Vax'ing a neutropenic child

[guestmama9920]

my DD who is 7.5 months old we've been told has SCN http://www.ich.ucl.ac.uk/gosh_famili..._families.html

Her last neutrophil count was .06 which is very very low. What this means is a simple bacterial infection could kill her.

We're waiting on an antibody test which should be back in 1.5 weeks, if this is negative she will need a bone marrow biopsy.

She has never been sick, she is EBF and she also sleeps so much it's hard to go out for long so less exposure to germs

they got the immune panel back and 2 bits were low, what they mean exactly I'm still not sure, they said they need to repeat them

IGG 2.87 ( 3 is lowest of normal rage)


IGA low side of avg 0.11 (.15 lowest of normal range)


They are now pressuring us to give DD the hib, meng c and peun and any other vaccine we will allow. I'm not sure how I feel about this is I have been 100% dead against them.

I don't know enough to know what to do, anyone here with more info that may help us?

[angie7]

I have no advice as no one would know what they would do in your situation. All I can suggest is to listen to your instincts

[ammiga]

I won't vax my fully healthy dd. There is no way I would inject that poison into an at-risk child! I would eat an entirely whole food diet, with as much organic as possible. I would take vitamins and bf as much and as long as possible. I would clean my house with vinegar and baking soda, and remove all chemicals. But there is no way I would flood my dd's system with the garbage and poisons in vaccines.

Giving Hib will just make her more susceptible to other Hi. What a waste.
Pneumococcal is ineffective... even Canada's version of CDC says so (though they still recommend it ).

[Yulia_R]

Originally Posted by ammiga

I won't vax my fully healthy dd. There is no way I would inject that poison into an at-risk child! I would eat an entirely whole food diet, with as much organic as possible. I would take vitamins and bf as much and as long as possible. I would clean my house with vinegar and baking soda, and remove all chemicals. But there is no way I would flood my dd's system with the garbage and poisons in vaccines.

Giving Hib will just make her more susceptible to other Hi. What a waste.
Pneumococcal is ineffective... even Canada's version of CDC says so (though they still recommend it ).

:

My son was SO healthy up until we started vaccinating him. Two days after that he came down with a horrible flu. Few months (and 9 shots later) he was the first to get sick with EVERY SINGLE bug going around, having bad eczema (which at some point got infected with MRSA) and so on. He got his last round of shots when he was 8 months old; he is almost 4yo now and his immune system while did get better is still significantly weaker than my dd's (who is nearly 2.5 and is not vaccinated)

[guestmama9920]

DD has never been sick, this blood test was done after we thought she might have a low vit d level (which she does)

She is EBF, not going to daycare or school.

The SCN may be lifelong or gone in a few years. We still have no clue what is going on.

ANY bacteria infection could kill her, I know that. But right now any fever and she is admitted to hospital, so even if she caught one of these bugs she would be seen ASAP vs just left home since kids "get fevers"

I've been made to feel horrible and am unsure what to do. I dont want anything to happen to her but even they said the vax may not work anyway if her levels are low.

[Yulia_R]

Vaccines were only tested on 100% healthy kids. No vaccine was ever tested on kids with your dd's condition.

What about antibiotics? How come ANY bacterial infection would be a grave danger to her is there are tons of different antibiotics to help her body to fight off most of bacterial infections?

[guestmama9920]

Originally Posted by Yulia_R

Vaccines were only tested on 100% healthy kids. No vaccine was ever tested on kids with your dd's condition.

What about antibiotics? How come ANY bacterial infection would be a grave danger to her is there are tons of different antibiotics to help her body to fight off most of bacterial infections?

She would need antibiotics to try to fight infections, her body doesn't produce the right stuff to fight them on their own.

I would think she would be at less risk from these things since she would get instant anntibotics, vs most kids would be sick longer before going to the doc