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Salicylate/Amine/Histamine Sensitive Tribe - Page 9

post #161 of 391
Not histamine related but sulfite... I find I need a trial , or could phone the company before I know if I can tolerate a frozen fish. Some companies wash their fish in sulfites before freezing.

nanci
post #162 of 391
Is flax seed not on the list for sal foods?? I cannot tolerate any sals so I think that is off my list. I wonder if I can find any?? I may try sunflower seed oil

nanci
post #163 of 391
Quote:
Originally Posted by nanciswell View Post
Is flax seed not on the list for sal foods?? I cannot tolerate any sals so I think that is off my list. I wonder if I can find any?? I may try sunflower seed oil

nanci
Sunflower oil is super high in inflammatory omega 6s, exactly the opposite of what you want...
post #164 of 391
I'm bumping this so I can keep catching up. So I'm thinking dd's is more histamines? I've been giving her some sub b12,3,6, and mag. Need to remember the clo. Ran out of SA and need to get that in her. Oh, and she's getting mo as well. her bum is juuust a tad better. She had homemade macaroons last night and her rash isn't any worse from it. Coc is high slas, right? And she rashes on her belly like the non-hives-histamine-rash. So I'm going to see if I can figure this out for her.
My ??? is/are: How much of each do you give a 33lb almost three yr old a day? Should any be given away from each other? B's are water soluble and will just wash out what she doesn't need right? Thanks for your input!
post #165 of 391
Quote:
Originally Posted by dannic View Post
I'm bumping this so I can keep catching up. So I'm thinking dd's is more histamines? I've been giving her some sub b12,3,6, and mag. Need to remember the clo. Ran out of SA and need to get that in her. Oh, and she's getting mo as well. her bum is juuust a tad better. She had homemade macaroons last night and her rash isn't any worse from it. Coc is high slas, right? And she rashes on her belly like the non-hives-histamine-rash. So I'm going to see if I can figure this out for her.
My ??? is/are: How much of each do you give a 33lb almost three yr old a day? Should any be given away from each other? B's are water soluble and will just wash out what she doesn't need right? Thanks for your input!
B12 seems to be dose by symptoms - it's so poorly absorbed that it's hard to get too much.
B3 (niacin?) depends on the form. Some'll make you flush if you take too much on an empty stomach.
B6 can make some people hyper, so again, dose by symptoms
Are you doing folate too?
The B's are water soluble, yes, but it's really easy to create an imbalance with the other B's - so if the symptoms change instead of get better, look up what B vite they're now a deficiency of.
Mo is pretty non-toxic. The biggest drawback of high doses seems to be wasting it/peeing it out.

B5, biotin and B2 all compete with each other for absorption, so I need higher doses of each if I'm supping the other(s). They'd be better absorbed taken separately (but it doesn't seem to be critical).

Sorry, no actual amounts there...
post #166 of 391
I've got some stuff coming in the mail, but til then I've got an aio sublingual. It has b2,3,5,6,and12. one dropper full is an adult dose, so I've been giving her 1/4. Tastes good, full of nasties, I'm sure. Making do til thorne stuff gets here.
I REALLY want to make a cherry pie. I've been craving it. maybe I'll make her a small blueberry pie, single serving.
post #167 of 391
Quote:
Originally Posted by dannic View Post
I REALLY want to make a cherry pie. I've been craving it. maybe I'll make her a small blueberry pie, single serving.
Well, that would tell you if she's sals reactive ...
post #168 of 391
I guess so...but I'm trying to get her rash to heal, so she'll get blueberry.
post #169 of 391
I'm so confused- one link says that blueberries are high in sals. The other says they are so low, you can eat unlimited amounts of them. Which is it?
post #170 of 391
No clue on that. I'm thinking dd is histamine. She's not reacted to blueberries *I think*. It's all still a mystery to me.

ETA: It was mentioned that left over meats are high histamine. Is this so? Do you all really not use leftovers? In my make-everything-from-scratch life, I highly prize leftovers and make more on purpose for lunches.
post #171 of 391
Quote:
Originally Posted by dannic View Post
I guess so...but I'm trying to get her rash to heal, so she'll get blueberry.
Quote:
Originally Posted by DevaMajka View Post
I'm so confused- one link says that blueberries are high in sals. The other says they are so low, you can eat unlimited amounts of them. Which is it?
Blueberries are really high in sals, all berries are. My son at his most sensitive had big sals reactions from *3* fresh blueberries. I'm not clear on blueberries and histamines, I've seen differing opinions. If you're still trying to get to baseline, I'd stay far, far away from berries. I'm interested to try them this year, to see how my son does with them when berry season comes around, but I'm not holding my breath he'll be able to eat many of them.
post #172 of 391
for my dd, the only berry she's reacted to was strawberries and it was hives. At baseline, she's been fine with them. I guess we'll see, eh?
post #173 of 391
ah, so blueberries are high in sals, but possibly low in histamines. Got it!
I'm really sure that our problem is sals, so I will definitely steer clear!

