my beautiful ella rose was born almost 21 months ago by c-section after a blissful, healthy pregnancy. i did not get to hold her (read:bf her) for 4.5 hours after she was born, so im guessing her poor gut flora never had a chance. i received 1 dose of antibiotics after the cord was cut in the DR and 2 doses of rhogam, once before and once after she was born (rhogam is given to moms who are negative bloodtype if their babies are/could be positive blood type).
i noticed her reflux immediately, as in the first day of her miraculous and pain-filled life. i could hear it coming up her throat, but the nurses told me it wasnt possible for her to have developed reflux so early. i bf her constantly, but she had a very weak latch and looked jaundiced so i caved and gave her formula via sns, 2 ounces per day the first week. the last time i gave it to her during that time frame, she projectile vomited it onto the floor.
i took that as a sign to remove all dairy and soy from my diet and continued ebf her. her horrible sleep and colic continued and worsened while i kept removing things that i thought might be triggers. the blood specks in her poop showed up around 2 months and stayed until roughly 4 months. her poops were daily, soft and bright yellow. she was still gaining weight, but had to be held and walked by me all the time. we barely slept, despite cosleeping.
i made bad choices regarding her care, which i would sacrifice limbs if i could to take them back. i allowed her to be vaccinated until 6 months and i introduced solids at 6 months, after literally fighting with my family, dh and ella's ped GI(s), ped allergist and pediatrician (s). things got obviously worse, but even when i pulled the solids and went back to ebf, the damage had been done. she alternated between constipation and loose, clumpy poops. i even tried giving her elemental formulas and drinking them myself, in hopes of calming her torturous nights filled with constant waking and hysterical crying (sometimes i think she's having night terrors also, definately bad dreams, sometimes leg pain, sometimes reflux). i tried neocate, elecare, alimentum, progestamil and eo28 splash - grape.
in december, we treated yeast with fluconazole and it was hell. she woke all the time, sitting up in her sleep with the reflux and was so irritable. we both started low dose naltrexone 3 months ago to try to offset the immune response to allergens. we have also both tried gastrocrom.
i had never noticed any food allergies or intols in myself until after ella's birth. i now have ana allergies to some detergents, hemp seeds, pecans and whatever publix uses on their fruits and veggies. my first reaction was to detergent 5 weeks after ella was born and my face and throat swelled so horribly i was unrecognizable. since that time, i have noticed intolerances to more and more foods with symptoms of bloating, discomfort, loose stools, acute depression and anger and itchy/stinging throat and mouth.
last october-january, my eosinophil count sored to 5221 (normal range 40-400) and this resolved on its own possibly after i removed cod liver oil from my daily supp regimine. we were never really positive what caused that. lately too i have reacted to b12 injections with severe migraines, depression and anger issues. whome provided me with links discussing the connection between negative reactions to synthetic b12 and metal toxicity (some metals like mercury bind with the methyl groups from b12 and create more toxic, more mobile metals).
recently, ella's urine organic acids testing came back pretty rotten, with 2 markers for celiac, 5 for yeast and multiple for clostridia and vit/min defs.
ill include the results in the next post. we also have our urine porphyrins test back, which shows lead poisoning unless im mistaken. the test results are a bit confusing and i have my appt with my ped to have it all explained on wednesday. feel free to offer any input on these.
we've done gut healing measures as much as possible, but there is a lot that ella doesnt tolerate or i dont ( like clo, bone broths, liver, coconut oil, many many nutrient-dense foods). i have tons of supps and have just stopped taking a lot of them in the past two weeks since the b12 reactions. right now i am taking sodium ascorbate, coq10, biotin, molybdenum, vit d, gelatin, nac and l-glutathione. we both take epsoms baths nightly. i drink a bunch of water kefir, i have roughly a tsp of raw honey and eat fermented fennel daily. i sometimes have a glass of organic, sulfite free, vegan red wine with dinner.
i basically eat broc, caulif, sweet pots, pumpkin seeds, walnuts, evoo, sea salt and bananas daily. i randomly rotate in grassfed chicken, beef and eggs, wild salmon and tilapia, avocados, red bell peppers and asparagus.
ella is currently eating sweet pots, bananas, puffed brown rice, white potatoes (all organic) and wild salmon. she has dark circles and 2 hives right now. yesterday she had diarrhea 6 times from some asparagus that i gave her. ill pull the salmon next, but you can see my problem.
we have, i believe, lost all safe foods. she is sleeping for a few hours here and there, divided by hours of thrashing around in my arms or hyperactivity. she always wakes screaming. her poops are undigested, soft and not brown.
she is happy a lot and she is brilliant! she can almost count to 20, she can say the alphabet and recognizes numbers 1-10, some letters and some words. she speaks in sentences most of the time. she is social and loving, with great eye contact and interaction. she is like my little shattered heart walking around outside of my body.
