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Tetanus vax and reactions - need urgent help please!

post #1 of 7
Thread Starter 
I'm really hoping someone on this board can help me out. I'm scared for my little boy.

DS got his DTaP at 3 months and had a reaction. He screamed for 2-3 hours afterwards and the injection site swelled up to the size of a golf ball. As a result, we stopped vaccinating and I started researching. He's had his 2 month shots (we're in Ontario )and nothing else since.
I have since found out that my sisters have had reactions to the tetanus shot in the past, to the point where they were advised not to have it again unless their risk of tetanus outweighed the risk of a vax reaction. I've never had a reaction to the shot, neither has DH (to my knowledge). I do know that tetanus reactions (if that's what he's reacting to, which given my family history is probably the case) tend to be worse each time. I hate that once the vax is in him, there's no going back, no reversing it, no cure.

He had his 18 month checkup a couple of weeks ago. My family doc brought up the vaccine question again. She basically told us, "I'm okay with you guys not vaccinating, but tetanus really concerns me, because if he gets tetanus, he dies."

I know the vax is highly effective, and it would provide really good protection for him. But at what potential cost?
My doctor has arranged for us to see a specialist in a major children's hospital about 4 hours away. He will administer the DT shot and monitor DS for at least a couple of hours in case he reacts.
I only have a couple of hours to get back to the receptionist and let her know if we're coming or not. The clinic is this Friday. This is our last chance to vax him for tetanus if we want to, as we've found excuses to turn down the clinic twice this past year, so it's now or never.
Thing is, I'm not entirely comfortable with him not being vaxed for tetanus either. I don't want to have to always panic when he hurts himself outside. I was a super active kid and was always running around barefoot and stepping on stuff, and I want to let him have that kind of freedom without always having this huge tetanus monster of potential doom looming over him. I want to let him dig in the dirt without this anxiety!
I've been sobbing since I got off the phone with the clinic. I'm not comfortable enough with either scenario to decide what's best, I see it as pretty much life or death either way and I don't want to make that call. worse still, DH keeps telling me I'm 'overthinking things' and that we should just give him the shot.
Ahhhhh I can't decide! Help, mama's! I'm trapped in this vax fear and I'm alone in it How do I know what's right for my son?!?

ETA: at this point, we would only consider the tetanus vax, we don't intend to vax for anything else although we may vax selectively if he goes to school.
post #2 of 7
I am sure you'll get lots of responses to your post and I am sort of short on time so I'll just cover the basics.

Quote:
Originally Posted by BekahMomToOliver View Post
DS got his DTaP at 3 months and had a reaction. He screamed for 2-3 hours afterwards
That is known as an encephalitic cry. I am glad you stopped vaccinating because as second time it could mean brain damage for life.
DTaP is the most reactive vaccine and associated with SIDS.

Here is a thread about encephalitic scream -

http://www.mothering.com/discussions...d.php?t=618983


Quote:
and the injection site swelled up to the size of a golf ball.
That is most likely a reaction to the aluminum which his body could not dispose of.


Quote:
He had his 18 month checkup a couple of weeks ago. My family doc brought up the vaccine question again. She basically told us, "I'm okay with you guys not vaccinating, but tetanus really concerns me, because if he gets tetanus, he dies."
That is fear mongering. And her information is false. She is obviously misinformed.


Quote:
I know the vax is highly effective, and it would provide really good protection for him.
That is also not correct. They have no clue whether the vaccine has any efficacy at all.


Quote:
My doctor has arranged for us to see a specialist in a major children's hospital about 4 hours away. He will administer the DT shot and monitor DS for at least a couple of hours in case he reacts.
I would absolutely NOT do that. I have never had the Tetanus vaccine and I have 4 grandchildren who have never had it. I know that is not saying that your child should not have it but someone is acting as though it is life threatening not to have it. I would not risk it.

