anyone going for NO genetic screening? - Page 3

[SUOMI-SOFIA]

I do the 18-20 week ultrasound & the quad screen...I'm 30 so I know that the risks are elevated for each year after early 20's, so I'm having it - plus - I have minor spina bifada - nothing that shows or affects me, but I'm very paranoid about it because my mom ate well, etc. and I still have part of a tailbone that didn't close???

[mommaof5]

No testing here. I will get an ultrasound at 20 weeks.

[ErinBird]

I don't have genetic testing done. I'm okay with the u/s and blood draws in theory, but what will I do with those results? I'm not willing to accept the risks of an amnio to give conclusive answers. I'm not going to terminate a pregnancy under any circumstances.

[L.A.Mamma]

I'm preggo with twins and have been monitoried since 5.5 weeks, maybe even earlier. I have an MFM and OBGYN. Both do ultrasounds every visit.

The choice of having an amnio was really difficult. I would terminate the pregnancy if there was something wrong with the baby(ies).

So at 10 or 11 weeks I did the test that measures the nuchal (via ultrasound), measures protein in the blood and hcg in the blood. Results:
-nuchal -- normal
-protein in blood -- normal
-hcg in blood -- on the high end of normal (most likely b/c I have 2 babies)

My doc recommended an amnio. My husband and I really think everything is okay. But even though I'm 29, statistically I'm considered 34 with a singleton. I finally agreed to do an amnio on 2/25. I'm currently 14w 1d. It was a very difficult choice, one that I'm still struggling with.

[Mom&BabyChiro]

Count me out too!

I'm also not planning to get the Quad screen at my next pre-natal visit with the midwife. I went into this pregnancy not really thinking I'd want to get any of the tests, but staying open and listening to all of the information provided by my midwife (and in books, articles, etc.). When she told me that 98% of people who get a positive test result on this first blood screen end up with healthy babies and NO abnormalities...it sealed the deal!

That's WAY too high of a false positive result for me. Then I'd have to choose if I wanted to go through with the amnio after that, which causes miscarriage 1 out of every 200-300 times, and I'm definitely not up for experimenting with those percentages either!

So that made my choice easy, and I feel even better now about trusting the pregnancy process and the baby growing inside me

[swtpesq]

We're having no testing done either...I was kind of on the fence about it, and then my husband said, What would happen if we got a positive (very possibly incorrect) screen? Well...knowing me, I would stress every second of every day until I found out for sure what was going on, probably slip into depression (which I've been known to do), and then what? I wouldn't terminate the pregnancy for anything other than the most extreme circumstances, so it would just dampen my ability to love and connect with my baby because I'd be so worried the whole pg. So I kind of just went along with him (SO not in my nature!) and I'm very comfortable with that. We'll have the structural u/s at 20 weeks to check overall measurements and such, but nothing beyond that (and that's only because I had a relatively late miscarriage with pg #1 so they order the super-duper u/s for me).

But I can totally understand the other side of the coin, too - our decision is mainly for the mental and emotional health of me and my family.

[GenomicsGirl]

Well, congratulations to all of you who chose to do no testing! You are definitely going against the grain and making the best choice for your families The chances of something being "wrong" are slim, so I'm wishing you all a very healthy & happy pregnancy!

[joyful373]

No testing here either. When the OB asked me if we would be interested, I told him no- and then when hubby came with me to last check up he asked again (ok?) and we still said no. I'm 30- I'll be 31 when baby comes- but I just know that whatever happens we'll make it. I'm not even considering the possibility of terminating. So, I'm trusting the process and then I leave the rest up to God.

[momoftworedheads]

No genetic testing here of any kind. I just do not feel it is necessary. I had a triple screen 9 yrs ago with my oldest when I did not know anything. Never done one since.

Take care,
Jen

[gurumama]

Originally Posted by GenomicsGirl

Well, congratulations to all of you who chose to do no testing! You are definitely going against the grain and making the best choice for your families The chances of something being "wrong" are slim, so I'm wishing you all a very healthy & happy pregnancy!