i dont even know what im asking of you, just anything you can think of i guess. i love you all and will always remember your kindness to me during this time.
i noticed her reflux immediately, as in the first day of her miraculous and pain-filled life. i could hear it coming up her throat, but the nurses told me it wasnt possible for her to have developed reflux so early. i bf her constantly, but she had a very weak latch and looked jaundiced so i caved and gave her formula via sns, 2 ounces per day the first week. the last time i gave it to her during that time frame, she projectile vomited it onto the floor.
i took that as a sign to remove all dairy and soy from my diet and continued ebf her. her horrible sleep and colic continued and worsened while i kept removing things that i thought might be triggers. the blood specks in her poop showed up around 2 months and stayed until roughly 4 months. her poops were daily, soft and bright yellow. she was still gaining weight, but had to be held and walked by me all the time. we barely slept, despite cosleeping.
i made bad choices regarding her care, which i would sacrifice limbs if i could to take them back. i allowed her to be vaccinated until 6 months and i introduced solids at 6 months, after literally fighting with my family, dh and ella's ped GI(s), ped allergist and pediatrician (s). things got obviously worse, but even when i pulled the solids and went back to ebf, the damage had been done. she alternated between constipation and loose, clumpy poops. i even tried giving her elemental formulas and drinking them myself, in hopes of calming her torturous nights filled with constant waking and hysterical crying (sometimes i think she's having night terrors also, definately bad dreams, sometimes leg pain, sometimes reflux). i tried neocate, elecare, alimentum, progestamil and eo28 splash - grape.
in december, we treated yeast with fluconazole and it was hell. she woke all the time, sitting up in her sleep with the reflux and was so irritable. we both started low dose naltrexone 3 months ago to try to offset the immune response to allergens. we have also both tried gastrocrom.
i had never noticed any food allergies or intols in myself until after ella's birth. i now have ana allergies to some detergents, hemp seeds, pecans and whatever publix uses on their fruits and veggies. my first reaction was to detergent 5 weeks after ella was born and my face and throat swelled so horribly i was unrecognizable. since that time, i have noticed intolerances to more and more foods with symptoms of bloating, discomfort, loose stools, acute depression and anger and itchy/stinging throat and mouth.
last october-january, my eosinophil count sored to 5221 (normal range 40-400) and this resolved on its own possibly after i removed cod liver oil from my daily supp regimine. we were never really positive what caused that. lately too i have reacted to b12 injections with severe migraines, depression and anger issues. whome provided me with links discussing the connection between negative reactions to synthetic b12 and metal toxicity (some metals like mercury bind with the methyl groups from b12 and create more toxic, more mobile metals).
recently, ella's urine organic acids testing came back pretty rotten, with 2 markers for celiac, 5 for yeast and multiple for clostridia and vit/min defs.
ill include the results in the next post. we also have our urine porphyrins test back, which shows lead poisoning unless im mistaken. the test results are a bit confusing and i have my appt with my ped to have it all explained on wednesday. feel free to offer any input on these.
we've done gut healing measures as much as possible, but there is a lot that ella doesnt tolerate or i dont ( like clo, bone broths, liver, coconut oil, many many nutrient-dense foods). i have tons of supps and have just stopped taking a lot of them in the past two weeks since the b12 reactions. right now i am taking sodium ascorbate, coq10, biotin, molybdenum, vit d, gelatin, nac and l-glutathione. we both take epsoms baths nightly. i drink a bunch of water kefir, i have roughly a tsp of raw honey and eat fermented fennel daily. i sometimes have a glass of organic, sulfite free, vegan red wine with dinner.
i basically eat broc, caulif, sweet pots, pumpkin seeds, walnuts, evoo, sea salt and bananas daily. i randomly rotate in grassfed chicken, beef and eggs, wild salmon and tilapia, avocados, red bell peppers and asparagus.
ella is currently eating sweet pots, bananas, puffed brown rice, white potatoes (all organic) and wild salmon. she has dark circles and 2 hives right now. yesterday she had diarrhea 6 times from some asparagus that i gave her. ill pull the salmon next, but you can see my problem.
we have, i believe, lost all safe foods. she is sleeping for a few hours here and there, divided by hours of thrashing around in my arms or hyperactivity. she always wakes screaming. her poops are undigested, soft and not brown.
she is happy a lot and she is brilliant! she can almost count to 20, she can say the alphabet and recognizes numbers 1-10, some letters and some words. she speaks in sentences most of the time. she is social and loving, with great eye contact and interaction. she is like my little shattered heart walking around outside of my body.
i dont even know what im asking of you, just anything you can think of i guess. i love you all and will always remember your kindness to me during this time.
Gotta be scary, scary to have concrete results saying hey, got some serious issues to work on. Better to know than not, but scary. How are you dealing with this? Your doc sounds like a good guy, who should be helpful with the results.
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I'll come back when I get a chance!
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