Severe vitamin D deficiency in EBF baby - Page 3

[PatioGardener]

Originally Posted by Britishmama

He said she was textbook, even with the muscle twitches, he was shocked no one picked it up, it wouldn't have been picked up had her mother not been a PIA and had a good GP that listened to her

Well done and to PIA mums! You are AWESOME

It is super that you have picked this up and are now working to treat it. You caught it early (baby not even walking yet) and this will now result in you getting treated for low vit D as well as baby.

It must all seem overwhelming right now.

Best of luck with everything - please let us know how it goes when you have time. And congratulations again for listening to those Mama instincts and fighting for your little one. You rock!

ETA: good on your GP too. We need more docs who listen to parents' instincts!

[Helen_A]

Glad you have some answers.

The drops I suggested can be given in quantity - you could take them for yourself :-)

Do ask them about the level of alcohol in the drops you have - NICE say *no* alcohol containing medication for children under 5, due to the potential impact on their developing systems of the substance, so it would be worth querying - there are definately no alcohol ones because we had them years back for the smalls... sorbitol is a definate improvement on the other artificial sweeteners of the drops of the past though you may need to watch her for additional bowel movements (as its a laxative) and ask about nutritional support for her (well, you, as extra bf should do it really) as it can also speed the transit of all nutrition.

JRI are really good when it comes to BF though - you should be able to access the bf support clinic for info on how it may affect the absorpsion from bm if at all :-)

[Satori]

Originally Posted by Britishmama

See above + GP said 800 a day was enough, although I wonder, KWIM?

I need to post on the HG forum, I never knew bout this, and I'm sad this happened

I've been having a HUGE brain fog, is it from the vit d???

yep, being total brain dead so to speak is par the course. Be aware though that you may need more then 8 weeks of therapy. I've been on 3 - 8 week courses since June of last year and my levels are still rising but not normal.

[guestmama9920]

Originally Posted by SeekingSerenity

I just started this regimen last week. I am positive my Lil' Man is deficient too, as he was EBF until last month when he started solids. Hopefully my supplement will help him, I don't think his problems are nearly as bad as OP's.

I'd have the test and get some drops it wont hurt

Originally Posted by PatioGardener

Well done and to PIA mums! You are AWESOME

It is super that you have picked this up and are now working to treat it. You caught it early (baby not even walking yet) and this will now result in you getting treated for low vit D as well as baby.

It must all seem overwhelming right now.

Best of luck with everything - please let us know how it goes when you have time. And congratulations again for listening to those Mama instincts and fighting for your little one. You rock!

ETA: good on your GP too. We need more docs who listen to parents' instincts!

Thank you, I do feel so responsible, and angry. We're going to speak to a lawyer, she would have been left till she had a massive sez
uire or worse, she had bad apneas awhile back to, no one listened,

Originally Posted by Helen_A

Glad you have some answers.

The drops I suggested can be given in quantity - you could take them for yourself :-)

Do ask them about the level of alcohol in the drops you have - NICE say *no* alcohol containing medication for children under 5, due to the potential impact on their developing systems of the substance, so it would be worth querying - there are definately no alcohol ones because we had them years back for the smalls... sorbitol is a definate improvement on the other artificial sweeteners of the drops of the past though you may need to watch her for additional bowel movements (as its a laxative) and ask about nutritional support for her (well, you, as extra bf should do it really) as it can also speed the transit of all nutrition.

JRI are really good when it comes to BF though - you should be able to access the bf support clinic for info on how it may affect the absorpsion from bm if at all :-)

so far no one can tell me how much is safe for me plus nursing, I'll try them

[~Charlie's~Angel~]

My heart is breaking for you, mama. No one should have to go through what you have, NO ONE!!!!!!!! Take them to the cleaners if you can. Being ignored like that is absolutly ridiculous. Especially a totally helpless child like yours. Poor baby and mama!

[Blucactus]

Originally Posted by Britishmama

Ok back from the ped, this is the lowest level he's seen. She has ricketts, they have done more blood tests to see why, tomorrow we may have to worry more

They gave us 2,000iu drops and they hope in a month we'll be back to perfect. it's called one-alpha they say, it has sorbitol 22mg per drop and alchol but no nuts, it's not ideal but I don't think I have a choice right now

The funky head shape is from the ricketts and the pro's at Oxford will tell us more on Tuesday

He said she was textbook, even with the muscle twitches, he was shocked no one picked it up, it wouldn't have been picked up had her mother not been a PIA and had a good GP that listened to her

[Carita]

so glad you were a PIA mama!!! good job advocating!