Salicylate/Amine/Histamine Sensitive Tribe - Page 8

[Adamsmama]

Originally Posted by mamafish9

Since this is a sals thread, just a note of caution about raw foods supps, including this one. They are almost all ridiculously high in sals... (the first ingredient for this one is strawberry, followed by several other fruits). I tried a whole foods chewable C with DS - and 1/4 of 1 chewable turned him into a wild child. Same story with the herbs in many supps - again, very high in sals.

So for vitamin C ... do you suggest a pill form or dissolvable powder? I agree -- I'm not taking anything that has raw fruits in it because the last time I ate a few berries I got swelling in my lips. Not taking any chances on that ...

[Koalamom]

Originally Posted by Adamsmama

WOW! I didn't know this could be symptoms of lyme disease ... did you just found out you have it?

I found out when I was 7 months pregnant. My baby is 6 months now. It is only since finding that I have lyme, I can figure out how I have so many food issues. If you have only ever been bitten once, I would not even push aside the possibility of lyme. My baby has lyme from me, and that is where his health issue stem from.

[Koalamom]

Originally Posted by mamafish9

Since this is a sals thread, just a note of caution about raw foods supps, including this one. They are almost all ridiculously high in sals... (the first ingredient for this one is strawberry, followed by several other fruits). I tried a whole foods chewable C with DS - and 1/4 of 1 chewable turned him into a wild child. Same story with the herbs in many supps - again, very high in sals.

Thanks for the caution. I only give the ones that test for my kids, and some of the whole food garden of life sups don't test good, but then again some do. And even thought we have issues with some of the foods listed on the bottles, in the supplement form, my kids are fine, and actually do well.

[JaneS]

Originally Posted by mamafish9

Since this is a sals thread, just a note of caution about raw foods supps, including this one. They are almost all ridiculously high in sals... (the first ingredient for this one is strawberry, followed by several other fruits). I tried a whole foods chewable C with DS - and 1/4 of 1 chewable turned him into a wild child. Same story with the herbs in many supps - again, very high in sals.

Ditto. I tried a living vitamin C from Garden of Life and my bladder went into major spasms for a couple hours!! Thankfully it only lasted that long which was a great sign of healing. I take acerola and acai vitamin C forms just fine but that C complex had a bunch of citrus and berry extracts.

I like liver or liver capsules for the B vits. I just got Megafood's B complex which is also food form and it's from Brewers Yeast so that could be okay for sal intolerance?
http://www.iherb.com/Mega-Food-Daily...lets/3992?at=0

Is the folate from broccoli the right form?

I highly rec Jarrow Methyl B 12 sublingual, the 1000mcg. is lemon flavor (take more than one if an adult) and low in sals but I tolerate the 5000mcg. which is cherry just fine, YMMV.

Taking B12 orally doesn't do any good b/c most people with gut issues don't product the intrinsic factor to absorb it. A sublingual is held under the tongue as it slowly dissolves and the B12 goes directly into the bloodstream.

[JaneS]

Originally Posted by Adamsmama

So for vitamin C ... do you suggest a pill form or dissolvable powder? I agree -- I'm not taking anything that has raw fruits in it because the last time I ate a few berries I got swelling in my lips. Not taking any chances on that ...

You could actually be sensitive to the pure form of vitamin C for a number of reasons. Most ascorbic acid vit C are made from corn. Twinlab's allergy C is made from palm, so that might be a good choice. There's another allergy one but I forget, maybe someone else will chime in.

However, many people with sal sensitivity do not do well on vitamin C supplements at all. My son doesn't. I only give it to him when I absolutely have to to combat illness (but now he is doing really well on zinc and high vitamin D in addition to A/D in cod liver oil as his immune support.)

The Plant Poison blog has a very interesting take on vitamin C:
http://blog.plantpoisonsandrottenstu...ioxidant-myth/

You just have to try some different kinds to see what works for you. Usually I buy anything new at a place I can return it easily if it doesn't work for us.

[JaneS]

Anyone taking a chelated Mo supplement? I'd like to upgrade the one we are on now but cannot find a good one without crappy additives.

[JaneS]

M2S,

Cinnamon has still been a trigger for me beyond the smallest amount and I can tolerate a lot of sals right now. I would take it out.

Other people have their pendulum, I have my Bladder Meter.

I would just add more vanilla which is FAILSAFE right?

Coconut is very high in sals
http://salicylatesensitivity.com/food-guide

[JaneS]

Originally Posted by Adamsmama

wow! I had no idea...it is tangerine...I could try lemon/lime...

I would ditch the Emergen-C.

The B vitamins are not in the correct form to do any good, it has fruit extracts which will make you react if you are sal sensitive, and it's expensive compared to just a regular vitamin C supplement for only 1 gram of C per packet.

Aspartic acid is also an amino acid that is an excitotoxin.

[Adamsmama]

Originally Posted by JaneS

I would ditch the Emergen-C.

The B vitamins are not in the correct form to do any good, it has fruit extracts which will make you react if you are sal sensitive, and it's expensive compared to just a regular vitamin C supplement for only 1 gram of C per packet.

Aspartic acid is also an amino acid that is an excitotoxin.

