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Chat Thread: March 28 - April 3 - Page 17

post #321 of 397
Quote:
Originally Posted by whoMe View Post
IHere's another test: (feel free to brush me off, I'm just really curious since this was one of the base assumptions of all this stuff) Open your mouth all the way and then touch the tip of your tongue to the roof of your mouth. It should be able to touch.
Wow. Wow wow wow. My tongue misses my a mile. DH says his barely touches. I also have a really weird looking underside of my tongue compared to him. It's like a fin or something. It's anchored almost directly behind my bottom teeth (no "V" for me though - just both of my LOs). I will have to see the girls tongues when the wake up.

Quote:
Originally Posted by changingseasons View Post
Your comment about the B vits made me curious... when I started my B-complex, I swear that DD's pee got a little brighter yellow too. But then I thought no.... it must be in my head. But if BM reflects what I'm taking, and not my stores, then that would be totally possible, no?
I saw it reflected in Aev's pee for sure when I started a B supp.

Quote:
Originally Posted by changingseasons View Post
Well, damn. I just got off the phone with Azure, and their buckwheat groats are NOT gluten free.
Well, shit. That sucks. Can you get a refund? Or is that weird? Our BW flour in the bulk bins at my co-op were constantly getting x-con'd. It took me three bouts of diarrhea in three weeks to make the connection.

Okay, Lily is unofficially officially weaned. She hasn't nursed since a week ago Tuesday or Wednesday. She claims she hasn't weaned yet and when asked claims she might do it "later this afternoon" and then doesn't. *sniff* After almost 4yrs, it's so anticlimactic. I can't remember our official last nursing, (as of now, remember she claims she's not done ) but I new it was coming soon so I tried to make all of them "worthy" of memory.
post #322 of 397
Quote:
Originally Posted by menomena View Post
Wow. Wow wow wow. My tongue misses my a mile. DH says his barely touches. I also have a really weird looking underside of my tongue compared to him. It's like a fin or something. It's anchored almost directly behind my bottom teeth (no "V" for me though - just both of my LOs). I will have to see the girls tongues when the wake up.



I saw it reflected in Aev's pee for sure when I started a B supp.



Well, shit. That sucks. Can you get a refund? Or is that weird? Our BW flour in the bulk bins at my co-op were constantly getting x-con'd. It took me three bouts of diarrhea in three weeks to make the connection.

Okay, Lily is unofficially officially weaned. She hasn't nursed since a week ago Tuesday or Wednesday. She claims she hasn't weaned yet and when asked claims she might do it "later this afternoon" and then doesn't. *sniff* After almost 4yrs, it's so anticlimactic. I can't remember our official last nursing, (as of now, remember she claims she's not done ) but I new it was coming soon so I tried to make all of them "worthy" of memory.
Awww- what a big girl. :

Sounds like you have a tongue tie to me!

Yeah, it does suck about the buckwheat... especially since I just got a new bag last week. One of my HFS has the bulk groats on the upper row of bins (to avoid xcon) and it's actually marked GF, but the other HFS isn't marked GF... But I used to get them from both pretty regularly, and never noticed a problem. Maybe I will try the one marked GF first.

Thanks for that link JR. I actually remember seeing that brand in my HFS- the cereal, not the groats. But that would probably work for a trial too!
post #323 of 397
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?

I am only up to page ten of this thread...will try to catch up more tomorrow. ((HUGS)) to all.
post #324 of 397

for chlobo, S boulardii info

Hi chloo, you've probably already heard back from your doctor about the S boulardii by now, but I just read this on the GI Pro website, and it says to take it with meals, but don't add it to anything hot.
post #325 of 397
Quote:
Originally Posted by New Mama View Post
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?

I am only up to page ten of this thread...will try to catch up more tomorrow. ((HUGS)) to all.
Well, I skim most of my fat, although the ladies in the TF forum would probably have a heart attack if they heard that. But, in my defense, I have started saving the fat to use in cooking. I do leave just a little fat in the broth just for some flavor.

I think you don't want it in the fridge for more than a few days, maybe a week tops. I freeze mine in ice cube trays and then just pull out a few cubes whenever I need to use some.
post #326 of 397
Quote:
Originally Posted by New Mama View Post
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?

