I don't post here often anymore since all the popup ads make it run so slow, but I'm glad I stopped in today and saw that my old thread got resurrected. I hadn't realized that I did not come back and post an update. We took Bekah to Pediatrics Plus in Houston in July last year. They billed it as regular PT, so we only had to pay our co-pay for each visit. She did really well and was crawling by the end of the first week. We lucked out and got someone who worked well with Bekah. However, we won't be going back to that center because there is only one true PT on staff and everyone that does the therasuit therapy with the kids is just people that she hires off the street and trains. There were a couple of PT students too. Two or three of the girls were really good, but some really didn't know how to work with the kids at all. Those girls were always assigned to the kids whose parents didn't stay (we stayed every day except one.) So, while we were thrilled with the progress Bekah made (and has made since) we will choose another option this summer.
Bekah has made amazing progress since she did the therasuit therapy though. When we took her, the only mobility she had was scooting on her bottom. She began crawling in July, walking with a KidWalk in September and is now walking with a Kaye reverse walker. It has not been steady, upward progress, she has had stops & starts, but we are thrilled with where she is right now.
I will add too that I don't credit Therasuit with all of her progress. We enrolled her at a local therapy center where she does listening therapy, aquatic therapy and other OT work. She goes for 2-3 hours, twice a week. They are really good with her and she loves it. Rarely cries there and she is doing so well.
Sorry to ramble, it is late. Mary, I would love to hear how Devon does.
Mellanie
mom to Ryan 10, Rachel 7 & Bekah 4 with Kabuki Syndrome
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