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Salicylate/Amine/Histamine Sensitive Tribe - Page 5

post #81 of 391
With b6 it is important to watch for bad affects as some should not take too much. People who have difficulty metablozing aldehydes { such as those who turn red with alcohol } may not tolerate b6 because it is an aldehyde.. They flush, feel drunk and get sick from it.

I just took 200 mg in one dose and boy does it feel good. I am hoping I can get that test for pyroluria... then I would know how much is too much ,, as the body really needs alot of zinc and b6 constantly..ie for life .. as long as you have pyroluria.

I have been taking alot of magnesium for years.. at least 800mg daily.. and I did find taking glucosamine/ chondroitin sulfate reduced my need for epsom salts.. But I am sensitive to it.. amines maybe??

Thanks for the info on coral calcium. I will try and find another calcium source.... I have tried the citrate and hydroxyapetite, malate with reactions to all.. But maybe with the No Fenol I can manage the citrate??

I do belong to frequent dose yahoo group and find great advice.. that is where I heard of pyroluria... thank heavens..

nanci
post #82 of 391
Quote:
Originally Posted by mtn.mama View Post
Hmmm. I guess I'm joining here on behalf of my 2.5 year old. Until recently, when i started dosing her with high-dose molybdenum... her typical sals reaction was red ears, sometimes red cheeks, and hyperactivity.

Now the reaction has morphed, I think. No more red ears/cheeks, little hyperactivity, but an itchy painful butt rash (and sometimes arm rash) has taken its place.

It seems her main triggers are raspberries, dried herbs/spices, and commercial chocolate. Are fragrances a sals thing? She's practically IgE reactive to fragrances/detergents with hives and swelling from inadvertent contact.

She's starting to understand that epsom salt baths help her feel better, and I'm hopeful that (now that I'm running out of breastmilk so) she's eating more now, I'll be able to get a mag supplement into her orally.

I think tonight I'll retry B6 for her but she's been refusing it for awhile. T's other main symptom these days (and since Day 1) has been sleeping light and highly interrupted sleep. I'd love to make progress there...
It could also be a histamine intolerance. I've been struggling with that as well -- and the foods listed fit that. http://www.urticaria.thunderworksinc...whistamine.htm I drink emergen-c powder now anytime I'm starting a reaction -- it helps a ton. It is high in vitamin c, b6, b12 and a few other things...
post #83 of 391
Lovely. Thanks for that link. If it were a histamine problem, I think she would show reactions to cheese and jerky... which are homemade homegrown mainstays in our house. Wouldn't she? I hate the mystery of all this. No, I think we're still looking at sals.
post #84 of 391
trudging through this thread, but in the mean time, does anyone have any good lists of what're high sals, what're high histamine food groups ect.? I need to figure this out for dd2--her food avoidance list:

gluten and diary (because we all avoid)
nightshades, all
pineapple
strawberries, possibly all related berries
nuts
mushrooms
saurkraut???
anything related to melons, so: squashes (summer and winter), cukes, water, musk, asian melons, ect.

I had 3 kinds of watermelon, some asian, some from Europe, musk varieties (like twelve varieties all together) growing in our garden last summer and it was after eating some watermelon and and asian melon that she got a horrid rash on her bum that took forever to heal (weeks!). Over a month ago, I forgot and fed her winter squash and she got the bumps down her side and the bum rash again that has peeled and bled and still isn't completely healed. Trying to figure this girl out is much more difficult than gluten or dairy ever was with dd1!
post #85 of 391
Lisa, I'd bet a nice hunk of cheese that magnesium will change T's sleep life ... The other one you might consider is ammonia (byproduct of a protein heavy diet and/or clostridia).