I am only up to page ten of this thread...will try to catch up more tomorrow. ((HUGS)) to all.
You can scrape the fat off and save it and use it for cooking or anytime you need a fat like butter or oil, to saute veggies, cook eggs, anything. I have been thinking about trying to make mayo with my chicken fat from the broth.

Or, you can leave it and include it when you reheat it and eat it that way to get the good fat. As long as you are using meat from a good source. I want that good fat. If you were using conventional meat, I would say discard the fat because that is where toxins, pesticides, etc, would be stored.
post #327 of 397
Quote:
Originally Posted by WuWei View Post
Cashews are high in copper. But, I'm a bit confused who has what nowadays.


Pat
No, you're right. I can't have it but I posted b/c someone else might be able to.
post #328 of 397
Quote:
Originally Posted by changingseasons View Post
One of my HFS has the bulk groats on the upper row of bins (to avoid xcon) and it's actually marked GF, but the other HFS isn't marked GF... But I used to get them from both pretty regularly, and never noticed a problem. Maybe I will try the one marked GF first.
One of my best friends used to work at a HFS with the bins, and she has a lot of stories, despite it being a clean store, there are just "issues" with that system of storage. I'll just say that I buy nothing from bulk bins....
post #329 of 397
Quote:
Originally Posted by momofmine View Post
Hi chloo, you've probably already heard back from your doctor about the S boulardii by now, but I just read this on the GI Pro website, and it says to take it with meals, but don't add it to anything hot.
I haven't heard back yet actually. I also haven't gotten the S. boulardii yet. Thanks for the information.
post #330 of 397
Quote:
Originally Posted by New Mama View Post
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?
There's been a bunch of talk on this in the local WAPF lists - some people are concerned about the fat going rancid after all that cooking. I think the consensus was to taste it before using it, and if it tastes rancid or bitter at all, toss it.
post #331 of 397
Quote:
Originally Posted by ellasmama2007 View Post
that sounds so yummy, i want one!! with fermented lemons!

im sorry that your dd2 fell too, it really sucks. ella would occasionally grab her head today and i felt so badly. her poor little nose... i just feel horribly when she hurts herself, like i should have prevented it somehow.
Thanks for reminding me about those fermented lemons! I gotta try that!

I feel the exact same way anytime that happens to one of my kids, I think, oh, I should have been standing closer, paying more attention, etc, etc...

Quote:
Originally Posted by TanyaLopez View Post
whoMe, the thing about starting biotin (or anything that kills candida)
So biotin kills candida? And should we take something with it to mop up the toxins, as PB would say? Like C or clay?


Quote:
Originally Posted by whoMe View Post
If the cradle cap is caused by biotin deficiency, then biotin will help it I think that's a common cause Biotin definitely made dd's better (and got rid of her ear crusties!!!!!) but now it's getting worse again, despite increased dosage




Weird. PB says the inward v is usually a sign of a tie. And dd and I are the only ones I know who can flip our tongues over. I've been wondering if it's a tie issue - since it's anchored at the bottom, the muscles can do weird things? Here's another test: (feel free to brush me off, I'm just really curious since this was one of the base assumptions of all this stuff) Open your mouth all the way and then touch the tip of your tongue to the roof of your mouth. It should be able to touch. And here's more in depth discussion.
So why do you think her cradle cap is coming back despite upping the biotin, if it's what made it go away in the first place? Can you build up a tolerance to it? Could there be something now that is preventing her from absorbing it? Or is it possible the favorable result was attributable to something else and not the biotin to begin with?

My first had tons of this cradle cap, on into age 4 and 5, and he was the one with the worse digestive issues! Then DS2 didn't have cradle cap at all...until this past year!!!!! With the crappy abx he had that screwed things up! Wow, I never put that together until just now. But he seriously never had it, until this last year, and he's 4 already. Wow. Looks like we're gonna start biotin real soon.


And about the tongue tie, if I open my mouth a normal wide, I can touch. If I open super wide, as wide as possible, I can't touch. And DS2 has the inward v on the bottom.



