Quote:
Originally Posted by TanyaLopez 
Momofmine, from another thread (but not wanting to derail it), I wanted to ask.... I hadn't realized y'all had been on SCD for 3 years. How do you feel about it then vs now vs forever vs healing vs what foods we can eventually eat?
Right now, I'm starting to move us paleo-ish (no grain/legume/dairy, not sure on eggs, all the meats and veggies and fruits, for now), and I'm contemplating SCD or GAPS later this year, maybe in the fall. And although I feel like this is the right direction (it's mostly for DH, though I think we'll all benefit), I'm not sure if/how to know when we're done, what expectations to have, how long would something more specific like SCD/GAPS take. So since you've got so much experience with it, I wanted to hear your thoughts.
Thanks!
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Well, this could get long, but, I'll go ahead! It's funny because just yesterday I was reading the GAPS book (I've never actually read the thing straight through) and you came to my mind. For some reason I just thought to myself, Tanya should read this book.
Anyway, I was a vegetarian for several years before I became pregnant with DS1. Ate very high carb. Of course I thought I was eating healthy because I ate all these wonderful whole grains, ha ha. Sometime during my pregnancy I started to crave meat, and so I started eating meat at that point, but only super clean, free-range, abx-free, everything-free meat. But I still ate a lot of carbs and grains.
Then in labor I had one IM shot of abx for GBS. (I was in a birth center, so thankfully no IV abx or anything.) But, I still think it upset the balance of things for DS. I probably already had gut dysbiosis from lots of abx I took as a teen for strep, years of birth control pills, and years of SAD eating. (Although I did have intestinal symptoms, I had other symptoms pointing toward that.) He had some thrush/colic issues. But I swabbed his mouth and my nipples with acidophilus powder for the thrush, and eliminated dairy, and things improved some. However, he was still a higher-need baby and had very erratic sleeping, never slept more than a couple hours at a time, often had to sleep latched on, etc. Then around 9 months he started having loose bowel movements that became looser and looser. It got to the point that it would run out of his diaper and down his leg within seconds. The family doc would say, oh, it's nothing.

: However, the sleep issues continued, and he would wake up screaming, arching his back and stiffening his legs. His symptoms seemed to me to be similar to celiac, though he had never eaten gluten himself yet, and the doctors said "gluten doesn't pass through bm." I actually called Dr. Sears' wife Martha on the phone (she was amazing and so sweet) and she said, oh yes it can, and helped me figure out the whole elimination diet thing. I don't remember in what order I did the elimination diet, but I do remember that I first took out gluten and sugar, and it was an overnight difference. He slept a larger chunk for the first time in his life, stools firmed up a bit, etc. Then after about two weeks, I tried eating gluten again, and it came right back, loose stools, nightwaking, etc.
So, we we did GF for a bit (we were already CF from the time he was an infant) and it helped some but it was not the final answer, and things were getting worse again. So I researched some more and found this person talking about food combining and how it had helped her IBS or IBD of some sort. I emailed her and she said that actually she had found this diet called the Specific Carbohydrate Diet, and that had been the answer to her GI issues. (Now this was only 2000 so the SCD was not that widely popular yet.) She was so helpful, and helped me get started with it, and overnight there was such a huge difference, again, but even more so than when I eliminated just gluten and sugar. I am pretty sure it was like the 2nd night of SCD that he slept through the night for the first time, and he was over a year old. It made a huge, huge difference.
We stayed on the diet fanatically for three years. At that time, I didn't know about all this other stuff, like the detox pathways, etc. We did do constitutional classical homeopathy at the time. That helped also. But we still had some issues, like at one point he was eating a lot of eggs, and developed eczema from eggs, and then from beef, it kept transferring, but those got better after we cut them out for a while, and he was able to eat them again later. He did still have some lingering symptoms, (less formed poops, etc) that would come and go, for which I think probably some of this other stuff we are talking about now could have helped him. But the SCD was definitely HUGELY helpful. And I took him to a ped GI doc and to be tested for allergies, and they never found anything via conventional testing. (Never did anything invasive like a biopsy though.)
When he was four, things were good, and we decided to start putting things back into his diet. At first I stuck to only sprouted grains, etc (during all this time on SCD I learned about NT and TF and WAPF). And eventually he ate a full diet, including cr@ppy cake at birthday parties. But he always had more symptoms after eating stuff like that. After a birthday party was really bad, and I really felt like something was still not quite right. But, at that time I really let myself be swayed by others telling me there was nothing wrong. So, over the course of those years, I would say we ate more TF at home (sprouted grains and so on) but he still ate other foods when out. And slowly those symptoms starting getting more and more frequent. In the meantime, I had DS2, who had perfect stools once he started on solids. Then they both had the abx for strep, and you know the story from here.
The abx did a number on both of their guts, and we tried healing things with just probiotics and doing GF/CF for almost an entire year. I was resisting going back on SCD because DS2 has a peanut allergy, and I was worried about not having nuts. But then things were getting so bad, complete diarrhea, sometimes not even making it to the bathroom, not gaining weight, DS1 had even LOST weight over that year, and so we went back on SCD starting with the intro and going slow right after Christmas.
Since then, DS1 has gained EIGHT pounds (how many more threads can I post THAT news in??) and DS2 has gained about three or four. That was in 2 and 1/2 months.
So I've been on this track for almost ten years now, and I can definitely say that the paleo-way of eating is what makes the most sense to me, and what makes me feel the best (less brain fog, more energy, lose excess weight easily). During my pregnancy with DS2 I ate about 90% or more SCD, but allowed myself to have one or two pieces of sprouted grain Ezekial bread a day, and occasionally some gluten-free grains, like rice. And I ate lots of high quality protein and not a single drop of sugar the entire pregnancy, and took probiotics. And DS2 had perfect poops until the abx, but he did get the peanut allergy thing.
As for the SCD being a healing diet vs a lifetime thing, I don't know, that's hard to say, and may be different for different people. I think that for some, they will have to eat that way for most of their lives, and for some, they may be able to add some foods in later on down the road.
For example, when we did the SCD I didn't know as much about bone broths and fermented veggies, and for a time we did not do dairy, so our only probiotic source was a supp, but he didn't do well with some of those. So, I think that SCD/GAPS combined with other information can really correct those issues and one can return to adding some things back in eventually, as long as you don't return to the SAD and keep up with eating probiotic whole foods, etc. But I think this takes a few years. I believe the GAPS author says a minimum of 2 years on the diet. I think the longer you've had issues, the longer it will take. I think Elaine, the BTVC author for SCD, said that it took about 2 years for her daughter's symptoms to go away, and that they kept her on the diet for 7 more years beyond that, because the whole family felt better eating that way anyway. After that, her daughter continued to eat about 75% SCD, though rice was one of the things she had a hard time after going off the diet. I was on a list with Elaine when she was still alive, and she was so amazing and helpful to so many people. She had so much wisdom to share.

I would say that the SCD is not hard if you are already doing all of that, and you might find that if you just jump in and try it, you might really see a difference. I mean, I would just do it, it can't hurt, and it might be really helpful, and I wouldn't put it off just because you think it might be too hard. Because I think there are lots of ways to make it easier. having done both intros now, I think the GAPS intro is a lot harder. But I just think that incorporating many of the ideas from GAPS into SCD takes it up a level and can be very helpful.
I don't know if I've answered your question or not, it is super late here so I am rambling by now I'm sure!

Feel free tp ask more if I haven't.