(oh, and he had bananas last night, and his rash from yesterday is still going away. So I'm going to guess that bananas are ok)
post #174 of 391
I've reacted badly to blueberries but not sure if it is the sals or histamine.
post #175 of 391
I've been looking into histamine for a few weeks, though with limited computer time. This is a great article on brain histamine: http://www.healthrecovery.com/HRC_20...er_coaster.htm Fish makes my daughter crazy! We have been wheat and additive free for years, with supplements for lead poisoning, and now trying to figure this one out. And how do you do research when someone swings from the curtains whenever you turn your head! It was so much easier to learn about the lead poisoning, 5+years ago when no one was capable of such here. As for zinc, there are 4 molecules of zinc in every metallothionen, which detoxifies metals in the gut and kidneys. . . .
post #176 of 391
Here's an article I found that explains phenol/sals sensitivities, and why magnesium, sulfate, and epsom salts might help. And why food food dyes can hurt (even if they are low sal, I assume). It focuses on people with autism, but it seems like it would be relevant to any sals sensitive people.
http://enzymestuff.com/epsomsalts.htm

If anyone notices any major flaws, let me know. It's the best explanation for why and how that I've read.
post #177 of 391
Sals are kicking our butt in this house.

DS has a bright red rash around his mouth and on his chin that goes away when he eats these foods only:

meats (beef, chicken, pork)
green beans
eggs
milk
cheddar cheese
yogurt (plain and vanilla)
bananas
pears
golden delicious apples
oats (TF prepared)
rice
butter

I can get it to clear on this diet, but the tiniest infraction and its back. And breastmilk usually triggers it too! He can be fine all day and within minutes of nursing he'll have a flaming mouth rash, exactly like he has gotten when I have given him a bit of avocado or something high-sals. I try to stay on his diet but its so limited I sometimes have more seasonings on my food, or have a glass of wine or cup of coffee with DH, or a bite of this or that. I have been on an ED since he was 2 wks old and I just get sick of it sometimes! Is there something about breastmilk itself that triggers sals-sensitive kids? I have considered weaning him because he seems to do better the less I nurse him. Its hard to justify continued nursing when it seems to make him sick and he is thriving otherwise.

BTW I am taking b6, mag, Vit C (ascorbic acid), and folate. Eating beans for mo, but recently beans seemed to trigger DS, either that or potatoes. No additives or colors in the vits. I went fragrance free on the bath and laundry products and it didn't seem to make a difference. We don't take CLO, it seemed to be a digestive/reflux trigger. We don't do espsom salts because they make him wired and sleepless.
post #178 of 391
Quote:
Originally Posted by earthmama4 View Post
Sals are kicking our butt in this house.

DS has a bright red rash around his mouth and on his chin that goes away when he eats these foods only:

meats (beef, chicken, pork)
green beans
eggs
milk
cheddar cheese
yogurt (plain and vanilla)
bananas
pears
golden delicious apples
oats (TF prepared)
rice
butter

I can get it to clear on this diet, but the tiniest infraction and its back. And breastmilk usually triggers it too! He can be fine all day and within minutes of nursing he'll have a flaming mouth rash, exactly like he has gotten when I have given him a bit of avocado or something high-sals. I try to stay on his diet but its so limited I sometimes have more seasonings on my food, or have a glass of wine or cup of coffee with DH, or a bite of this or that. I have been on an ED since he was 2 wks old and I just get sick of it sometimes! Is there something about breastmilk itself that triggers sals-sensitive kids? I have considered weaning him because he seems to do better the less I nurse him. Its hard to justify continued nursing when it seems to make him sick and he is thriving otherwise.