Quote:
Originally Posted by kjbrown92 View Post
Mine was e. coli and the D Mannose didn't work....
I'm sorry that didn't work for you Kathy. She did say that for it to work, it's best to start right away with that higher and frequent dosing. And that sometimes if it has gotten too far established, it might not work.
post #332 of 397
Quote:
Originally Posted by changingseasons View Post
Sounds like you have a tongue tie to me!
ooooh! maybe this is why I canNOT roll my Rs to save my soul. I just can.not.do.it.

Quote:
Originally Posted by momofmine View Post
One of my best friends used to work at a HFS with the bins, and she has a lot of stories, despite it being a clean store, there are just "issues" with that system of storage. I'll just say that I buy nothing from bulk bins....
yeah... now that we're dried-fruit, grain-, & legume-free, the only stuff I buy from bulk bins are sea salt and succanat. so, la la la i can't "hear" you.
post #333 of 397
Quote:
Originally Posted by whoMe View Post
could you at least get him to supp with folapro instead of folic acid?
I was just talking to dh about this tonight. If you have a link to any "science" data, that will help him. My brain is shot and I'm heading to bed. I wondered about the "folinic acid"? But, the folate/folic acid/etc stuff is all STILL rattling around in my brain. Life is not normal here and I'm not eating properly and getting the ketosis brain fog from not enough calories, etc.

Going to sleep, take my remedy in the morning, and make my green juice. After I do the dishes tonight.

Pat
post #334 of 397
Quote:
Originally Posted by waluso View Post
Quick OT question for WhoMe (or anyone else with MTHFR knowledge) ... I tested positive for 677 and 1298 mutations (don't remember exact terminology). My sister is 25 weeks pregnant and having major issues. She is 60% effaced, funneling, 1 cm dilated, bleeding, placenta issues, low amniotic fluid. If she also has the MTHFR mutations (which I understand is hereditary), could it be causing her issues? Her dr is an idiot and has been blowing her off for the past few weeks. Luckily he's now sending her to a specialist but I am really worried.
Hugs to your sister waluso. I hope she can get some good info. Maybe she can see an alternative HCP soon?

Quote:
Originally Posted by WuWei View Post
I have no idea. I'm learning along the way. I expect that he is blocking folate with the folic acid supplementation. Dh has had no genetic testing. I'm starting to read Dr. Amy Y's site to try to understand more. Not sure the cardiologist knows about folate vs. folic acid...

I intend to provide the research studies to the cardiologist, lol.


Pat
You go Pat! We need to educate these doctors. SO, for some people, taking folic acid is bad, but folate is good for anyone, even those who have odd mutations, is that right?


Quote:
Originally Posted by menomena View Post
yeah... now that we're dried-fruit, grain-, & legume-free, the only stuff I buy from bulk bins are sea salt and succanat. so, la la la i can't "hear" you.
: That's why I added no details!
post #335 of 397
Quote:
Originally Posted by chlobo View Post
Kathy, what's your chickpea recipe?
Chickpeas + curry powder to taste. We're not very high tech over here (when I was doing it just for me, I was sauteing onions, peppers, and carrots until soft, then adding the chickpeas and the curry powder, but DS just likes straight chickpeas and curry powder.

Quote:
Originally Posted by WuWei View Post
Consuming foods rich in sulphur-containing amino acids can help boost glutathione levels. Here are some food sources and dietary supplements that help boost glutathione levels naturally.
Milk thistle, asparagus, whey protein, Indian curry spice, curcumin (turmeric), Brazil nuts.
http://ezinearticles.com/?Food-Sourc...urally&id=1177

Curcumin (Turmeric) Treatment of brain cells called astrocytes, with the Indian curry spice, curcumin (turmeric) has been found to increase expression of the glutathione S-transferase and protect neurons exposed to oxidant stress.
The AntiInflammatory that I'm taking from Pure Encapsulations is all turmeric, and I've been wanting a lot of curry lately too. Along with the eggs. So I guess my body is definitely wanting more sulfur for some reason.

Quote:
Originally Posted by changingseasons View Post
Well, damn. I just got off the phone with Azure, and their buckwheat groats are NOT gluten free. I was expecting an "I'm not sure" or "it's possible," but instead I got a definite NO- they are not gluten free, they are processed with gluten products. So maybe that is the problem. Of course for my experiment I'm going to have to find some that really are gluten free... is Bob's the only one that has certified GF groats?
I don't get the groats, just the flour (Bouchard Family Farm) and the buckwheat cereal (Bob's Red Mill). And both say that they're gluten free.

