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DS Dairy Intolerant

post #1 of 10
Thread Starter 
This could get long, so bear with me...

In early December, my husband, son (2 yrs old) and I all caught the flu. DH and I threw up for about a day, then felt nauseous for a couple of days after that. DS threw up for several days, and never stopped.

At first, he'd have some vomiting episodes and seem totally fine afterwards. He'd throw up three or four times over the course of a day or two, then nothing for two/three days. He was always in good spirits, and didn't complain of an upset stomach until moments before he threw up. As soon as he was done puking, he'd feel better again.

Shortly after the puking started, DS developed horrible diarrhea. Over the course of a few weeks, it went from soft to pudding to liquid-y, to yellow water. Soon DS was throwing up on a daily basis. We had had enough of waiting for the "bug" to pass, and brought him into our family doctor.

Dr. ordered a stool sample, and told us to give him Gravol while we waited for the bug to pass. We collected a sample from DS, but the lab would not accept it because Dr. had given us the wrong collection container. DS adamantly refused to give up another sample. Nothing we did was successful. We tried for over a week to get another sample from him, fruitlessly.

As we tried and tried to get another sample from DS, he was getting sicker and sicker. Dr. had us believe that the stool sample wasn't all that important because it would only show bacterial & parasite problems, and she suspected DS had a virus. During a second visit, she told us once again to take him home, give him Gravol, and wait for it to pass.

Well, we never gave him Gravol. The day after our second Dr. visit, DS could no longer keep liquids down. Everything that went into his body came back out. He became lethargic and lifeless. I panicked and took him to the ER. The ER doc told me that he wasn't dehydrated & probably had the flu, so take him home and give him Gravol.

At this point I was furious. Here my son had been throwing up for a month and a half, and two different doctors were telling me to wait it out. I yelled at the ER doc, who only then ordered blood work, which all came back normal. He sent us home.

The next morning, my son refused to take any liquids, solids, anything. He lay on the couch barely moving, pale and skinny. I brought him back to the family doc, begging her to do something. I said that it is not normal for a virus to last a month and a half. I said I couldn't watch him deteriorate any longer without someone taking some action to find out what was wrong.

Her response? "I'm certain he's nearing the end of this. If he won't take liquids, have your husband pin him down while you use a large syringe to squirt water down his throat. He will likely cough most of it up, but SOME of that water will go down. If he won't take Gravol, stick it up his bum and don't let him go to the bathroom for at least a half-hour. He'll be better before you know it. Give me a call on Monday to let me know how he's doing."

ARRRRGGGHHH! By this point I was thinking my son was going to die. I took him home, and finally caved and gave him Gravol. I was desperate for him to keep anything down, and the Gravol did the job. However, his diarrhea only got worse once we introduced the Gravol, and his appetite did not return.

Finally, I called a naturopathic doctor. By the time we got in to see him, DS had been throwing up for two months. The naturopath spent an hour with us, going over everything you can imagine. By the end of the appointment, he suggested that DS may be dairy intolerant and set him up on an elimination diet. Naturopath said that giving him Gravol was a horrible idea in this case, because it was keeping whatever was making him sick in his system, instead of him clearing it by throwing up, hence the diarrhea getting worse.

To cut to the chase, we eliminated dairy first and foremost. Within two days, DS's poops went from water to pudding. His appetite returned, and he started getting some colour back in his cheeks. Soon a week had passed without a single vomiting episode, and in two weeks' time his poops were back to normal. He's been taking probiotics to help heal his gut, and now seems to be the healthiest I've ever seen him.

We are a vegetarian family, and never had milk to drink. We did, however, have cheese & yogurt on a daily basis, and never worried about dairy ingredients in pre-made foods. Oh boy, do we ever check ingredients now! It has been a big adjustment to be sure, but DS is handling it like a champ. He knows what he can and can't eat, and if DH or I forget momentarily, he will quickly remind us!

I am still furious with my family doctor. That she could watch him deteriorate like that and do nothing more than continually advise me to give him Gravol.... it makes my blood boil To me, that is extremely irresponsible, negligent even. I have lost what little trust I had in her, and will not be going back to her ever again. I'm still trying to write up a letter to her telling her exactly why she won't be seeing us again, but I'm too angry to be coherent just yet.


I skimmed through three pages of the most recent threads on here, but didn't see much about dairy allergy. I'm totally new to all of this, and never worried about food allergies before. I'm still not very educated at all, and working to fix that. Any advice you may have, anecdotes, information, support, etc. is greatly appreciated.
post #2 of 10

Wow- what a horrendous process to go through! I'm so glad you found that NP who helped. We recently discovered our boys are dairy intolerant, though their reactions are not nearly as bad as what you've posted. I am feeling very grateful at this moment that my Pediatrician was totally supportive and on board with taking dairy out of our systems. How insane that your doctors let you son get to that point!

When I first posted here about going off dairy someone responded with a "hooray for a ped who believes in food intolerance." I didn't know how lucky that is I guess!

How long have you been dairy free now? Glad your ds is getting healthy again!
post #3 of 10
Welcome! You'll find a lot of people on here who are avoiding dairy.

My daughter is 22 months, and has been dairy intolerant her whole life (even reacting to trace amounts in my milk when she was breastfeeding). We've been completely dairy-free for over a year, and luckily don't know if her reactions are as bad as your son's -- accidental challenges of trace amounts (milk powder in 5 M&Ms) cause enough diarrhea and stomach cramps that we haven't tried any larger amounts ever.

