or Connect
Mothering › Mothering Forums › Mom › Women's Health  › Allergies › Frustrated.... help me, Nancy Drews.
New Posts  All Forums:Forum Nav:

Frustrated.... help me, Nancy Drews. - Page 21

post #401 of 441
Quote:
Originally Posted by sonnambula View Post
Okay...seeing your name triggered something for me. Have you heard that DMSA has been pulled from the market? I keep meaning to ask you. There were two major companies producing it and both were told to cease and desist. From what my sources tell me doctors can't even get it anymore. No idea if there's a black market...but I wondered if you had a backstock. If you don't you may want to see what you can acquire...
I had heard something about that, but a month or two ago I decided I was feeling better enough to try playing with my chelators, so I tried a couple rounds with just ALA and no DMSA, partly because ALA's nicer on the body, partly because DMSA is so much more expensive than ALA. And hey, I felt fine, no weird/bad effects (actually I felt pretty darn normal, it was weird to take ALA and feel normal) so I'm not going to buy more. I should ask my HCP what she's doing about this, though, since it's a normal part of her thing for people.
post #402 of 441
Thread Starter 
Quote:
Originally Posted by whoMe View Post
The closest relations to broccoli are:
* convar acephala Marrow-stem Kale, 1000-headed Kale
* convar botrytis var botrytis Cauliflower and Broccoli
* convar botrytis var italica Sprouting Broccoli, Calabrese
* var bullata subvar gemmifera Brussels Sprout
* var capitata Head Cabbages - alba: white or green, rubra: red
* var gongylodes Kohlrabi
* var subauda Savoy Cabbage

Have you tried any of those?
Well, I've had kale just recently. Oh wait- I think DD did have a sip of my kale smoothie too. She seemed ok with it, and I seemed to react a little. I just made sauerkraut and have had a few tiny bites, but otherwise no cabbage in quite some time. It's been a while since we've tried cauliflower too. And none of the other ones.
post #403 of 441
Quote:
Originally Posted by whoMe View Post
The closest relations to broccoli are:
* convar acephala Marrow-stem Kale, 1000-headed Kale
* convar botrytis var botrytis Cauliflower and Broccoli
* convar botrytis var italica Sprouting Broccoli, Calabrese
* var bullata subvar gemmifera Brussels Sprout
* var capitata Head Cabbages - alba: white or green, rubra: red
* var gongylodes Kohlrabi
* var subauda Savoy Cabbage

Have you tried any of those?
its funny, dd tolerates broccoli and cauliflower (direct and bm), but not nappa cabbage or brussels through bm. not even fermented nappa cabbage. hmmm.
post #404 of 441
Thread Starter 
Ok, I finally made it through the Cutler book, and I have a lot of notes and a lot of questions. I'm just going to copy and paste a bunch of stuff from my notes, so feel free to comment. eta: This got really long, so I'm going to highlight the steps that I need to take in a different color so it's easier to see.

First, about my test- Cutler mentions that lactation can skew all the results, making them all off a little, OR you can have the "all low" results, which is apparantly what I have. My elements are all showing as low except 3 things, which makes me curious- if all the numbers would increase without lactation in my case, does that mean that my 3 numbers above the 50% line would actually be really, really high? My highest number is for molybdenum, which is also the element that DD is completely off the charts for. I really wish he talked more about lactation and results... or that there was any way to accurately interpret the results.

Things that were high or low on DD's test:
  • Aluminum - not appropriate to chelate; can simply reduce exposure.
    • not sure where DD would be getting exposure, other than through my antiperspirant (which if you saw the chat thread, I just swapped out for the crystal deod... and then read in the Cutler book that it's bad too. But I would love opinions on that.) Oh- and all the antacids that I took during my third trimester. But that exposure shouldn't still be hanging around, should it?
    Antimony - can chelate with DMSA or DMPS and ALA, or use methylating supplements: TMG, B12 (already taking), folic acid
  • Arsenic - can be cleared by methylation, same supps as antimony
  • Magnesium low - I'm supplementing
  • Manganese (low) - I'm just going to copy and paste my notes here:
    • Needed to convert ammonia to urea
    • Essential for growth
    • Associated with low cholesterol, weight loss, hair and nail changes, dermatitis, and blood clotting issues due to low levels of vitamin K dependant plasma proteins
    • Low hair levels are associated with allergy and inflammation
    • Supplement with 5-15 mg/day for low levels
      • need to look into this one for DD
  • Chromium - maybe need to supplement?
  • Molybdenum - this one is off the charts high for DD, and Cutler says this can be toxic at high levels.
    • for high levels, supplement with copper and zinc (I'm already supping zinc, need to look into copper)
    • Increasing dietary sulfate levels will reduce Mo absorption (I need some clarification on this one, if this is something I should look at doing.)
  • Iodine - low. Need to look into a supp. Reccomendations?
  • Lithium- super low. Also need to find a supp. Cutler recommends the orotate or aspartate form.
  • Strontium - low, but Cutler doesn't mention anything about what to do for low levels.
  • Cobalt - low, but also no info about it.
  • Germanium- low, but not an issue.
  • Zirconium - high, but also not much info.