Quote:

I only have a couple of hours to get back to the receptionist and let her know if we're coming or not.
Please do not rush into this. Research. Please. It could cost your son his life. He will not suddenly die of tetanus. Children have never been in danger of tetanus not even before the vaccine was on the market. It is at best a disease of old people who have diabetes. Don't just follow a doctors order. Research. Take your time. You'll be so glad you did. You can always make another appointment. Things like that should NEVER be rushed.
post #3 of 7
Quote:
Thing is, I'm not entirely comfortable with him not being vaxed for tetanus either. I don't want to have to always panic when he hurts himself outside. I was a super active kid and was always running around barefoot and stepping on stuff, and I want to let him have that kind of freedom without always having this huge tetanus monster of potential doom looming over him. I want to let him dig in the dirt without this anxiety!
The only reason for all your anxiety is that you are not informed on tetanus at all. Chances of a botulism infection under the same circumstances are just as great. Why are you not worried about botulism. Why do you only worry about botulism when you open something home canned? Because that is what you have been taught. But the chances of botulism in a wound are as great as tetanus (both are virtually none existent in a healthy individual) but there is no vaccine out so there is no fear mongering being used for botulism.




Quote:
I see it as pretty much life or death either way
You poor momma. Your child would have to be the world's greatest exception to die of tetanus. How many kids die of tetanus each year? Gosh, I know none. And the vaccine is hardly effective and if it is somewhat effective, how many people are up to date? Most old people are not even up to date and they are basically the only ones at risk.



Quote:
ETA: at this point, we would only consider the tetanus vax,
Tetanus is probably the least likely to cause a child problems. And there are even older people who recover from tetanus. Your doctor is not giving our correct or fair information.

PLEASE RESEARCH!
post #4 of 7
I agree with Gitti...

Given that your child has had a reaction to this vaccine (encephalitis) there is NO WAY I would give him another if I were in your shoes. I suggest you take a step back and NOT go to this appointment. Your doctor is not giving you accurate info and I suggest you research tetanus for yourself. As for this being the only time you can get this vaccine, that is rubbish. You can get it any time you like so do your research first and then make a rational, intelligent desicion based on facts not fear.

I wish you DH was better informed! The fact that you are "overthinking" things is just what potentially may save your child form a severe vaccine reaction.
post #5 of 7
I am allergic/reactive to the tetanus vax. Interestingly enough, my grandmother was also.

I will not vax my children.

I am not at all worried about tetanus- there IS a treatment. What's more, you are far more likely to be struck by lightening than to get tetanus. It's ALWAYS been incredibly rare.

As mentioned- the efficacy of the tetanus vax is UNKNOWN. They have no stats, just anecdotal info.

FWIW- be aware that OTHER vaxes have tetanus toxoid in them. Didn't know that until recently. So be VERY VERY careful if you ever decide to vax again.

-Angela
post #6 of 7
Thread Starter 
Thank you everyone. I'm finding alot of solid information out there that's making me feel better about not vaxing him. Like this:
http://www.canada.com/vancouversun/n...6-89259f19d319

Seems to confirm that 1) it really is more of a danger to older adults and 2)tetanus in kids does not = death (thanks doc. Still a bit worrisome though.

I'm finding mixed information in the Canadian resources on whether his reaction should be a contraindication for further vax. I think it should, but of course the medical establishment seems resistant to contraindicating anything but the most severe cases. I also don't trust their stats, especially the claims that only 3 in a million people react to the tetanus vax. I know my doctor didn't report DS's reaction to VAERS, and I have no reason to believe she's any different than all other doctors in Canada that way.

I'll keep working on it.

Oh, I wanted to add, I'm finding alot of mention of seizures as vax reactions. DH suffered unexplained seizures as a child and was hospitalized on a couple of occasions for them. I don't think a link to vaccines was specifically made (as if it would be), but he was fully vaccinated on a regular schedule. This makes me wonder.
post #7 of 7
I don't know how many people on this forum have personally experienced a very nasty reaction to a Td shot, but I have. It happened to me as an adult. One little shot messed me up for a long time. If one little shot can cause a lot of health issues for a 200 lb man who has always been in good shape, it can certainly do damage to a little baby. I would not go close to a tetanus vaccine or any other for anything in the world, and my children will never be vaxed.

I guarantee you that there are many, many more times the number of people injured and killed by the Td and DTaP shots then by tetanus. It's important to know what tetanus really is and who it really effects. Your doctor is either completely ignorant or manipulating you. Either way it is not good.

If your child has had a bad reaction the odds are it will get worse with another shot because that stuff does NOT leave the body and only builds up. I'd suggest you purchase Dr. Andrew Moulden's dvd's and watch them with your husband. Dr. Moulden will show you exactly what vaccines do to the human body. All vaccines. Good luck and don't forget that you don't have to do anything in a rush.
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