBS PPO does NOT contract with any compounding pharmacies. They also would only partially reimburse, not the full $600+/month. She is checking with their in-house pharmacist to see what they do with severely diabetic kids, who often have the same issue with added carbohydrates in vitamins. Meanwhile, he had explosive green diarrhea from ferinsol, which is made with sorbitol. which is derived from corn.:
So here I am with a kid whose B-6, folate and iron are dangerously low. I suppose I have to wait til he starts having seizures before I can get this stuff covered.
__________________________________________________ ______________
This is crazy.
We were going back and forth between doing IV vitamin infusions weekly (basically TPN without the carb or lipids), and getting the same IV formulation prepared for oral administration. Turns out, the only place that can prepare this stuff is a compound pharmacy NOT contracted with our insurance. So, in order to do these vitamins, we have to pay $630 or something out of pocket each month and submit for reimbursement. We don't HAVE an extra six hundred bucks a month! And that's assuming it would be covered 100% (which I assume is the case, they have been good about everything else).
So now, we may actually have to get a PIC or port and do this stuff IV because it will be covered 100% if we do it that way. Which means I have to increase the risk of infection in an immune deficient 18 month old because of insurance restrictions. Granted, it would be nice to have venous access for blood draws (we get them at least every 2 weeks and he's an impossible stick), but still. AND another round of anesthesia in a kid with an undiagnosed metabolic disorder. His seventh, so he's had no issues before, but....still. The fact that this is a financial issue is insane.
I am
beyond measure.UPDATE- talked to our insurance case manager- our particular BCBS PPO does NOT contract with any compounding pharmacies. They also would only partially reimburse, not the full $600+/month. She is checking with their in-house pharmacist to see what they do with severely diabetic kids, who often have the same issue with added carbohydrates in vitamins. Meanwhile, he had explosive green diarrhea from ferinsol, which is made with sorbitol. which is derived from corn.
:So here I am with a kid whose B-6, folate and iron are dangerously low. I suppose I have to wait til he starts having seizures before I can get this stuff covered.
