Oh man..... please help :(Arrrrgh!!!!
I just want to cry right now, but I have to keep it together for my DS.
I started this sali/histamine/amine ED because I suspect this is a problem and literally have no other option right now to my knowledge and judgment on how to try and sort this issue out for DS.
Today my DS is AWFUL. One of the worst flare ups ever. He has passed so much water, mucous, whatever, there is blood in his stool, he is clearly miserable and irritated. Every time he feeds he poops this stuff. He cut his first tooth today and he is climbing the walls with that too. He is so off, it is scaring me.
The only fat I was eating was ghee. I thought that would be okay but it seems that it has caused the bleeding. Been eating it around 5-6 days. It has to be that. Can't be last night's flaxseeds, although it could have contributed to his upset tummy, but then again so could the teething. He started to flare up ever so slowly since the ghee (started with a worsening of his neck rash) but I wasn't sure as I was trying out the non-sali foods which I wasn't eating before (leek, pear, sushi rice, potato, like one or two small portions per day).
Believe me, if there was ANY kind of formula I would feel happy to give my son right now whilst I pump and dump for a while to loose the allergens/chemicals/whatever in my milk, so that he could heal whilst I figure it out, I would do it. But I bloody hate the ingredients in the Neocate for example - I am at my wits end with this - really I am.
I don't care about the inconvenience of a limited diet - that is not my problem. I've been free of practically everything for months now and haven't eaten anything that I haven't made myself. Right now I am down to lamb, chicken and pear. I am frying the meat in its own fat.
I remember trying palm oil when he was a newborn and he was totally reacting to it (I remembered this today). So I won't be trialling that anytime soon.
Just need to get him to baseline as fast as possible.
What I can see happening is that my supply will go down and I really don't think there will be much of an alternative but to either bf whilst eating stuff that upsets him as little as pos, or do elemental formulas or both.
What would you do in my shoes?
Thanks so much