You may not realize that your statement comes across as a really offensive and unsupportive statement for those of us who do choose testing.

It also sounds as if you're wishing only those who choose not to test a healthy and happy pregnancy. Those who *do* choose to test have explained why in this thread--there is no right or wrong approach to genetic testing, and no need to congratulate one group over the other.

[L.A.Mamma]

This is just a super difficult decision. My amnio is on Wednesday of next week 2/25 and I'll be honest -- I'm terrified. But I've had 3 miscarriages and I did IVF to get pregnant this time. Statistically there's a higher chance of something being wrong according to my doctor. And even though hubby and I have discussed terminating if something is wrong -- I don't know how I'll actually feel if that decision has to be made. This sucks.

Support is always a good thing.

[L.A.Mamma]

Clarification on "Statistically there's a higher chance of something being wrong according to my doctor" -- in cases of IVF.

[preemiemamarach]

Originally Posted by gurumama

You may not realize that your statement comes across as a really offensive and unsupportive statement for those of us who do choose testing.

It also sounds as if you're wishing only those who choose not to test a healthy and happy pregnancy. Those who *do* choose to test have explained why in this thread--there is no right or wrong approach to genetic testing, and no need to congratulate one group over the other.

In the October DDC, but I also got offended by that statement! Those of us who have made thoughtful decisions about how much testing/monitoring *we* need have also made the BEST decisions for our families. Until you have lived my life, don't presume to know what is best for me and mine.

[NicolleLynne]

Originally Posted by preemiemamarach

In the October DDC, but I also got offended by that statement! Those of us who have made thoughtful decisions about how much testing/monitoring *we* need have also made the BEST decisions for our families. Until you have lived my life, don't presume to know what is best for me and mine.

I'm also in the October DDC and was a little offended by this statement. While I'm sure the poster meant no harm, it does come across as implying that mothers who choose to test are making a poor choice and mothers who don't, are making a better one.

With my first pregnancy I was 37 and chose to have a CVS. It was an agonizing decision and I vacillated on it up until the day of the test. The results came back 5 days later. My poor baby had triploidy (a full set of extra chromosomes). This is a condition incompatible with life. The day I got the news was one of the worst of my life and ended with a decision to terminate the pregnancy, I was eleven weeks along.

Now, months later and pregnant again I still mourn my loss but don't regret either the test or the termination. My reasons for feeling this way are myriad and deeply personal but I am confident that I made the right choice and will have another CVS with my current pregnancy.

There are no easy answers with genetic testing and in my opinion, no good or bad or better or worse, there's only what's right for each of us. No one makes the choice easily and if they do decide to test, it doesn't mean they love their babies any less. I don't think any mother would be here at all, if they didn't love and want their children with all their hearts, I know I do, more than words can say.

Wishing everyone the best,
~N~

[thorn]

Originally Posted by gurumama

You may not realize that your statement comes across as a really offensive and unsupportive statement for those of us who do choose testing.

It also sounds as if you're wishing only those who choose not to test a healthy and happy pregnancy. Those who *do* choose to test have explained why in this thread--there is no right or wrong approach to genetic testing, and no need to congratulate one group over the other.

GenomicsGirl had CVS done, so I really doubt that is how she meant it. I think she meant we are all doing what is best for our families.

[Bellabaz]

We aren't. I can't remember if I had the quad screen with dd because i transferred obs and moved around htetime I would have had it. Anyway this time my midwife explained what it was for and we decided not to do it. I don't want the stress of a false positive and I won't have an amnio regardless so there is really no point for us. We will have one ultrasound about midway and thats really all I am planning on.

[ombrooklyn]

Originally Posted by NaturalMindedMomma

I did not plan on terminating and am receiving HB care. I refused all tests. No 20 week ultrasound either. My midwife delivers breech babies at home too, so no worries about positioning.

I'm with you on the tests.

Same here!