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JaneS--salycilates

post #1 of 11
Thread Starter 
Jane, can you share a little about your experience with salycilates, symptoms, how you made the connections, your helaing process, how it's going now, etc. THANK YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
post #2 of 11
Will come back bit pressed for time today.

Most is in the "I Broke My Bladder" thread:
http://www.mothering.com/discussions...d.php?t=967319

Maybe you can read that one and ask questions?

I'm researching sulfur (and therefore MSM) now. Dr. Stanley Jacob has experience treating pollen and chemical sensitivity reactions with MSM and his book mentions Dr. Trent Nichols has experience treating food allergies with MSM.
post #3 of 11
I'll put all the major website links here just to have in this thread:

Royal Prince Alfred Hospital Allergy Unit on Food Interolance and FAILSAFE Elimination Diet
http://www.cs.nsw.gov.au/rpa/allergy...ol/default.cfm

Plant Poisons and Rotten Stuff, FAILSAFE
www.plantpoisonsandrottenstuff.com

Fed Up - Sue Dengate, FAILSAFE
www.fedupwithfoodadditives.info/

Salicylate Sensitivity
http://www.salicylatesensitivity.com/

The Feingold Diet
www.feingold.org

Low PST enzyme means you cannot tolerate salicylates. I'm actually trying to find the PST test now. It's possible my husband will require my son to take one to prove he is intolerant of salicylates. I haven't tried MSM with DS yet. Giving epsom salts has been difficult b/c his skin is too sensitive but he tolerates a high sulfur diet well now.

From Kirkman's Gut Protocol:
www.generationrescue.org/pdf/kirkman.pdf

Quote:
HOW CAN MSM HELP IN AUTISM?
Dr. Rosemary Waring reports that most autistic
children show a deficiency of sulfates in their
plasma. Of the autistic children she tested, 92%
had sulfate levels that were only 12% of normal.
Low sulfates can lead to a leaky gut, as well as a
weakness in the phenolsulfotransferase (PST)
system. A weakness in the PST system is often
characterized by night sweats, red face and ears,
runny nose, bloated stomach and extreme thirst.
MSM adds sulfur to the diet and this sulfur may
be oxidized to sulfates in the body thus aiding the
PST pathway which is important in removing
toxins.

Dr. Jeff Bradstreet, a widely respected Florida
physician specializing in autism, reports good
success using MSM when children sweat excessively
or have abnormal odors. Dr. Bradstreet
believes the MSM is in fact improving the PST
pathway.

There are many reports that suggest MSM may
reduce sensitivity to food allergies. It does not
“cure” the allergy but rather improves tolerance.
Some patients report that if they take MSM
before eating, they have no problem with substances
which previously were allergens. Trent
Nichols M.D., medical director of the Center for
Nutrition and Digestive Disorders (Hanover,
Pennsylvania), reports MSM helpful against food
allergies including his own.
More on Waring and PST
http://www.absoluteastronomy.com/topics/Rosemary_Waring

http://www.enzymestuff.com/epsomsalts.htm
post #4 of 11
Subbing to bask in JaneS' glow. (Seriously, I need to learn more about MSM and salicylates.)
post #5 of 11
Thread Starter 
Thanks Jane, I will be checking out your links very soon!
post #6 of 11
Thread Starter 
Jane, can you share more about your LOs symptoms and how they improved or changed with your new awareness of the salycilate issue? THANKS!
post #7 of 11
Not JaneS, but I'll share our story since my kiddos are sensitive to salicylates. DD reacts to salicylates with bright red cheeks (this reaction is from longer term consumption of too many salicylates, or one meal that's particularly high in salicylates), and wetting (actually flooding) her pants (more of a short term reaction to too many salicylates in a day). I figured she was sensitive to salicylates because after I'd figured out her whole food triggers, she still had eczema and her cheeks would get bright red after eating foods that were higher in salicylates. Turns out the eczema was actually caused by amines, but she was sensitive to salicylates too.

DS is sensitive to salicylates too, and they cause reflux (everything causes reflux for him...maybe if I'm lucky he won't react to foods anymore once he "outgrows" the reflux).

And I am not sensitive to salicylates but am sensitive to other phenols. Things like oil of oregano and nettle infusions cause reflux for me.

I have tried some supplements for increasing salicylate tolerance but I can't really say if they've helped or not. DD tolerates epsom salts fine but DS appears to have problems with sulfur & doesn't tolerate them, or sulfur containing foods either. I personally think that salicylate sensitivity is generally genetic and that our detox pathways for it are never going to allow my kids to consume "normal" amounts of salicylates, but supplementing may allow them to consume higher levels than they otherwise would be able to.
post #8 of 11
thanks for startin ghtis thread, gota check out the links.
post #9 of 11
Quote:
Originally Posted by riomidwife View Post
Jane, can you share more about your LOs symptoms and how they improved or changed with your new awareness of the salycilate issue? THANKS!
I had connected many of these issues already over the last several years to certain foods and eliminated them, but there were still some foods (cucumbers, peppers, berries) remaining that caused low level or every once in a while problems that were hard to connect to the cause. Now that the salicylates are all gone the symptoms are all gone.

-skin is absolutely perfect not a bump or dry skin anywhere nevermind an eczema rash.
-sleeping regularly 11 hrs or more/night which he has NEVER done in his life.
-behavioral issues, argumentative, yelling, meltdowns disappeared.
-yawning during day, not having energy in afternoon, overtired cranky argumentative mess at bedtime gone.
-not leaking urine during day, in past with more salicylates in his diet he would have accidents where he'd just completely let go and pee all over floor too.

He was always a really good kid, most especially in public and in school. And I understand 5 year olds just naturally have have behavioral issues but I cannot tell you difference now! He is even more of a joy! This is the kind of stuff only a mother that is with him every day would recognize a change in. Although my good friend has commented too. DS is just so much more easy going now, which he's NEVER been since those horrible days of newborn colic! Which has also been mentioned as a salicylate intolerance btw.

I have read the Feingold stuff and I can clearly see that if DS were eating conventionally he would be ADD or ADHD. We have had days from hell in the past and it was all b/c of food (such as a day with tomatoes and berries and cucumbers).

And supposedly the fruits and veggies are not as strong at the salicylates in artificial colors, flavors (vanillin) and preservatives (BHA, BHT, TBHQ). DS has been on a whole foods diet his entire life so we never really tested these things much. He had a cupcake containing blue food coloring and probably preservatives that his father gave him... and reacted severely: he couldn't calm down and sleep when he was clearly tired, he was hitting and yelling and hyperactive, like a different child. He had a breathing treatment in the doctor's office I think it was Albuterol? that was blue in color and became totally jacked up.

Feingold/FAILSAFE have also connected eye muscle disorders (lazy eye), poor muscle tone/coordination, irritable bladder, IBS, reflux, tics and Tourette's and seizures in addition to autism/ADD/ADHD and ODD oppositional defiant disorder to salicylate intolerance. I personally have had my IC (interstitial cystitis) flare due to overdosing on salicylates and believe that was a central issue for me.

Right now STBXH still doesn't want to believe DS is intolerant to salicylates so we will be challenging during April vacation, I'll let you know what happens! :
post #10 of 11
Incidentally, on this 10th anniversary of Columbine, I should also mention that violent behavior in teens is thought also be connected to salicylate intolerance (esp. the top food additives artificial colors, flavors and preservatives). It's chilling to think about.
post #11 of 11
Quote:
Originally Posted by JaneS View Post
Right now STBXH still doesn't want to believe DS is intolerant to salicylates so we will be challenging during April vacation, I'll let you know what happens! :

I'm sorry, Jane.
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