Well, the emergen-c has been keeping me going for a little over a year. If I react to anything and immediately take that it calms my reaction...sometimes I have to take 2 packs -but usually just one. I now believe my reactions are more from histamine intolerance than sals but I could be wrong.

I just bought powdered vitamin c and I hope I don't react because I'm supposed to be avoiding corn. I took 1/4 tsp today in some water.

[mamafish9]

Originally Posted by Adamsmama

Well, the emergen-c has been keeping me going for a little over a year. If I react to anything and immediately take that it calms my reaction...sometimes I have to take 2 packs -but usually just one. I now believe my reactions are more from histamine intolerance than sals but I could be wrong.

I just bought powdered vitamin c and I hope I don't react because I'm supposed to be avoiding corn. I took 1/4 tsp today in some water.

C really helps with histamine - but if you take it daily, it will help prevent the histamine reaction in the first place - you need to be taking about 2g a day for it to work that way.

[Koalamom]

Originally Posted by mamafish9

I avoid those oils because they are extremely high in omega 6s. There are some studies that show an imbalance of omega 3s and 6s contribute to sals sensitivity, and I think in our case, avoiding them helped DS tolerate more sals.

Note: I am cross posting this since I thought al the mamas here wouls loove to hear our progres:

I am so glad to learn about the omega 3/6 thing. After reading about this, I decided to give it a try and whoa what a difference. I would do more fish oil but my kids are sensitive to too much fish oil, and I know we needed more omega 3's than that. So just in the last 2 days I have been taking and giving my kids large amount of flax oil (with liignans- very important) and what a difference it has made. My 2 yr dd who normally would break out terrible to chocolate, snuck in the grocery store and ate a chocolate that had soy in it too, and I waited for the huge break out, and what do you know, she just got a little red behind her legs and dry on her back, but not all over her whole body for days and bleeding like usual. The only difference is the flax oil. I am stil in awe. I thought that my dd would never have chocolate again, but this may be the key. Just think what we could eat again if a serious food was semi ok, the minor ones may not give her any reactions now.

I am still in utter shock- my kid ate chocolate with soy and is alright!!

[JaneS]

Very interesting! Who knows what will happen after a year of restocking her body!

Yes, you need to give lots more flax than fish oil b/c very little of it is converted to EPA/DHA in the body. Fish oil is already had the conversion made b/c it's an animal product, so it's usually better to take. But obviously not if you are sensitive.

[JaneS]

Originally Posted by Adamsmama

I just bought powdered vitamin c and I hope I don't react because I'm supposed to be avoiding corn. I took 1/4 tsp today in some water.

The Emergen-C would be from corn too?

Good luck! when I started vitamin C and CLO and probiotics, my since-puberty hayfever went away and never came back.

[Koalamom]

Originally Posted by JaneS

Very interesting! Who knows what will happen after a year of restocking her body!

Yes, you need to give lots more flax than fish oil b/c very little of it is converted to EPA/DHA in the body. Fish oil is already had the conversion made b/c it's an animal product, so it's usually better to take. But obviously not if you are sensitive.

Other than the extra conversion needed in the body, is there anything wrong with flax oil? I sure with we could take extra fish oil, but we are just doing alight with the small amount we take. If we over do it, the kids break out in rashes.

[Theloose]

Originally Posted by bluebirdmama1

Other than the extra conversion needed in the body, is there anything wrong with flax oil? I sure with we could take extra fish oil, but we are just doing alight with the small amount we take. If we over do it, the kids break out in rashes.

It's really high in polyunsaturated fatty acids, which are very prone to oxidation inside and outside of your body. The more PUFA you get, the higher your vitamin E requirement - vit E is an antioxidant.

[nanciswell]

vitamin c

I am extremely sensitive... to many things and have trouble finding supplements I can tolerate.

I do well with Tapioca Vitamin C by AOR

[nanciswell]

oils

I am now taking more omega 6 than omega 3 in the form of phosphatidyl choline.. it helps my liver/ gallbaldder problems and would like to try adding in some more omega 3s to counterbalance that.

Now I am extremely sensitive and am wondering what oils would be the best to try in order of less sals?? with consieration of the amount of omega 3s.. ??

thanks.. nanci

[Adamsmama]

Any particular brand of flax oil to use? I'm going to look into trying it but noticed there are about 3 brands at the health food store in refrigeration... one says flushed with nitrogen (I think) to preserve the freshness??? One other doesn't ... I'm not sure of the brand names.

[Koalamom]

Originally Posted by Adamsmama

Any particular brand of flax oil to use? I'm going to look into trying it but noticed there are about 3 brands at the health food store in refrigeration... one says flushed with nitrogen (I think) to preserve the freshness??? One other doesn't ... I'm not sure of the brand names.

I am not quite sure of what is right, but the one my friend recommended is any that is cold pressed, organic, WITH lignans.

Still if you can tolerate fish oil I would use that over or with flax.

[Adamsmama]

Ok ... Is fish oil bad for people with histamine intolerance? Is there any fish I could tolerate? I have eaten tilapia in the past and was thinking of buying some more? What if I bought some frozen fish and cooked it ... would that have histamine in it?