I really don't know what to do next with ds1. Even just pointing me in the right direction towards a reliable practitioner would be so appreciated (we're in Central Va, but I'll to travel a little if necessary. We also have fam in Northern Va and in Charlotte, Nc so those places would be fine too).
I will try to list the main concerns as thoroughly as I a can.
At around 15 months, my very healthy, very laid back, calm, loved to eat food boy stopped eating and became extremely defiant. He would drink milk and eat only fruit. He had been fully vaxed
, I didn't know better at the time, he was nursed until he was around 13 months. His doctor said not to worry about him not eating and about his behavior because it was normal.
At 2 years old, another doc in the same practice said he was Failure to Thrive. He had completely fallen off his growth chart. He had dark circles under his eys and his toenails were spooned inwards. He wrote a prescription for Pediasure.
Still, not knowing any better, we gave him the Pediasure. At first we thought it was great, after 3 months he had gained 2 pounds. But then he stopped gaining and growing again and his behavior had gotten almost out of control.
He had started itching a lot, mostly his booty and legs. Eventually, he was itching to the point of drawing blood and he was unable to sleep because of it.
At 3 years old, I took him off of gluten and dairy. His behavior was amazing afterwards and the itching was about 80% less. He started having an interest in food again! We had him tested through Enterolabs. It came back as highly intolerant to gluten, and dairy, medium interlorence to soy and slight intolerance to egg. We took him off soy and the itching stopped completely. I supplemented him with Brainchild Nutritionals level 3 vitamins and minerals, CLO, Kirkmans Cal/Mag, and Vit K. He gained 2 pounds and grew 2 inches in a years time.
Now at 4.7 yrs he is itching again, behavior not as bad as before, but worsening and hasn't grown or gained weight in a while and lost interest in food again.
A couple months back we tested him through Genova and Doctors Data.
His hair test came back as very, very high in arsenic, low copper and low molybdenum. If I did the Cutler count test correctly, I don't thing he has an issue with Mercury.
I'm having a harder time with interpreting the Genova NutraEval test. (Ds's new supposedly holistic ped really didn't help much). ( Oh and he also says he is a classical homeopathist, he did a session with ds and but the remedy really did not help ds at all) Anyway, there are a lot of highs and lows on this test, probably too many to post here. Some of the main ones ( I guess what I consider main, just b/c I don't know much about the others) are the following on a 1-10 scale:
vit B6- 0, lipoic acid- 0, CoQ-10- 1, a-Ketoglutarate- 0, Iron- 0, Copper- 0
Protein malabsortion/digestion -7, Bacterial Dysbiosis- 8, Detoxification impairment- 7, Oxidative Stress- 8, Mitochodrial dysfunction- 7
There's a lot of other stuff, but the report is way above my head. I don't know what to list and what not.
He eats a pretty healthy, largely TF diet. He doesn't eat much sugar, treats are once in while things, we don't do artificial dyes and stay away from preservatives.
He has tongue tie, which we just recently discovered after a case of stomatitis. He never had any nursing problems (other than me- Hyperlactation for the first 4 months) or speech issues, he began speaking pretty early and has spoken quite clearly.
Also, possibly noteworthy, from 16 months to 2 years old the apt we lived in had a really bad mold issue in the second bedroom. We didn't use that room and kept the door closed at all times.
I've read the entire CSS thread (whew, that took a while!) and learned so much from it. I'm not sure if I should give him Threelac b/c of the casein. I have some Kombucha brewing and I ordered some water kefir grains from Dogmom.
Okay, I'm going to stop now before my one post takes up an entire page!
I would really appreciate ANY advice
I will try to list the main concerns as thoroughly as I a can.
At around 15 months, my very healthy, very laid back, calm, loved to eat food boy stopped eating and became extremely defiant. He would drink milk and eat only fruit. He had been fully vaxed
, I didn't know better at the time, he was nursed until he was around 13 months. His doctor said not to worry about him not eating and about his behavior because it was normal.At 2 years old, another doc in the same practice said he was Failure to Thrive. He had completely fallen off his growth chart. He had dark circles under his eys and his toenails were spooned inwards. He wrote a prescription for Pediasure.
Still, not knowing any better, we gave him the Pediasure. At first we thought it was great, after 3 months he had gained 2 pounds. But then he stopped gaining and growing again and his behavior had gotten almost out of control.
He had started itching a lot, mostly his booty and legs. Eventually, he was itching to the point of drawing blood and he was unable to sleep because of it.
At 3 years old, I took him off of gluten and dairy. His behavior was amazing afterwards and the itching was about 80% less. He started having an interest in food again! We had him tested through Enterolabs. It came back as highly intolerant to gluten, and dairy, medium interlorence to soy and slight intolerance to egg. We took him off soy and the itching stopped completely. I supplemented him with Brainchild Nutritionals level 3 vitamins and minerals, CLO, Kirkmans Cal/Mag, and Vit K. He gained 2 pounds and grew 2 inches in a years time.
Now at 4.7 yrs he is itching again, behavior not as bad as before, but worsening and hasn't grown or gained weight in a while and lost interest in food again.
A couple months back we tested him through Genova and Doctors Data.
His hair test came back as very, very high in arsenic, low copper and low molybdenum. If I did the Cutler count test correctly, I don't thing he has an issue with Mercury.
I'm having a harder time with interpreting the Genova NutraEval test. (Ds's new supposedly holistic ped really didn't help much). ( Oh and he also says he is a classical homeopathist, he did a session with ds and but the remedy really did not help ds at all) Anyway, there are a lot of highs and lows on this test, probably too many to post here. Some of the main ones ( I guess what I consider main, just b/c I don't know much about the others) are the following on a 1-10 scale:
vit B6- 0, lipoic acid- 0, CoQ-10- 1, a-Ketoglutarate- 0, Iron- 0, Copper- 0
Protein malabsortion/digestion -7, Bacterial Dysbiosis- 8, Detoxification impairment- 7, Oxidative Stress- 8, Mitochodrial dysfunction- 7
There's a lot of other stuff, but the report is way above my head. I don't know what to list and what not.
He eats a pretty healthy, largely TF diet. He doesn't eat much sugar, treats are once in while things, we don't do artificial dyes and stay away from preservatives.
He has tongue tie, which we just recently discovered after a case of stomatitis. He never had any nursing problems (other than me- Hyperlactation for the first 4 months) or speech issues, he began speaking pretty early and has spoken quite clearly.
Also, possibly noteworthy, from 16 months to 2 years old the apt we lived in had a really bad mold issue in the second bedroom. We didn't use that room and kept the door closed at all times.
I've read the entire CSS thread (whew, that took a while!) and learned so much from it. I'm not sure if I should give him Threelac b/c of the casein. I have some Kombucha brewing and I ordered some water kefir grains from Dogmom.
Okay, I'm going to stop now before my one post takes up an entire page!
I would really appreciate ANY advice
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with added fats.
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