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6 year old with celiac disease?

post #1 of 4
Thread Starter 
While I'm here just posting away - let's talk about my 6 year old:

At infancy she was formula fed (I was a much diff mom the first time) and switched to soy at 1 month (wish I knew now what I did then about soy). She has always had bm problems.

Fast forward to last november - she developed chronic loose stools - I have taken her to the doctor. This year he said it was just rotavirus. I have now switched to a osteopath and we talked about the possibility but she really didn't say anything about testing - so should I continue to investigate this path? We do have some celiac in the family (possibly me, who is chronically anemic but I haven't really investigated this yet - I love gluten)

My dd:
Chronic loose bms
Goes through periods where she is very emotional - it's like she can't find the off switch and calm herself down once she starts crying about something (and as much as I love her, she is very very sensitive and it can be difficult).
She seems to be very clumsy - falls daily, often even just walking around the block on a casual stroll.
She was tested at around 3 for allergies and tested positive for a lot of common outdoor/indoor allergens - mold, dust, etc.
She had high levels of lead but we did a natural diet to chelate and it is lowered.
She had Kawasaki's disease but again is fine.
I have no blood test knowledge so I don't know if she has anemia.

Should I ask for the celiac test? Should I just do a gluten free trial? Or should I look at something else.

I know it is not a milk allergy because she will go long periods of time with no dairy and still has the digestive issue.

She does these supplements:
Vit D
Multiv Vit
Omega-3
Calcium (really, she just doesn't do dairy)
Probiotics

Side note: can a 6th month develop allergies to a dog?

Karen
post #2 of 4
When you said she doesn't "do" dairy, have you eliminated ALL derivatives. It's not that easy to avoid unless you're really trying.

It could be gluten. It could be soy. It could be corn. It could be okra. It could be any food really. You could get the blood test for celiac before you go off gluten. Otherwise, it wouldn't be very accurate. But keep in mind that even if she's not celiac, she could still have gluten intolerance. Why don't you get yourself tested at the same time to rule it out. Then come home and both of you can go gluten free to test the gluten intolerance theory.

Yes, a 6 month old can be allergic to a dog, but the good news is at least it would show up on skin prick testing!
post #3 of 4
Drive-by thoughts (I should be doing laundry and dishes)...

Do you know where the lead came from?

Sounds like your daughter has a lot of gut dysbiosis, there are lots of causes--food intolerances or allergies together or separate from a bad bacterial mix (can you start fermenting veggies? link below, it's way easier and tastier than it sounds--kimchee, sauerkraut, like that).

Gluten intolerance can really mess with a person. My daughter (and DH) are gluten intolerant in the normal way, sleep issues, digestive issues, general stress through their bodies. None of DH's family history looks like celiac, but just for this it's worth it to be GF. We've done no testing, we've had a short list of bad foods and I could figure them out symptomatically, but testing can be helpful depending on your situation. Given other health issues, I think it's worth it just to start GF and then decide if you need testing. And look for trace dairy too, it can cause problems.

http://mothering.com/discussions/sho...ight=fermented

But, given that you had that autoimmune thing (nonspecific), celiac becomes more likely. There's testing through Enterolab, a stool test for antibodies (you don't need to be consuming gluten currently, I think it's up to 1-2 yrs afterward) and a separate gene test for gluten intolerant genes and celiac genes. Not considered as valid as the blood test/biopsy route, but I think more useful in figuring out what's causing poor health.

Environmental allergies sound like low methylation (either due to too much toxic load or not enough nutrients, have you read the stuff on folate and people who need twice as much? whoMe's MTHFR stuff). Our bodies also use the methylation pathway to get rid of mercury, lead, arsenic, thallium, and tin (just looked all that up yesterday). Sad to say--always remember you could have a few things going on--celiac _and_ a double marker for folate (those people need 800mcg of folate per day and the folic acid in most vitamins isn't helpful, they need the higher-end supps that have real folate).

http://mothering.com/discussions/sho...1060720&page=4
I just typed up some stuff in my thread yesterday about drugs and specific detox pathways, don't know if it may help at all.

Anemia--is it iron deficient or something else? B12 deficiency can cause anemia too (and people with heavy metal issues or serious digestive issues can get low on B12, and some people just seem to get low anyway and I'm not sure the cause is really known).

My daughter has some emotional ups/downs when her gut is more messed up, there's a lot of interaction/hormonal regulation stuff that seems to happen between the gut and the brain/hormones. Not sure how it works. I've also just seen the overreaction type stuff due to toxic load/overburdened liver.

Clumsy--well, for us it was early (in-utero) issues involved there, I think kids can still see improvement by doing fun exercises that cross the midline, that promote left-to-right cross-talk in the brain. Haven't found out much about it, but BrainGym is one approach.

need to run
post #4 of 4
Get tested. Both of you.

You do know that gluten causes a lot more problems than just diarrhea and malabsorption in CD, right?

No amount of gluten is worth intestinal lymphoma. It really comes down to that. You're talking about a disease with a super simple treatment which will control all symptoms and reverse most damage (if caught earlier).

There was at least one study which showed the CD was more prevalent in kids who'd had Kawasaki, by the way.
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