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How do you handle bday parties and food allergies?

post #1 of 18
Thread Starter 
We are milk/soy/corn/egg free, and for my dds bday parties of her own we made vegan/soy free cupcakes and had ricemik ice cream. We served fruits and veggies and potato chips and hummus.....but most of the bday parties we are going to are (obviously) not like that. So what do you do? What do you let your LOs have instead of bday cake? Do you bring your own snacks too? Do you LOs ever feel left out? What about a bday at chuck E cheese? Or other fast food place?

I want dd to feel as normal as possible, but i dont know weather we should just decline the invitations, or go and bring our own things....is that rude?
post #2 of 18
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post #3 of 18
I always RSVP to birthday invites to feel out how they would be with me bringing stuff for us. If they say no go, then we do just that: don't go. :
The only Chuck E Cheese party we were invited to occurred before dx, so it wasn't an issue but we've been invited to pizza parlors and brought our own "safe" pizza with no problem from the staff (Of course, ds1 is allergic to dairy, wheat and eggs, so there is seriously NOTHING on most pizza parlor menus which he can safely eat.)
post #4 of 18
Quote:
Originally Posted by tinyblackdot View Post
We are milk/soy/corn/egg free, and for my dds bday parties of her own we made vegan/soy free cupcakes and had ricemik ice cream. We served fruits and veggies and potato chips and hummus.....but most of the bday parties we are going to are (obviously) not like that. So what do you do? What do you let your LOs have instead of bday cake? Do you bring your own snacks too? Do you LOs ever feel left out? What about a bday at chuck E cheese? Or other fast food place?

I want dd to feel as normal as possible, but i dont know weather we should just decline the invitations, or go and bring our own things....is that rude?
DS is six and we have always brought his food and cupcake to all parties.

Why would it be rude to keep him from having an allergic reaction? I would think the need to inject him with an Epi-pen and call 911 would be a major distraction during the birthday party.

Of course he feels "different" but never left out. He always has a fabulous SAFE substitute for whatever is being served.

We've never been invited to a bday party at a fast food place or chuck e cheese. As a toddler I think we would have had to decline but now at age six I think he could handle keeping his hands out of his mouth and frequent hand washing to stay safe.

We developed a new "normal" when DS was diagnosed with food allergies.
post #5 of 18
Usually I ask if we can bring something. I haven't had anyone say no. We did leave the last party before they did ice cream and cake right at the end.
post #6 of 18
Thread Starter 
Quote:
Originally Posted by JacquelineR View Post
I always RSVP to birthday invites to feel out how they would be with me bringing stuff for us. If they say no go, then we do just that: don't go. :
The only Chuck E Cheese party we were invited to occurred before dx, so it wasn't an issue but we've been invited to pizza parlors and brought our own "safe" pizza with no problem from the staff (Of course, ds1 is allergic to dairy, wheat and eggs, so there is seriously NOTHING on most pizza parlor menus which he can safely eat.)
Does he ever feel embarrassed about it? Or is it no big deal to him?

I get so nervous about the thought of dd being the "weird" kid you know? We already have to make her feel secure because of all of her birthmarks, and then ontop of that she is not going to be able to eat anything at bady parties or sleepovers.
post #7 of 18
Thread Starter 
Quote:
Originally Posted by Proud2BeAnAmerican View Post

Why would it be rude to keep him from having an allergic reaction? I would think the need to inject him with an Epi-pen and call 911 would be a major distraction during the birthday party.
I wish it was that cut and dry. It seems that some people think that i am being over protective, and making it all up. And they are trying to give my lo snacks and treats all the while i am saying "um...she cant have that" and they just roll their eyes. For some reason they interpret me looking out for my dd's health as me thinking im better than everyone else. Then they will say oh its just a turkey sandwich, and i have to explain to them that most lunch meats have whey, aswell as most bread has milk and or soy...and they are offended. Like im saying their stuff isnt good enough for my kid or something. I dont know.

You do make a valid point.
post #8 of 18
Quote:
Originally Posted by tinyblackdot View Post
Does he ever feel embarrassed about it? Or is it no big deal to him?