There's a lot of information out there if you know how to search. If you're looking for western medicine and scientific papers (which I tend toward), you can search on CMPI (cow's milk protien intolerance) or dairy allergy/intolerance (the two terms are used in different ways in different papers).

Although from your description of his reaction it sounds unlikely, you might want to have him blood tested for allergy to know whether it's an immune-mediated (IgE) response (and so whether you're in danger of anaphylaxis and should carry an epi-pen). If that comes up negative, it just means that it's a different type of allergy, one that most allergy docs (and many family docs) won't acknowledge. But we will.

Another site for allergy support is http://www.kidswithfoodallergies.org. They have great forums, although you have to pay a yearly fee for full access.

Here's a nice site by another mom with information on getting started eating dairy-free: http://www.beanmom.com/nomilk.html.

If you're looking for that western medicine persepective (yes, there are docs out there who acknowledge and are researching our kids' problem), you can PM me. I put a thread up a few months ago with a few papers, but I've found more.

Some good news -- it's likely that your son will outgrow this. Most kids (95%) are no longer dairy-intolerant at age 3. (Although the number is less if he has an IgE allergy.)

And you'll find plenty of support here. Good luck!
- jen
post #4 of 10
Quote:
Originally Posted by jenfl View Post
Some good news -- it's likely that your son will outgrow this. Most kids (95%) are no longer dairy-intolerant at age 3. (Although the number is less if he has an IgE allergy.)
Where does this number come from? I thought kids were MORE likely to outgrow it if it was an IgE allergy, and LESS likely to outgrow it if it was an intolerance...

Two of my kids are dairy intolerant (among other things). I wish I could remember the name of it.... but there is a condition where you can get a stomach virus and be temporarily unable to digest milk. Considering your story, it may be a possibility. Not sure how long it lasts in that case.

There are lots of non-dairy alternatives and recipes out there (check out the recipe thread at the top of the page). Welcome. And to you for the trial by fire you just had to go through.
post #5 of 10
Quote:
Originally Posted by kjbrown92 View Post
I wish I could remember the name of it.... but there is a condition where you can get a stomach virus and be temporarily unable to digest milk.
Giardia lamblia (a parasite) can cause lactose intolerance.
post #6 of 10
How incredibly scary!
I can just imagine the anger you feel towards your doctor right now. I went through that (anger) after I found out about DS1's dairy allergy (IgE) and thought back to a few times where it should have been obvious to a doctor that there was more than just "colic" going on (ie the night he went limp and lifeless and I was told I was "overreacting" and that I should *not* bring him to ER because I'd just be wasting their time).
There was a serious bug which was going around which lasted 6 to 8 weeks with symptoms very much like what you described. My brother got it and had to go into the hospital a few times to be rehydrated.
I would second getting him tested to rule out an IgE allergy rather than lactose intolerance (which, by the way, is completely different from dairy intolerance... I would consider your son to be dairy intolerant at the least rather than lactose intolerant.).
post #7 of 10
Quote:
Originally Posted by kjbrown92 View Post
Where does this number come from? I thought kids were MORE likely to outgrow it if it was an IgE allergy, and LESS likely to outgrow it if it was an intolerance...
The first source that I have handy is "The Diagnosis and Management of Cow Milk Protein Intolerance in the Primary Care Setting" by Ewing and Allen, which is an article that gathers information from multiple other articles.

http://findarticles.com/p/articles/m...1/ai_n17211558

Quote:
When a child develops tolerance to cow's milk depends on the severity of the initial reaction. Children whose initial reaction is limited to cutaneous symptoms, such as contact urticaria around the mouth or simple hives, usually develop tolerance to CMP earlier than children who initially react with anaphylaxis (Anderson, 1997). CMPI usually spontaneously resolves by one to three years of age (Brown, 2002). Reports vary, but between 15 to 50% of CMPI infants are tolerant of cow's milk protein by one year, and 90% by three years of age (Vanto et al., 2004). When GI symptoms present alone, total resolution of CMPI can be expected (see Figure 2) (Dupont & de Boissieu, 2003).
PM me if you want to see others -- I can get them once I get the kid into bed.

- jen
post #8 of 10
Thread Starter 
Wow, thank you all for your replies and your insight! You've given me lots of things to start reading into.

A few days ago my husband gave DS a "small" piece of milk chocolate. He figured it wouldn't hurt because it wasn't very much. DS had diarrhea throughout the next day So if there was any doubt before, there isn't anymore!

I'm just thankful that we are already well-versed in vegan eating and don't have to make too many major adjustments to our diets right now!
post #9 of 10
In early spring my daughter suddenly developed excema(sp?) around her eyes, behind her kneeds,in her elbows.. She looked like she had 2 black eyes 24/7, her stomach always hurt... Our daycare provider suggested cutting out the milk, which did settle the rashes mostly, though she still has it across her torso.

Now that we have cut out all dairy I know almost within a half hour if she has accidently had any as she will get a stomach ache and have diarrhea for the next 24 hours or so...

It's hard to get the dairy to stay completely out because someone will accidently give her something (yesterday her friend buttered a biscuit and gave it to her while I was in the other room)...

We haven't found an acceptable (edible) subsitution for cheese but we have rice milk in the house to replace in recipes,for her to drink,etc.. and either purchase soy or rice yogurt.
post #10 of 10
Quote:
Originally Posted by jenfl View Post
The first source that I have handy is "The Diagnosis and Management of Cow Milk Protein Intolerance in the Primary Care Setting" by Ewing and Allen, which is an article that gathers information from multiple other articles.

http://findarticles.com/p/articles/m...1/ai_n17211558

- jen
That's actually a very good article.
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