Pat,
Thank you for your post. I sincerely hope he will not have another reaction but considering we don't know what the trigger was yet there is definitely that possibility.
We know he is ana to eggs and dairy but as far as we know he was not exposed to either of those. There is the possibility that I somehow exposed him to enough dairy to trigger the ana because I ate toast with grass fed butter about 30-40 minutes prior to his reaction. It's possible that the amount left on my hands or from me kissing him, etc was enough to set off the reaction. If so, that is very worrisome. Granted we can control our home environment and rid the entire house of dairy but we certainly can not do that within our community and so I fear we will have many ER trips if he is that sensitive. Plus, butter is mostly fat so it is intimidating to think of a secondary contact to butter giving him anaphylaxis. This was the first time we had to use the Epi on him. His first bad reaction was to egg and it was from me touching him after handling raw cookie dough when he was 3 months old. I had rinsed my hands off, but not washed them with soap because he was crying. He developed hives everywhere my hands had touched him. His second reaction, an anaphylactic one was to trialing him on goats milk formula when we were trying to find out if it was my breast milk causing him pain at night. He had two sips and had a very serious reaction (full body hives, swelling, itching and a bit of trouble breathing) he didn't have an Epi pen at the time and I had given him Benadryl and thankfully the reaction slowly improved over the next six hours. Our allergist was VERY upset that we didn't call 911. We learned our mistake.
I have some water kefir grains that I received from a friend but they have been sitting in my fridge for about 2 months because things have been so crazy I've barely been able to function. Are they still good?
He has mostly been completely off solids for the last month or so. We had to trial a few foods to document his response for the allergist and the pediatric GI. Unfortunately we will have to trial a few more before his scope because the only way to get an accurate diagnosis of what his eosinophils are doing is by having him consume foods that he responds to (obviously we will not be using any that he is ana to). Rather than giving him solids I think we will just have me nurse him with me not eating the big triggers.
The other thing that make this difficult is that he is desperate to eat. It is very difficult and I feel tremendous guilt each day because of how much he wants to eat. He signs to eat and whines and cries and throws himself on the ground when he sees us eating and we don't share. It's very hard.
We are going to be doing some prick testing next week to check him for beef and chicken allergies as well as 18 other foods and then if he is okay with beef than I might consider making him some homemade formula. The problem is that they want to see if we can get him to a baseline without food proteins.
This whole thing just drives me batty because it is in direct opposite of the research and way we lived prior. I was consuming a Weston Price diet during my pregnancy and while nursing. It was actually one of the coconut milk smoothies (with raw egg) by Sally Fallon that initiated his allergy to eggs.
He is also completely unvaccinated and had received no antiobiotics, drugs or other things I would have considered "at fault" prior to this cascade. I too was healthy during the pregnancy. I hate allergies.
I also question the leaky gut as a causative factor for us. I've been working with a naturopath and all of my blood work has come back not indicating that I have leaky gut (though I am treating myself as if I did). I am also donating my breast milk to another mom and her son is thriving off of it. In fact, for the first time ever he does not have green stool (she didn't realize her son was allergic to dairy until he had my dairy free milk). I started eating raw dairy again this week to try to help my own gut until I nurse my son again and then I will need to be dairy and egg free again.
Anyway, sorry for my rant but I am just so frustrated. I did everything I possibly could during my pregnancy, etc to avoid food allergies in this baby because my daughter is allergic to peanuts, eggs, peas and chicpeas and I thought for sure it was because she was vaccinated. Now here is my son, unvaccinated and his allergies are much, much worse than hers.
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Originally Posted by WuWei  I'd give the last dose of prednisone. But, unfortunately, it is common to have a rebound effect when the steroids wear off. Assuming, this was an isolated, rather than ongoing exposure, it is less likely to occur. The other meds will help to suppress the immune system.
I'd suggest water kefir to help recolonize the gut.
Unfortunately, even elemental formula has the most common highly allergenic corn, dairy and soy.
Personally, I'd avoid introducing ANY solids until closer to a year. But, consider trialing the Weston Price dairy-free homemade formula for improved nutrient-dense alternatives. http://www.mothering.com/discussions...a#post13725688
I'd explore environmental allergens also. Do you have a HEPA air filter in the bedroom, dust mite covers on the mattress and pillows, no animals or stuffed animals in the bedroom, windows closed to bedroom at all times to avoid pollens, grasses, tree allergen exposures?
Corn is severely anaphylactic for some children. Corn is in EVERYTHING. Dairy exposure is everywhere. Here is a list of hidden diary: http://www.kellymom.com/store/handou...dden-dairy.pdf
Hidden corn: http://www.cornallergens.com/list/co...ergen-list.php
Even touching it could create an anphylactic reaction for some folks. If you touch it and don't wash your hands first, ingredients touched the table, etc.
Here is more about starting the allergen identification journey. http://www.mothering.com/discussions...n#post13719101
Best wishes, Pat |
I feel for you mama I really do! Sending lots of good vibes you can get him back on breastmilk 
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