I get so nervous about the thought of dd being the "weird" kid you know? We already have to make her feel secure because of all of her birthmarks, and then ontop of that she is not going to be able to eat anything at bady parties or sleepovers.
I don't know how old your child is but have you seen the book "Alexander Goes to a Birthday Party" ? Alexander is an elephant with food allergies and brings his own food to a party (along with his medications). It is available from FAAN http://www.foodallergy.org and most likely on Amazon too.
post #9 of 18
Thread Starter 
Quote:
Originally Posted by Proud2BeAnAmerican View Post
I don't know how old your child is but have you seen the book "Alexander Goes to a Birthday Party" ? Alexander is an elephant with food allergies and brings his own food to a party (along with his medications). It is available from FAAN http://www.foodallergy.org and most likely on Amazon too.
Oh super cool! thanks soooooo much!!!!
post #10 of 18
Quote:
Originally Posted by tinyblackdot View Post
I wish it was that cut and dry. It seems that some people think that i am being over protective, and making it all up. And they are trying to give my lo snacks and treats all the while i am saying "um...she cant have that" and they just roll their eyes. For some reason they interpret me looking out for my dd's health as me thinking im better than everyone else. Then they will say oh its just a turkey sandwich, and i have to explain to them that most lunch meats have whey, aswell as most bread has milk and or soy...and they are offended. Like im saying their stuff isnt good enough for my kid or something. I dont know.

You do make a valid point.
You make it cut and dry.

Their stuff isn't "good enough" for you kid if it means your child will have a reaction.

I know it is hard to be different. We've been dealing with this for five years now. I found the easiest way to deal with those who doubt is to grow a backbone. Truly. I'm very shy but for the sake of my son's health I've had to stand up to those who don't understand. Sometimes it is as simple as just saying, "No thank you" or as straight forward as "Do not feed my child anything! He could have a serious reaction!". You'll figure it out. I promise
post #11 of 18
Quote:
Originally Posted by tinyblackdot View Post
Does he ever feel embarrassed about it? Or is it no big deal to him?

I get so nervous about the thought of dd being the "weird" kid you know? We already have to make her feel secure because of all of her birthmarks, and then ontop of that she is not going to be able to eat anything at bady parties or sleepovers.
He doesn't, no but we've been doing this for years since ds1 couldn't have food coloring even prior to our gluten/dairy/egg discovery. I think it helps that we're just matter of fact about it if someone asks... "Why does he have different stuff?" "He is allergic to the stuff you're eating. It will make him sick."
We've had a couple of kids say it was "weird" that he couldn't eat what they do but their parents usually step in and say "Well, it's probably weird to him that you can't <whatever> too."
post #12 of 18
Quote:
Originally Posted by Proud2BeAnAmerican View Post
You make it cut and dry.

Their stuff isn't "good enough" for you kid if it means your child will have a reaction.

I know it is hard to be different. We've been dealing with this for five years now. I found the easiest way to deal with those who doubt is to grow a backbone. Truly. I'm very shy but for the sake of my son's health I've had to stand up to those who don't understand. Sometimes it is as simple as just saying, "No thank you" or as straight forward as "Do not feed my child anything! He could have a serious reaction!". You'll figure it out. I promise
Yep, pretty much.
I'm a total rug in most areas but I will not tolerate people feeding my child food that will make him ill.
post #13 of 18
Quote:
Originally Posted by tinyblackdot View Post
Does he ever feel embarrassed about it? Or is it no big deal to him?

I get so nervous about the thought of dd being the "weird" kid you know? We already have to make her feel secure because of all of her birthmarks, and then ontop of that she is not going to be able to eat anything at bady parties or sleepovers.
Good advice so far, but did want to throw in something else.

It's all about how you see what a party is. Sure, there's food and cake at a party, but that's not all a party is. Birthday parties are about celebrating someone's birthday and all the other hoopla. So, don't get hung up on one small part of it so that your dc doesn't get hung up on it, IYKWIM.

Because ds has anaphylactic nut allergies, I used to only request that they *not* put bowls of nuts out when he was younger. But then again, most people laughed and said they wouldn't do that anyway because of the choking issue with small kids. For the most part, I've found that many people had experience with, or knew someone with severe food allergies, so they were very accommodating in helping me. Not always the case, though. I typically bring a safe cupcake for ds, (I try to find out how the b-day cake will be decorated, and color the icing to match.) and monitor everything else when I arrive. I told him that unless I said it was ok, to not eat *anything* which included anything in goody bags, too. Thankfully, he's now at the age where he is taking responsibility for refusing questionable food. And I've also fed him before parties so that he doesn't have to eat while there.

And yes, he knows that this is "different," but he also wants to be there for the birthday celebration because, as I mentioned before, there's so much more to a b-day party than the food!
post #14 of 18
Quote:
Originally Posted by JacquelineR View Post
We've had a couple of kids say it was "weird" that he couldn't eat what they do but their parents usually step in and say "Well, it's probably weird to him that you can't <whatever> too."
I'm sure that I've missed some of the "weird" comments, but I've also seen his friends grill the parents on, "Does this have nuts? (my ds) can't have nuts. We should check the label to be safe."
post #15 of 18
Thread Starter 
Quote:
Originally Posted by LauraLoo View Post
I'm sure that I've missed some of the "weird" comments, but I've also seen his friends grill the parents on, "Does this have nuts? (my ds) can't have nuts. We should check the label to be safe."
Wow! Your friends are much nicer than mine.

