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Struggling as a new NICU parent

post #1 of 8
Thread Starter 
Four days ago on April 17, I was 32 weeks pregnant. I noticed decreased fetal movement, and went to the hospital at midnight, and Lachlan was born via an emergency c-section with me under general anesthetic at 7:19am. It was such a shock, and was so scary. As I was being rushed into theatre, I was grasping the sides of the bed saying, "I'm so scared, I'm so scared", because I was scared for my baby boy. He was very ill when he was born, and was anemic because somehow he had bled into me and was he was white when he was born. He was starved of oxygen, and his organs had all begun to shut down, with his heart and brain shutting down last of all. A neonatologist sat down with us and told us that the odds were not good for him. She gave him a 50/50 chance of survival, and if he did survive she gave him a 30% chance of brain damage. She fought back tears as she told us what a rollercoaster ride this would be for us, and I thought that my husband and I understood, but we really didn't.

The last four days have been so incredibly hard. I've been feeling like I just want to curl up into a ball and shut out the world, and I want this experience to disappear when I open my eyes again. It hurts me so much so see Lachlan's beautiful, perfect body and to know that I couldn't protect him and make him well. It hurts me to see my husband hurting. Each day we would see little steps of progress and would tell ourselves that maybe he would be OK, and without any really bad news for a day or so it started to feel just a little better. Then yesterday we found out that his brain ultrasound showed bleeding and clotting in his brain. Today we found out that his MRI showed more extensive bleeding, swelling and brain damage. My husband and I are so devastated, but have been communicating with each other and comforting each other and crying with each other.

I've been feeling so overwhelmed with sadness and grief and "why me". It's just so hard to cope, and it's all been happening so fast, with one thing after another. I've been finding it hard to be happy when I spend time by Lachlan's bedside. My husband has been helping with that, by showing me that even if Lachlan won't grow into the boy or man that we thought he would, he's still a beautiful baby now, and we should enjoy the good things about him. I've also been feeling so scared for our future, it's all so different to how I thought it would be, and there was no warning at all. There are so many strong, overwhelming emotions I've been feeling that it's hard to process them.

I've been pumping breastmilk, but Lachlan can't have it yet because his digestive system has to heal first. When I first started pumping, I didn't realize how sick Lachlan was and was really proud of my body for making such a nutritious meal for Lachlan for later. Now when I pump I can't help but feel sad that I don't have a baby to breastfeed or hold, and that my baby is in the NICU. I don't even really feel like a mother yet, although it's starting to sink in that I'm his mum.

There's so much more I could write. I've just read some of the other posts here, and it's helping to know that I'm not alone and that I've been feeling the same feelings that so many of you unfortunately are going through or have gone through. I wouldn't wish this on anyone, it's so much harder than I ever could have known.
post #2 of 8
Welcome Jules and little Lachlan. Your post made me very emotional. My son was born at 29 weeks and 6 days so I know the pain, guilt and anger that you are going through. I could not believe that I was delivering my son at that time either. Your milk is precious so they will freeze it. Even though we lose a lot of control when we have our babies prematurely we can produce something so special to our children. Stay strong even if it is difficult; and take care of yourself. I will be thinking about your family and hoping for the best.
post #3 of 8
Quote:
Originally Posted by Jules09 View Post
It hurts me so much so see Lachlan's beautiful, perfect body and to know that I couldn't protect him and make him well.
You heard the change of health in him from within your whole being mama - you did the very best job of protecting Lachlan that any of us could imagine: you got him out to where you can meet him and get him the best chance of treatment possible.
That is an amazing accomplishment that he will be proud of you for.
And your milk is sooo precious. Pumping is one of the most grounding and familiar things we can do to keep us going at this time.

Praying for you all.
xx
post #4 of 8
Welcome and I could have written your post 3 plus years ago. One thing I remember is pumping was the only thing I felt I had control of in this rollar coaster ride. Please vent away and understand all your feelings are normal and its a very difficult thing. Feel free to pm if need be as well.
post #5 of 8
But you are protecting him! You knew something was wrong and you acted! You are pumping because that is what is best for him! Once he can begin to have food in his NG tube, it'll be your milk that you made just for him coating his tummy first! You are by his bedside keeping an eye on him! He sounds absolutely beautiful and a fighter! Don't be down; you are being a strong mom for him! Keep us posted!
post #6 of 8
I'm so sad for you. The nicu is so hard, especially when it is not what you expected. I had a son born at a little less than 32 weeks last fall. I also pumped before he could have my milk by tube.

I ended up with almost 1,000 extra ounces of milk in the freezer. That is nearly 8 gallons. That milk represents at least 36 hours of time hooked up to a pump, wishing I could have instead been holding and feeding my son. Eventually he did get my milk and learn to breastfeed, but I still have two freezers full of milk. I am now donating that milk to a non-profit breastmilk bank so that it can go to other preemies. So one way or another, your milk does not need to go to waste. I hope your son will be able to begin eating soon!
post #7 of 8
You gave your son 32 wonderful weeks in your body. He would not be as strong as he is today without that strength that you nurished him with. You knew when something was wrong and knew when to call the drs to get him out. That shows that you are already a great, strong, inutitive mother.

You are his mother for a reason and he was given to you for a reason.

Allow yourself to cry and grieve because we have ALL been there!

Many hugs and prayers. Please keep us posted!
post #8 of 8
Love, Hugs and Prayers to you and your family. Knowing that your are afraid is knowing you are already a wonderful Mother. Your little one is a miracle and all you can do for him right now is what you are already doing, LOVE HIM!!!... He knows who you are. Hold that baby as much as you can. Kangaroo Care does wonders. For both Mommy and Son. Sing to him soft lullibies. I sang to my baby every day, 4 - 5x a day. And he still loves it now when he's sick and I sing. It calms him to hear his Mommy's voice. My little boy was born at 31 weeks. I can't say I totally know what you are going through. Although he was born with no heart beat and not breathing. He was so strong.Within minutes he recovered very quick. Besides being on cpap for only 24 hours. He had no other problems. He was a feed and grow baby. Your breast milk will play a huge role in his coming days. BM is way easier for under developed digestive systems to handle. When ever they gave my boy formula he would throw up. My milk took a long time to come in (c-sections will do that) so he had a week of episodes. But as soon as I got enough milk for him all started to be good. But I know how scary the NICU can seem. It does get easier when you learn the language and what all the alarms and sounds mean. And keep pumping, it will surprise you how fast your frozen supply goes down when those little boys start to eat. Breast milk is the lottery for prems. You will be so proud of yourself when your little one is getting the best diet ever. And it's all from you. It will help you to ask every possible question you have. If you are in the know, you just feel better. Best of luck. I will say a prayer for you and Lachlan.
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