I am still just praying it is a tic disorder. I can deal with that. I don't have any answers just yet. The same day of ds neurologist appt.; he woke up and complained his neck was hurting. He layed down and then could not get up. I even tried to move him to the couch and he just screamed in pain. I ended up calling the paramedics because I was so afraid to move him.
In the end, ds has torticollis of the neck caused by his frequent tic movements. The neurologist we saw is concerned because she has never seen anyone with tics have a locked up neck. I did tell her how often he would "tic"; which was every 30 sec. or so; and this has been going on for over 4 weeks.
I knew nothing about tics when this started and of course; you think the worse that something is wrong with the brain. Reading online and talking with you moms has helped me to calm a bit and know that some tics are normal.
BTW, my son has never had a vaccine, he has been totally healthy up until all of this. I have not been given the third degree like I expected with all dr. visits, that has been nice.
Anyway, I feel like I am all over the place in this post. He is in PT for his neck and his MRI is next Friday. Any other info. you can send my way would be greatly appreciated!