Quote:
Originally Posted by New Mama View Post
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?
The fat is what gives it all the flavor. Mine only keeps for a couple days in the fridge because I drink it in a mug (heated) when it's in there. The rest I freeze, and thaw as necessary for cooking. I do mine in the crockpot too, and I don't scrape off anything. My kids (and me) need as much fat as possible. And I always thought that's where the good stuff was.

Quote:
Originally Posted by momofmine View Post
Hi chloo, you've probably already heard back from your doctor about the S boulardii by now, but I just read this on the GI Pro website, and it says to take it with meals, but don't add it to anything hot.
I think that's where I got the safe S. boulardii. I'll have to order some more of it from there.

Quote:
Originally Posted by momofmine View Post
I'm sorry that didn't work for you Kathy. She did say that for it to work, it's best to start right away with that higher and frequent dosing. And that sometimes if it has gotten too far established, it might not work.
I think I'm just a problem child.

DS went to the osteopath today. He did muscle testing and gave him two new supplements to help his intestines to heal, so we'll see how it goes.
post #336 of 397
Quote:
Originally Posted by momofmine View Post
So why do you think her cradle cap is coming back despite upping the biotin, if it's what made it go away in the first place? Can you build up a tolerance to it? Could there be something now that is preventing her from absorbing it? Or is it possible the favorable result was attributable to something else and not the biotin to begin with?
Honestly? I have no idea. I was thinking maybe better adrenal support (making more coA) needing more biotin to help that? But I really don't know. It's in a different spot from where it was before, but I don't know if that's a clue or not
Quote:
Originally Posted by WuWei View Post
I was just talking to dh about this tonight. If you have a link to any "science" data, that will help him. My brain is shot and I'm heading to bed. I wondered about the "folinic acid"? But, the folate/folic acid/etc stuff is all STILL rattling around in my brain. Life is not normal here and I'm not eating properly and getting the ketosis brain fog from not enough calories, etc.

I'll see what I can find. How about all your cancer stuff?
Quote:
Originally Posted by momofmine View Post
You go Pat! We need to educate these doctors. SO, for some people, taking folic acid is bad, but folate is good for anyone, even those who have odd mutations, is that right?
That's my understanding, yeah.
post #337 of 397
Thread Starter 
Quick question about tongue ties--when babies/young kids cry, are their tongues supposed to go up? Anyone have a picture where this happens? I'm trying to visualize it and I'm having a hard time (and I think my son may be a poor example of this).

And I asked my husband to see if his tongue could touch the roof of his mouth--it can (just barely)! Yikes, that looks bizarre (and yet he does seem to have a high, arched palate, so I'm guessing he's sort of in a middle situation). Probably cause I had no idea a person could do that (like the stuff they do in cirque de soleil, it just looks unnatural, yet it looks like I am the unnatural one instead).
post #338 of 397
Thread Starter 
Quote:
Originally Posted by momofmine View Post
So biotin kills candida? And should we take something with it to mop up the toxins, as PB would say? Like C or clay?
It may be better to say it starves out the candida, PB described it once (and I knew of biotin from ASD circles as an anti-candida supp) and it sounded more like starving out than directly attacking. But yeah, especially for nursing moms (or if you're giving it to a kiddo), I think starting with detox support is important (pathways for excretion) and then adding in stuff like this.

I don't know how definitive the upper end of dosing is. PB's mention of about 7-8mg for a child and 15 or 16mg for an adult was higher than I'd heard before, but I'm new to using it myself, so I'm not that familiar with it. And I could see that when I added it in for my daughter (and I tapered up, starting with maybe 1mg per day and only going up to 4mg/day) I could see that her vitC need jumped (not a huge jump, but maybe 4-6 grams/day).
post #339 of 397
Quote:
Originally Posted by TanyaLopez View Post
Quick question about tongue ties--when babies/young kids cry, are their tongues supposed to go up? Anyone have a picture where this happens? I'm trying to visualize it and I'm having a hard time (and I think my son may be a poor example of this).
Yeah, it's supposed to go up.
I don't know about kids crying, but this presentation has lots of pictures of ties

