A friend of mine is due with her first baby in early July. She found out recently that her baby has a very rare heart condition that will require him to have open heart surgery when he is 3 days old, again at 6 mos, and again at 2 years. She has been told by her doctors that his chances for survival are very slim. She is obviously very distraught and is torn between trying to be hopeful and joyous about the birth of her child to preparing herself for losing him. I just wanted to know if anyone had an experience similar to this and if so, would you be willing to talk to my friend about how you got through it?
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4/16/02 at 2:35pm