With the die off DS is having from the probiotics, he is waking up a lot again, which he hasn't done since we got his mag up (and I know he's not mag deficient now). I've been giving him alpha ketoglutarate, which eats ammonia, and that really helps (from 8pm-4am, at which point it wears off, so I've been getting a 4am wakeup call for a week now - next challenge, can I get him to swallow capsules in his sleep at midnight!!).
post #86 of 391

Palm Oil

Is Palm oil OK for cooking and messaging while on Sals/amines elimination? I looked up online and there are some confusing info on this.
post #87 of 391
Okay, so I'm looking at an online sal list and I'm confused...why would she be reacting to only some of the high sals list? She's totally fine with both olive and coconut oils, apples, citrus, spinach, ect. but not with what I listed above? Can it really be this selective? Or is it a level of tolerance and certain things push her over the edge?
What nutrients help with this?
Do you all actually avoid all sals foods? the list was ridiculously long...
Here's another ponderable: Do you think we'd be so reactive to naturally occurring sals if there weren't so many synthetically produced sals (perfumes, meds, ect)?
post #88 of 391
Quote:
Originally Posted by dannic View Post
Okay, so I'm looking at an online sal list and I'm confused...why would she be reacting to only some of the high sals list? She's totally fine with both olive and coconut oils, apples, citrus, spinach, ect. but not with what I listed above? Can it really be this selective? Or is it a level of tolerance and certain things push her over the edge?
What nutrients help with this?
Do you all actually avoid all sals foods? the list was ridiculously long...
Here's another ponderable: Do you think we'd be so reactive to naturally occurring sals if there weren't so many synthetically produced sals (perfumes, meds, ect)?
Your list from above looks like it could be more histamine induced than sals induced. Have you looked into the low-histamine diet and see if that helps? http://www.urticaria.thunderworksinc...whistamine.htm
post #89 of 391
Quote:
Originally Posted by Mammo2Sammo View Post
I just started reading about chromium from here: http://ods.od.nih.gov/factsheets/chromium.asp

The body's chromium content may be reduced under several conditions. Diets high in simple sugars (comprising more than 35% of calories) can increase chromium excretion in the urine [13]. Infection, acute exercise, pregnancy and lactation, and stressful states (such as physical trauma) increase chromium losses and can lead to deficiency, especially if chromium intakes are already low [28-29].[/SIZE][/SIZE][/SIZE]

There is quite a bit from this article I don't agree with, even I can decide is wrong, but it is making me think that this is a big piece of my puzzle - almost as big as Mo for me.


I liked the simple description of what chromium does in your body.
http://www.1001herbs.com/chromium/ - check out its connection to cholesterol.

One thing that I am catching is that you don't want to do chromium piccolate.
So does this mean that supping chromium during pregnancy would be a good thing? I have been doing really well this time around...the only thing that tells me my adrenals are a tad stressed is my blood sugar. I'm working on adrenals, but thought this might be helpful too...I guess I could ask my midwife, lol... (keep forgetting I've got one, haven't set up appt's yet.)
Quote:
Originally Posted by Adamsmama View Post
Has anyone felt that their intolerance got worse after a major illness or a pregnancy?
Mine did. I think it's deficiencies being created or exacerbated (sucking it out of you to give to the babe).
post #90 of 391
Quote:
Originally Posted by Adamsmama View Post
Your list from above looks like it could be more histamine induced than sals induced. Have you looked into the low-histamine diet and see if that helps? http://www.urticaria.thunderworksinc...whistamine.htm
Hmm...some of the things overlap both lists...and there are things on the high histamine list that she seems to have no reaction to at all...she was baseline til the darn squash...and it wasn't til after that that I wondered about sauerkraut.
So here's another question (since I'm already serial posting). If I gave her one histaminum after eating potatoes (she got into her sister's food), would that cause a histimine reaction? Afterwards, she got her first ever true pimple-like hive...thanks for letting me crash the thread!
post #91 of 391
Bucket reactions are notoriously fickle - sometimes they react, sometimes they don't, some foods they react to, some they don't. DS can eat berries now (in small amounts), but not apples. Oils worked well before other things (I think because that list is for 100g of a food - and you're way more likely to eat 100g of squash than of olive oil, for example).

We avoided anything moderate sals or higher for several months - while being gluten, dairy, soy, corn, potato free. Yeah - it's a tad limiting.

