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Parenting Young Children W/ a Handicap

post #1 of 7
Thread Starter 
I had major surgery on my ankle on May 21st. It was almost entirely replaced with donor bone and metal plates. I am unable to walk for the entire summer. I am STRUGGLING in a major way to parent my three children ages 7, 5 and 3. My wheelchair barely fits around the kitchen and my crutches make it so I can use my arms and get tired. Meals and snacks are so hard to manage. I can't clean for the life of me. Nor do laundry. I want to play with my kids but they don't want to sit still and I can't not sit still. I'm so frustrated and sad. Does anyone have tips or words of encouragement that might help me get through this with less struggle? I know there are Mamas out there with permanent handicaps who mother beautifully....others who also has temporary handicaps and may have found ways to do things I haven't thought of......anyone?
post #2 of 7
Ohhh wow. I just got over a broken foot. I was on crutches for 3 weeks but then I was ok walking most days.

Can dh or a friend make meals? Quick and easy that you can pop in the microwave or something. Watch a lot of tv. : Get ppl to go w/ you on outings? Take them to McDonald's to play (they're relatively well-contained there in the play place) if you can get there, let them run around outside if it's fenced or they're mature enough to stay within specific parameters.

Have a friend over, if possible. That would have been the best option for me.
post #3 of 7
I have had several surgeries in the short time my kids have been born (and many more to come) plus not to mention the fact that I am permantely disabled as well. First, do you have any help during the day, family or friends that can come by in your hard hours like feeding, etc. Are you in a position that you can afford to hire a mother's helper? a local church? What about your partner? Is he able to prepare food ahead of time so that you can just pop it in the microwave or on the stove? Easy food is going to be best bet right now. I know that's hard to do, especially if you feed organic. We did a lot of organic crackers, cookies, bite size fruit, for snack and for dinner, we did a lot of casseroles, etc. that my dh could cook ahead of time.

Also as far as spending time with your kids...Movies are always good, even if you don't agree with them, one every once in awhile won't hurt anyone and give you some time to relax and enjoy being with your kids. Finger painting, drawing, coloring, playdoh, moon sand, etc. Light brights work great too! Puzzles, board games, simon says, I spy, etc. are all great games that you could do and not put much effort into.

HTH!
post #4 of 7
Talk to the American Red Cross about their equipment hire (I know Britain does one, I expect ARC does too): see if you can get a high stool to rest upon in the kitchen. You need to get the crutches down: I know it's hard, but if you can, it'll be much easier. Also, seriously, I'd see if you can rent a motorised scooter for the duration of the summer (or buy one and then sell it.) That'll give you the freedom to get out of the house, you can take the crutches in the back. Is your 3yo a good walker?
I broke my foot when my oldest was nearly 3 and ds2 was a year old, and yes, it was tough. I made snacks for the day/fruit/etc and packed them up in a coolbox with an ice pack and put them in the living room where I could get to them easily. I used a wheelchair out of the house with DS2 strapped to my front in a mei tai, so we could get to the park and stuff. I think I'd have gone insane if we'd tried to stay indoors.
post #5 of 7
i would strongly suggest hiring a neighborhood young teen to come and "work" for you for the summer.
having someone there jsut to make a few sandwiches and play on the floor with the kids sounds like it would be a great deal of help to you.
post #6 of 7
Mine's a permanent(birth defects affecting my right arm, have about 1/2 normal use, is shorter, weaker, hand at an odd angle), but even having it all my life, there are things I was not expecting to run into when it comes to being a mom. Basically anything that needs two hands, lol.

Diapers, especially the first few months when we used cloth, were really hard. Luckily I never had to handle my breast to latch DS, but when his head was supported by that arm, it would ache so bad because it's weaker from less use, but it's better now. Getting him in and out of babywearing gear and positions has always been crazy.

Our biggest weirdness so far was that the bar on the stroller we had was much too low, and wouldn't steer 1-handed. I had to lean forward to push it, and that was messing up my back. The solution; we got a wagon. That handle goes up and down depending on angle, so it fits anyone's height perfectly, and can be used one handed, and I can use either hand to pull it.

Basically, you need to work around it. If one thing isn't working, try it differently. If it still isn't working, look at the very roots of why it's not working, and try again.

Can't reach things? Move them lower. Can't carry things? Enlist the kids, starting with oldest. Need help, period? Make preparing the food a group activity.

You want to play with them without having to be very active, right? As long as you are active enough to keep healing, I see no problem with that. Try scavenger hunts. Make lists of the weirdest things you can think of, and see what they bring. Younger version: Ask them to go to their room, find the most interesting (if they know colors, sizes, shapes, use them!) say, green thing, bring it back, and tell everyone else why they picked that, what other green things there were, and why this was the most interesting to them. Coloring and reading are other things that can be done from the couch. Blowing bubbles if you have a bench outside would be good, or if outside isn't an option, out a window. You can see who's lasts the longest. Do something with dressing up and role-playing, like a play with no script. Something my son(20 months) likes to do is put all kinds of things on my scanner, then I tell the computer to scan it, even though it's wide open, and we look at the picture that comes up. Sometimes he moves things in mid-scan, and those turn out pretty cool. Something slightly more active, do a from-the-couch bean-bag toss, you can use small soft toys and a box. Have the kids put the box in a good spot, everyone pile on the couch, and take turns throwing.

I hope that helps, just remember, get to the very core of why something isn't working first, and you'll be able to come up with a different option faster. You can do this!
post #7 of 7
Thread Starter 
Thank you so much for all of these wonderful and helpful replies. I am so grateful. You all gave me a lot of ideas and things to consider. I wish I had asked before the surgery - I'd have prepared more. Better late than never.

I can do this.
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