Hi, I just ran into this thread doing a search. I realize that it's old, but I thought I'd add some info in the event that it's helpful and somebody else digs it up later while looking into pyroluria.
Ok, first, I'll say that we've been working with the Pfeiffer Treatment Center (the place referenced int he link above) for 2+ years for our oldest daughter. She has been diagnosed as borderline for pyroluria and they help us manage her nutrient needs. We have found our work with them to be very helpful in dealing with bowel and behavior issues that were not being impacted through other means that we had tried (beh. mod. programs, psych/social work, GI docs, diet, NAET treatment, dietary changes, etc.)
That said, if you are strictly looking to discover if you have pyroluria, you do not need to work with a physician, you can just order a test to do at home (urine sample) and mail it in for results. Of course depending on the results you will want to seek out medical guidance, but it's useful as a screening tool. After DD was diagnosed, DH and I both ordered tests for ourselves to do at home to help us decide if we should be seeking supplementation guidance for ourselves. You can order a pyrrole test
here or
here (both well-regarded labs). Because the krypropyrroles are light-sensitive, you want to do the test and then freeze quickly, with minimal light exposure. As a general rule, a result below 10 is normal, 10-20 is "borderline" but generally treated if coupled with other clinical symptoms, and 20+ is considered clinically significant.
Hope that's helpful, and good luck.