Thanks for the pp, i think your right, i need to concentrate on going there to let my dd help celebrate, and not worry so much about the technicalities. Thanks!
post #16 of 18
DS is 8yo. He brings his own lunch to school and he has a safe snack in case of birthday parties at school. In his class there's one kid with a tree nut allergy, one kid with a peanut allergy, one kid with a strawberry allergy, and him (no gluten, dairy, eggs, soy, chicken, apple, orange, tuna, almonds, and lots more).

Last night the father of one of the kids in his class called and asked if Simon could come over this weekend. I said sure and asked when. He said 11 o'clock and they could feed him lunch. I said, "it's easier if I feed him lunch first and then bring him over." And he said that his son told him that Simon had a lot of allergies and that he liked meatballs (since most sauce has citric acid in it and who knows what else they put in their meatballs, it's still not happening). I said I'd send him with snacks. His best friend's mother makes food for him. And she has all the safe lists from me. She's vacationed with us and knows the drill. For birthday parties here, I try to do something that is versatile (like tacos, where you can do wheat or corn tortillas, some people can do cheese and sour cream, etc.). A few weeks ago he went to a birthday party at a laser tag place. I sent along lunch and a cupcake (they were having pizza). When basketball season ended, the coach gave each kid a goodie bag (his had a nerf ball, stickers, and $2 and the coach said that was because he couldn't have the candy he was giving to the other kids! Simon thought that was GREAT!) and then took them out for pizza at a local place (again, he brought his own lunch). It doesn't keep him from being social or from being invited places. He's very good about it and knows what he can and cannot eat.

DD2 is only 4 so she's not being invited to birthday parties yet (thankfully). But when we go to family ones, I'll bring cupcakes for them both, or So Delicious coconut milk ice cream for her, or whatever. And our food. My family is pretty good. We do family dinners once a month, and it's always safe for us (my brother and SIL are very good about it, previewing recipes with me). At nursery school, they rotate snack among the parents. I see what's on the list for that day, and say whether she can have it or not on the sign-in sheet, and on days that it's my turn, she gets to share her kind of food with everyone.

When we go anywhere like a mall or amusement park, DD2 wears a Velcro ID bracelet that has my name and cell phone on it, and in huge letters it says "DO NOT FEED ME -- ALLERGIES" (that should scare the kidnappers away since I don't say what food).

Sometimes my 8yo will say "it's not fair" about how he can't have the ice cream at the ice cream social that day. And I say, "I know it's hard, but I can't either." And then I'll say, "it's not fair that daddy can never have a cat" (they cause asthma). "It's not fair that (your friends) Noah and Riley have diabetes." "It's not fair that Uncle LG only has one leg." Everybody has something unfair, that's just the way the world is. And he gets it. DD2 has only known a life with a restricted diet. She doesn't know anything else. So for her it actually seems easier.
post #17 of 18
What struck home with my son is when Binky on Arthur developed a peanut allergy. One of my sons classmate has an airborne peanut allergy and once he saw the epsode he is always reminding what he can/can't bring to school. At his last party he insisted that we order pizza from the one place she can have it. I think kids are are more open/understanding than parents tho.

I like the point a PP said, I think it is key to emphasise that a prty is not all about the cake icecream. I wouldn't want my son or his friends to miss a party because of the food.

My son does travel with an epi-pen (not food related) and so far noone has thought he was weird but I have had parents be uncomfortable having over for a playdate until I educated them. Once they understood everything at lest seemed fine!
post #18 of 18
Quote:
Originally Posted by tinyblackdot View Post
Thanks for the pp, i think your right, i need to concentrate on going there to let my dd help celebrate, and not worry so much about the technicalities. Thanks!
I think the key is to control as much as you can ahead of time, and make sure that you are comfortable so that you and your dd can enjoy yourselves so you can really celebrate. There's nothing worse than being a wreck at a party! And truly, I know that my ds is very sensitive to my anxiety levels, so I try to keep things upfront and manageable -- "You have allergies, we don't always know what's in the food that other people make, so don't eat anything that I haven't checked out and told you that it's safe. I'll bring (or send) snacks, just in case. And we're going to have a lot of fun!"
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