Oh- and when I'm talking about supplementing, I mean supplementing me, not DD. So I still need to do some research about how all these elements will transfer through BM.

Ratios for DD-
  • Ca/Mg - below range; can lead to glucose intolerance
  • Ca/P - below range; see notes below
    • can also imply toxicity, even if all bars are in the green (thoughts?)
  • Na/K - below range; thyroid levels too high
  • Na/Mg - below range; low adrenaline

Tanya- you mentioned the Na/Mg ratio on my test earlier, that the below range number meant adrenal fatigue. DD's number was also below range, but I'm really confused about something. Her Ca/P level was also below range, but Cutler says this means the person is a fast metabolizer, and makes a lot of adrenaline. So one ratio shows DD as having high adrenaline, and one shows her as having low adrenaline. Am I reading those wrong?
post #405 of 441
The thing about adrenal fatigue is that there are different stages in how we adapt to stress, and I think that may be the source of the disconnect. Let me find a link...

http://www.chronicfatigue.org/ASI%20Normal.html

I don't know of a better link that shows all the graphs on one page, but basically when our adrenals are just a bit stressed, we start overreacting and producing more cortisol than we need. And that gets worse and worse, and then our bodies just can't sustain that anymore, and so we get to the point where we under-respond, and end up with less cortisol than normal. And that eventually gets worse and worse, but with cortisol being low rather than high.

Stage 5 seems to be where a lot of adults hit a point where they know something's wrong and they start seeking help. So they've got a lot less cortisol than they should, but they just didn't really realize all the years when they had too much. It's only in retrospect that I've realized that I _did_ react physically more strongly to stress than other folks (and I thought I was just mellowing later when, say, a car would almost change lanes into me and I'd have to swerve to miss and I didn't have any reaction).

I've read about exactly how the cortisol-adrenaline thing works, I forget the details. They both help us deal with stress, I think adrenaline is more of an immediately stressful situation type of response.

re: TMG, I am not sure if it's ok for nursing moms to supplement, my HCP mentioned glycine as one of the several choices given that I was asking about doing more (vs a higher dose of ALA) recently.

I will look for a better place to read about aluminum, I was surprised at all the cookware, though obviously you're not eating the high-aluminum foods. But maybe the issue is more on the detox side for you two, given that you may not be exposed to much now (but in general most people are exposed to so much, you probably were exposed for years) and with your foods so limited for so long, maybe that's the only issue (not enough detoxification bandwidth), and it will correct on its own as you work on this.

I'm responding out of order, sorry. I don't think Cutler has studied lactating women enough to know if everything skews down proportionately--I wouldn't think so, I haven't see anything else that makes me think everything moves together in the same way. It all seems individual based on the element (but that's just my impression, fwiw).

My HCP recommends a lot of Aubrey's Organics personal care products. The deodorant smells pretty good--my body's been weird a while, I don't sweat much, so I can't testify to how well it works.

The manganese is interesting, my multi has a ton of manganese, I have low cholesterol and a slightly odd vitamin K situation. I guess I need to re-read this section of his book.

The problem with many minerals (and you should look them all up individually) is that most are more tightly controlled in the blood than elsewhere, so mom supplementing changes the amt available for milk fairly slowly (unless mom is really deficient). Magnesium, iodine and selenium are exceptions, they're proportionate to mom's intake, I don't remember if I even looked up manganese, but it would've been 2 years ago regardless. I have no idea what foods contain manganese, or if it's soil-dependent.

Always be cautious supplementing copper, you get a lot from the liver you consume (well, probably, most livers are high in copper but I haven't looked up lamb) and high copper is more normal than low.

Iodine--Iodoral is fairly high dose, 12.5mg (12,500 mcg, note the units) and you've read the warnings elsewhere. There are kelp supps, or lots of dried seaweed foods (some folks put kombu or others in stock).

