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Can strabismus cause torticollis?

post #1 of 5
Thread Starter 
I've been taking DD to PT and a Chiropractor for Torticollis but it isn't improving at the rate the Chiro expects (the PT hasn't offered an opinion on this yet). Our pediatrician suggests taking DD to an Optometrist to rule out a visual reason for the Torticollis (perhaps she is compensating by tilting her head). We have that appointment of 3/3.

When DD was younger she had a hard time focusing her eyes - 1 would do something different from the other. By about 6 months this was gone as far as I could tell and I wrote it off my list of things to worry about. But since seeing the pediatrician I've been watching her again. This afternoon, upon waking from her nap her eyes were clearly not focused together. But she was tired and she's sick. Maybe that explains it, or maybe this is happening more than I realize. Could this explain the Torticollis? And if she does still have Strabismus, how bad is it that we're just now (at nearly 16 months) figuring it out.

Ugh! I'm constantly feeling pulled between not wanting to over-react and take her to too many specialists unneccesarrily vs. concern of missing something that would have been better adressed a yr ago. It seems like I always get it wrong.
post #2 of 5
First of all, .

A visual issue can definitely impact torticollis, and vice versa.

Having your dd's eyesight checked would be wise at this juncture, given that the torticollis has taken a while to resolve. I usually recommend a functional/developmental vision evaluation for most little ones with torticollis around 12 months of age.

Is there a a developmental optometrist in your area? They specialize in pediatrics and also how the visual system affects the development of other systems. They don't just check acuity, but how well the 2 eyes are working together as well as how the brain is processing that information.

and good luck, and please keep us posted on the results!!
post #3 of 5
Thread Starter 
Quote:
Originally Posted by kidspiration View Post
First of all, .

A visual issue can definitely impact torticollis, and vice versa.

Having your dd's eyesight checked would be wise at this juncture, given that the torticollis has taken a while to resolve. I usually recommend a functional/developmental vision evaluation for most little ones with torticollis around 12 months of age.

Is there a a developmental optometrist in your area? They specialize in pediatrics and also how the visual system affects the development of other systems. They don't just check acuity, but how well the 2 eyes are working together as well as how the brain is processing that information.

and good luck, and please keep us posted on the results!!

Thanks for the insight. Can any visual issue impact torticollis, or are there particular ones that babies tend to compensate for in this way, and if so is strabismus one of those?

I talked to a good friend of mine who is an optometrist and she is the one who recommended the clinic we are going to specifically because these docs specialize in pediatrics and issues like this. Our pediatrician recommended the Children's Hospital clinic, but my friend felt they would be heavy on the acuity and light on the functional evaluation, or else (knowing how dd has a pretty severe white coat phobia) they wouldn't give her the time to get comfortable so they could have good results with the functional eval. So I'm optimistic that if there is a problem we will find out next week. But I'm terrible at waiting. I tend to spend the whole time trying to figure out the answer myself.
post #4 of 5

Hi,

 

I know you wrote this post a long time ago (4 yrs ago) but if you could respond to my questions below and update me on your daughter's progress that would be so encouraging b/c I am now where you were 4 years ago and I am frantic. Here's my story:

 

My daughter had a very, very rough start...She was born premature at 37 weeks (35 weeks to me- my due date was way off according to my calculations) during a botched C-section when they did not give me enough anesthesia and my body went into shock and they ended up putting me out completely. She had latching issues at first as it relates to breastfeeding but eventually got it after a month. Then at 2 months she started waking every 15 mins at night, sometimes if I was lucky, every hour. After feeling suicidal for months due to extreme sleep deprivation, come to find out, she had undiagnosed reflux. Once we got the reflux under control, she started sleeping better. She has had an ear infection every other month since 5 months old. She still wakes 1-2 times a night... Her milestones are: She rolled over at 6 months, crawled at 10 months/12 months efficiently, sat up though still floppy at 11 months, pulled to stand at 13 months and she is in the process of bearing weight on legs to stand without assistance at 14 months- though she is very pigeon-toed and we are getting orthotics this week. 

 

With that said, she was also diagnosed as having hypotonia and torticollis at 5 months and she definitely has a lazy eye.

 

My questions to you are:

 

1) How is your daughter now? In relation to developmental milestones?

2) Did she have the strabismus corrected? How?

3) Did she ever have hypotonia? 

 

Thank you in advance for responding.

post #5 of 5
Thread Starter 
Hi readytorun! So sorry that I didn't see this post until now. Perhaps my answers to your questions are no longer relavent to what you're situation is but I'll answer them anyhow.

My DD is now 6 years old and completely developmentally on track. She never was delayed enough to qualify for EI services, though. We did explore the possibility of strabismus but every time she has had an eye exam the result has been "I don't see any misalignment but bring her back just in case". After a few of these I felt pretty confident that her eyes are ok. We stopped PT for the torticollis and considered that resolved, but just recently have started up again. Although she no longer tilts her head, the muscles on 1 side remain right and she tends to elevate one scapula higher than the other and is generally tight through her shoulder complex, making things like bridges in gymnastics difficult. DD was hypotonic as a baby which led to nursing issues. I think she learned at an early age to work really hard at keeping herself stiff so now she is more hypertonic- she feels like she's contracting her core almost all the time. In most ways, though, she is a very typical 6 yr old.

How is your DD doing?
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