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Increasing supply with PCOS?

post #1 of 11
Thread Starter 
One of our NICU moms has been working her tail off to increase her supply for her preemie twins. Twins are almost 2 weeks old and mom gets about 8 ml total per DAY!!!

Twins were IUI because mom has PCOS related infertility.

She pumps regularly, does skin-to-skin several times a day, puts them to breast 2x a day (they're 33 weekers)

She is on goat's rue and fenugreek.

Is there any hope that her supply will increase? The LC I talked to was not optimistic.
post #2 of 11
I have heard of both metformin and domperidone being used by moms with PCOS to help increase supply.

She may be a poor pump responder - did she get engorged after the birth?
I hope her supply increases
post #3 of 11
I have PCOS and had issues with supply. My son wouldn't latch on...and I think that was one of the biggest problems.

However, fenugreek and goat's rue worked for me to some extent, but the main thing that helped me was alfalfa supplements. I never got to the point of developing a full supply (again, probably because of the latching issues and not responding well to the pump), but the alfalfa did help tremendously.
post #4 of 11
Thread Starter 
I think she's about to go the metformin route.

I don't think she's ever been engorged.

I feel bad for her. She's trying so hard!
post #5 of 11
BTDT, w/out the PCOS though, though I have some sx. I've doing well this time w/ taking Milk Thistle and Saw Palmetto Berry, I got them both at Target so they're easily accessible. Alfalfa is supposed to be good too, I don't think I saw much of a difference w/ it though and I took 8000mg a day.
post #6 of 11
I've heard good things about metformin as well. I hope it works for her.
post #7 of 11
MOBI has a lot of good info, and a great yahoo group: http://www.mobimotherhood.org/MM/default.aspx
post #8 of 11
some lactation consultants are hopeless when it comes to low milk supply and seem to believe it is simply a baby problem (ie poor latch, not feeding often enough) and that all moms have enough milk.
with baby #1 i had limited success with fenugreek (it was important for me to get a high enough dose - check www.kellymom.com for dosing info - else it is useless) and domperidone. he was also formula supplemented. i was told i couldn't take metformin again during nursing.
baby #2 i had much better success with metformin and domperidone. i couldn't take fenugreek since it made her super, super gassy to the point of colic.

metformin worked really well with me while nursing - some sources say not to take it together with goat's rue since they are similar and may cause very low blood sugars in mama. dd was exclusively breastfeed with no supplementing except that it took a lot of work, breast compressions, and dedication. she was nursing every 2-3 hours around the clock (even after introducing solids) until she stopped nursing.

some notes of optimism for your mom: breast tissue and milk supply can increase from one baby to the next. it seems to with me. there is also a good book out called "making more milk" and she has quite a section on low milk supply and PCOS. i also have a SIL who had one preemie baby and she found it took quite a while (i believe weeks) for her milk supply to fully develop, even though she has no other health issues. her baby wasn't strong enough to fully drink milk and the pump doesn't fully cut for bringing on the milk supply, kwim? once her baby got older and better able to nurse, things greatly improved.
post #9 of 11
I have PCOS and I don't believe it was an issue at all. I pumped lots of colostrum the day before I went into labor--for the record, I don't suggest doing this--and my breasts grew quite a lot while I was pregnant.

My problem was just very horrible, wrong advice and negativity everywhere I turned because everyone knew beforehand that I had PCOS. it took almost 3 weeks for me to dump all the naysayers, then with the help of fenugreek and (finally) constant nursing, within 1 or 2 weeks, my problem was then oversupply and overactive letdown. I have a friend with PCOS who has the same problem and had an almost identical start.

If the NICU allows it, she should put them to the breast every time they're hungry. A pump can only do so much. Only the babies can communicate their needs with her body, and they need to do it very frequently in the beginning. She can pump after they've had the breast, but this becomes very tiring.
post #10 of 11
Thread Starter 
Good news! Mom's getting more! She was put on Reglan, which appears to be working.

Putting 33 weekers to breast every time is a bit much. But she does skin-to skin 4x a day.
post #11 of 11
I jsut read a post on the MOBI group about Saw Palmetto Berry being good for moms w/ PCOS. I have some of the sx, but no dx so maybe that's why it seems to be really helping me. That's great she's getting more!
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