I need to re-read about the ratios, the adrenal one is the one I'm most familiar with, and I'm still not an expert there.
post #406 of 441
Thread Starter 
Lol- you can respond in any order you want!!

I didn't know that liver was high in copper. (And I've totally been forgetting to make it lately... ) So maybe I'll just make sure we get that a few times a week.

I would rather get iodine from a natural source, but I trialed nori and DD reacted really bad- so I haven't been brave enough to trial any other type.

I will look up more natural sources for the other stuff too and see what we can get added into our diet.
post #407 of 441
Most people get a lot more copper than zinc, things like liver (which admittedly most people don't eat), but also nuts, sesame seeds, dried beans, and chocolate are all high in copper, and there are fewer concentrated sources of zinc. But barely any of that applies to you, but for in the future, when it does, I thought I'd mention it.
post #408 of 441
Thread Starter 
I actually added some pinto beans to our big rotation. And I hope to have chocolate again soon, as soon as I can find some without added sweetenersj.
post #409 of 441
Quote:
Originally Posted by changingseasons View Post
I would rather get iodine from a natural source, but I trialed nori and DD reacted really bad- so I haven't been brave enough to trial any other type.
I'm wondering if this (iodine) mobilized toxins, but with a blocked detox pathway, thus you saw reactions.


Pat
post #410 of 441
Thread Starter 
Quote:
Originally Posted by WuWei View Post
I'm wondering if this (iodine) mobilized toxins, but with a blocked detox pathway, thus you saw reactions.


Pat
Well, I doubt it after reading Lisa's post (on the chat thread) that nori doesn't have much iodine in it.

I need to do some more reading on molybdenum today... I really feel like it could hold a puzzle piece for us.
post #411 of 441
From mountainroseherbs info on nori:
Quote:
Like most seaweeds, Nori is very high in mineral content which accounts for up to 40% of its dry mass. The most important of these micronutrients is iodine * a very small portion of Nori provides well over the adult recommended daily intake of iodine
Also this site mentions nori as having 16mcg per sheet at one point or 105mcg per sheet at another... I think it depends on the source of the nori.
post #412 of 441
Quote:
Originally Posted by changingseasons View Post
Well, I doubt it after reading Lisa's post (on the chat thread) that nori doesn't have much iodine in it.
Just FYI, when I added Nori into my diet recently, I had detox symptoms for awhile. I was just eating one sheet of Nori per day, with brown rice. Prior to that I hadn't been getting any idodine for a long time, so I think it was kind of a shock to my system.

I am kicking myself, reading this thread, because somewhere along the line I forget to keep eating the Nori every day, so now I will have to start over. Ugh.
post #413 of 441
where do you buy sea vegs? my grocer and hfs didnt have any. is a sea veggy supp ok do you think?
post #414 of 441
Quote:
Originally Posted by WildIris View Post
I am kicking myself, reading this thread, because somewhere along the line I forget to keep eating the Nori every day, so now I will have to start over. Ugh.
See, that's why I got kelp granules instead so I can just sprinkle it on stuff. Eden Foods makes nori "crumbles" too, I'm assuming for the same purpose.
post #415 of 441
I think I'll have to start stocking my Nori and avocado and make some more rice bowls.
post #416 of 441
Thread Starter 
Quote:
Originally Posted by JacquelineR View Post
See, that's why I got kelp granules instead so I can just sprinkle it on stuff. Eden Foods makes nori "crumbles" too, I'm assuming for the same purpose.
Yeah, that's what I wanted to get... looked so convenient! But then DD reacted to the nori...
post #417 of 441
Quote:
Originally Posted by changingseasons View Post
Yeah, that's what I wanted to get... looked so convenient! But then DD reacted to the nori...
I'd still bet that it was a detox reaction from the iodine, as Pat suggested.

ETA: But, it's not my daughter so it's not my bet that matters. You need to do what you're comfortable with and if you're not comfortable re-trialing nori, then you shouldn't.
post #418 of 441
Thread Starter 
Really? DD only had like 3 small bites of a nori sheet. (I had the rest of the sheet.)
post #419 of 441
Quote:
Originally Posted by changingseasons View Post
Really? DD only had like 3 small bites of a nori sheet. (I had the rest of the sheet.)
What kind of reaction did she have?
post #420 of 441
Thread Starter 
I think it was a flaring of her eczema and she slept like crap... but it was a couple months ago, so I would have to go look in her food journal. (I'm nak right now.)
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: Allergies
Mothering › Mothering Forums › Mom › Women's Health  › Allergies › Frustrated.... help me, Nancy Drews.