Supps to help with sals - B6/mo/mag. Supps to help with histamines - C/methyl B12/B6, and I think likely folate too.
post #92 of 391
Thanks Mamafish. So how do I decide if it's histamines or sals? Would moods be a clue? (As in this daughter has no mood issues at all! She is so darn happy all the time, it's sick!)
post #93 of 391
Neither make my guy moody, but he's pretty stable. My guess is that lots of people that are sensitive to one food chemical also have issues with others - so DS was most sals sensitive, but once we got that better managed, it was clear he can't handle an overdose of histamines either. And there are more food chemicals than just those two .
post #94 of 391
Why is the chromium picolinate not good?? IS this the same for other forms.. ie zinc picolinate??

Thanks nancy
post #95 of 391
Hmmm. Maybe T is having a histamine problem too? I don't know. I had to dose her with benedryl last night. Her whole body was red and itchy. This is new territory... not somewhere we've been before. Ugh.
post #96 of 391
Quote:
Originally Posted by nanciswell View Post
Why is the chromium picolinate not good?? IS this the same for other forms.. ie zinc picolinate??

Thanks nancy
The chromium binds really tightly to the picolinate, so much so that it can get into places in cells that it can't normally. I'm choosing to avoid it while pregnant, and used Lewis Lab's brewer's yeast instead.

Zinc picolinate also binds tightly, but the only negative I've heard is that it may be excreted more readily than other forms of zinc.
post #97 of 391
Quote:
Originally Posted by mamafish9 View Post
Supps to help with sals - B6/mo/mag. Supps to help with histamines - C/methyl B12/B6, and I think likely folate too.
Thanks for making those so clear. My dd does get better when I add these in, but I wasn't sure what they were addressing. Molybdenum drops has been the best thing in our diets recently.
post #98 of 391
Quote:
Originally Posted by dannic View Post
Thanks Mamafish. So how do I decide if it's histamines or sals? Would moods be a clue? (As in this daughter has no mood issues at all! She is so darn happy all the time, it's sick!)
I'm still trying to figure it all out. I think that I react to all: amines/sals/histamine but foods high in histamine (other than chocolate) and amines give me seriously bad reactions but not sals ... sals, I think. Some things give me anaphalytic type reactions (facial swelling, tongue tingling, asthma) while others give me tingling skin on my face and neck, while others make my sinuses hurt and swell. Old foods ... left overs that are left over too long, aged and fermented seem to be my worse offenders, although when I was first starting this journey over 2 years ago I reacted to all kinds of things (blueberries, apples, cereal, cheeses) now I avoid all the foods that have made me ill (I do failsafe) and add in a few foods that I probably shouldn't ... like mozzerella cheese (which sometimes I'm ok with and sometimes it makes my skin tingle), yogurt same thing, and I even tried raw almonds the other day with no reaction ... but then the next day I ate homemade pot roast with carrots and the carrots made my sinuses hurt, I think, so it was probably a build up of sals. I made coconut millet pudding a few weeks ago and that made my sinuses swell up immediately ... not sure if it was the sals or histamine. It is still a guessing game for me but failsafe seems to help me not react.
post #99 of 391
For reactions a need for extra zinc for the amine reactions of tingling/itchy skin, and drop in energy .. feverish/cold feeling going back and forth ..

I am quite sure pyroluria is a problem .. it is just tricky getting the test for it to prove .. This is a full time job...

nanci
post #100 of 391
I have had a very interesting few weeks...

After Pat told me about the sulfates in epsom salts being superior to MSM sulfur, especially for a mercury toxic person, I've been doing baths almost every day. And really loading up on them... I worked up to 5 cups in a bath.

Lunch at my local Thai food restaurant eating my favorites: pineapple curried rice, golden triangles with hot pepper sauce and ginger duck would usually cause me bladder twinges (I think my intersitital cystitis was exacerbated by salicylates). Since figuring this out, and improving my detox pathways, I regularly eat salicylates without issue. But if I feel symptoms, I also know when and what to back off of and how to eat to calm them down.

Sooooo.... knowing what to expect I figured I'd just deal with the urgency and twinges for a couple of days b/c I really wanted my Thai food dammit BUT I felt no pains at all yesterday!

I didn't notice anything after lunch (sx usually appear after a couple hours) so I even I pushed the envelope with some tea with honey that night. These can be common triggers as well, since they are both very high in sals. My bladder is calm and happy!!



I haven't been doing epsom salts with DS b/c he has his bath at night and they jack him up. Maybe I should be trying for morning baths... ?!?!
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