BTW I am taking b6, mag, Vit C (ascorbic acid), and folate. Eating beans for mo, but recently beans seemed to trigger DS, either that or potatoes. No additives or colors in the vits. I went fragrance free on the bath and laundry products and it didn't seem to make a difference. We don't take CLO, it seemed to be a digestive/reflux trigger. We don't do espsom salts because they make him wired and sleepless.
Two thoughts -
first, you might do better with more Mo than is in beans - unless they're really the mainstay of your diet. Some of us are doing fairly high doses with good results. And I think potato skins have sals? Anyone? You definitely don't want any green from right under the skin.

second, wired from epsom salts might point to an oxalate issue instead, and the food list for that looks a lot like the sals food list.
http://www.mothering.com/discussions....php?t=1162817
http://www.mothering.com/discussions....php?t=1190515
post #179 of 391
Quote:
Originally Posted by DevaMajka View Post
Here's an article I found that explains phenol/sals sensitivities, and why magnesium, sulfate, and epsom salts might help. And why food food dyes can hurt (even if they are low sal, I assume). It focuses on people with autism, but it seems like it would be relevant to any sals sensitive people.
http://enzymestuff.com/epsomsalts.htm

If anyone notices any major flaws, let me know. It's the best explanation for why and how that I've read.
It's a good one. Doesn't mention that you can help the PST enzyme and pathway by adding mo and b6 as well as mag, but otherwise a good one!

Quote:
Originally Posted by earthmama4 View Post
Sals are kicking our butt in this house.

DS has a bright red rash around his mouth and on his chin that goes away when he eats these foods only:

meats (beef, chicken, pork)
green beans
eggs
milk
cheddar cheese
yogurt (plain and vanilla)
bananas
pears
golden delicious apples
oats (TF prepared)
rice
butter

I can get it to clear on this diet, but the tiniest infraction and its back. And breastmilk usually triggers it too! He can be fine all day and within minutes of nursing he'll have a flaming mouth rash, exactly like he has gotten when I have given him a bit of avocado or something high-sals. I try to stay on his diet but its so limited I sometimes have more seasonings on my food, or have a glass of wine or cup of coffee with DH, or a bite of this or that. I have been on an ED since he was 2 wks old and I just get sick of it sometimes! Is there something about breastmilk itself that triggers sals-sensitive kids? I have considered weaning him because he seems to do better the less I nurse him. Its hard to justify continued nursing when it seems to make him sick and he is thriving otherwise.

BTW I am taking b6, mag, Vit C (ascorbic acid), and folate. Eating beans for mo, but recently beans seemed to trigger DS, either that or potatoes. No additives or colors in the vits. I went fragrance free on the bath and laundry products and it didn't seem to make a difference. We don't take CLO, it seemed to be a digestive/reflux trigger. We don't do espsom salts because they make him wired and sleepless.
Yup, it's a really sucky diet (and we were dairy and gluten free at first too!). Potatoes often cause issues for sals sensitive kids. Fava beans are high sals, the rest are low.

I'd guess the nursing issue is just you eating higher sals - when our kids are really sensitive, it doesn't take much to trigger a reaction. Only other possibility - do you use body lotion? (Many, many, many natural products are super high in sals) - thinking he might rub against your lotion while he is nursing...

You might want to think about supping HIM with mag and mo directly. In theory, most minerals are held fairly constant in breastmilk (unless you're really deficient). While some on this board have found supping themselves with mag helps their little ones, it sounds like that isn't working for you. (B6 passes well in breastmilk - are you taking P5P, the active form? And how much?). I'd try mo drops (nutricology makes some that are pretty tasteless when added to most foods), and mag (a lot trickier, especially for low sals kids - why I taught my son to swallow capsules...).
post #180 of 391
I am taking just reg b6 (pyridoxine hydrocloride) 100mg.

I don't use body lotion on my breast area, on my legs and arms I use Aveeno that is fragrance free. Got rid of all my natural stuff...too much coconut, aloe, or EO.

Reading the links on oxylates. Thanks!

I was doing low sals and GFDF too for a couple months. I was thrilled when we were able to add dairy, so I shouldn't complain.

I am sure I don't eat enough beans for mo. Not even every day. I know I am going to have to break down and order some supps online. I found a local source for really inexpensive vitamins without colors or additives and so that is what I bought. Any suggestion on the combination of supps I currently have, like stuff I shouldn't take together or with certain foods? Or amounts? I just take one each daily of the following, usually together.

Pyridoxine Hydrocloride 100mg
Ascorbic Acid 1000mg
Magnesium Oxide (I know this is not an ideal form) 250 mg
Folic Acid 400mg
The folic acid, Mag, and b6 of the vits have calcium carbonate in varying degrees. He has never tolerated vitamins but in hindsight they have all had herbal blends, flavorings, bioflavonoids, stuff that a sals-sensitive kid might have issues with. So this is our first attempt at supps again after pulling them months ago. Trying to start low and slow.
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