eta: I just read the notes under the link - there's some interesting stuff there, including more tests!
post #340 of 397
Quote:
Originally Posted by whoMe View Post
MTHFR mutations/high homocysteine can cause infertility/miscarriage. My understanding is that it's little blood clots creating issues for baby. I don't know how that plays into her exact symptoms, but chances are good that given YOUR genetics, lots of folate/B12 will be good for her. The mainstream advice with MTHFR and infertility is to take baby aspirin - that inhibits the methyl cycle so that you're not creating as much homocysteine. Definitely not a good thing to do long term, in light of all the detox stuff, but it might be a helpful quick fix in the short term?
Thanks Shannon! I've been doing a bit of research and it's really scary. One site said 21% of women with this mutation have a pregnancy loss. And there is an increased risk of down syndrome and other issues. Makes me very nervous for my sister (and for my next pregnancy). Is it really so simple as adding folate/B12?

Quote:
Originally Posted by chlobo View Post
So I just came across almondlicious ice cream. Almond/cashew based ice cream. Dying to try.
Where did you see this? I would love to be able to eat ice cream (and I can't have coconut)!

Quote:
Originally Posted by changingseasons View Post
Well, damn. I just got off the phone with Azure, and their buckwheat groats are NOT gluten free. I was expecting an "I'm not sure" or "it's possible," but instead I got a definite NO- they are not gluten free, they are processed with gluten products. So maybe that is the problem. Of course for my experiment I'm going to have to find some that really are gluten free... is Bob's the only one that has certified GF groats?
I'm so sorry CS. That just sucks. I can't have buckwheat either, I wonder if it is because of the gluten xcon.

Quote:
Originally Posted by menomena View Post
Okay, Lily is unofficially officially weaned. She hasn't nursed since a week ago Tuesday or Wednesday. She claims she hasn't weaned yet and when asked claims she might do it "later this afternoon" and then doesn't. *sniff* After almost 4yrs, it's so anticlimactic. I can't remember our official last nursing, (as of now, remember she claims she's not done ) but I new it was coming soon so I tried to make all of them "worthy" of memory.
It must be so bittersweet to reach this point!

Quote:
Originally Posted by New Mama View Post
Bone broth questions -- Should I scrape off the layer of fat that forms after I refrigerate the broth (I use the crock-pot method and don't do any skimming, if that makes any difference)? Also, how long does it keep in the fridge?
I don't skim the fat off. And I keep my broth in the fridge for a week or so (as long as it smells ok I use it). There was a discussion about this a few months ago in the TF forum and some said the fat layer can actually preserve the broth and help it last longer. And most I believe said they keep it 1-2 weeks in the fridge.

Quote:
Originally Posted by momofmine View Post
One of my best friends used to work at a HFS with the bins, and she has a lot of stories, despite it being a clean store, there are just "issues" with that system of storage. I'll just say that I buy nothing from bulk bins....
I've been putting my hand in the sand over this but need to stop ignoring it. No more bins for me!

Quote:
Originally Posted by menomena View Post
ooooh! maybe this is why I canNOT roll my Rs to save my soul. I just can.not.do.it.
I cannot roll my Rs either, and I can't reach the roof of my mouth with my tongue.

Quote:
Originally Posted by kjbrown92 View Post
Chickpeas + curry powder to taste. We're not very high tech over here (when I was doing it just for me, I was sauteing onions, peppers, and carrots until soft, then adding the chickpeas and the curry powder, but DS just likes straight chickpeas and curry powder.
This sounds awesome! I used to make a great curried chickpea recipe. It's called "Chole of the Gods" and you can search for the recipe. Very spicy and very good! Someday hopefully I can eat it again.

Quote:
Originally Posted by momofmine View Post
Hugs to your sister waluso. I hope she can get some good info. Maybe she can see an alternative HCP soon?
Thanks, unfortunately she is not alternative-minded and listens to her mainstream docs. And she has very limited resources and her insurance is not great. She is just hoping it's not a big deal. I am just so worried that she will lose her baby.
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