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Newborn Tests & Procedures - Page 2

post #21 of 63
heres some info copied off this link http://children.webmd.com/phenylketonuria-pku-test

How To Prepare
Your baby should be drinking breast milk or formula for 24 hours before the blood sample is taken. PKU test results are more likely to be correct if the blood sample is taken after the baby has been drinking milk or formula for at least 48 hours.

this means breastmilk NOT colostrum
post #22 of 63
Good info Betsy! I think I had enough days of breastmilk in. Had baby on Monday and did the test on a Thursday.
post #23 of 63
MW told us they do PKU test twice for that reason and compare first result to the second to double check for disorders. I think they stick once at birth and then again 2 weeks later.

We're doing Vit. K shot, but she never gives full dose like the hospital because she says it's too much. May or may not do eye drops...she's cool with us refusing things, we just have to write and sign a statement that we refused them so she doesn't get in trouble. Hep. B will be at first well baby check with the ped (6-8 weeks after birth) since MW can't do that. Same for hearing test. No circ if we have a boy as DH is very much against it.
post #24 of 63
We did PKU. One of my professors from McGill University was/is a key researcher in PKU genetics (Dr Charles Scriver) and I've never seen any harm in testing for it. PKU is a 100% treatable disease but if left untreated, the damage is permanent. The benefits of knowing far outweighed the testing for our family.
post #25 of 63
Thread Starter 
Our midwife does the PKU, etc. screening at the 24 hour post-birth appointment as well as the 1 week appointment. She did say that if we were concerned with only doing the test one time, it would be best to wait and do the 2nd one for accuracy reasons. Now I wonder why they do the first one right at birth instead of waiting a week? She may have told me, but I forgot.

She also has someone who comes weekly to her home clinic to do the hearing screen, so we'll probably plan to do that as well.
post #26 of 63
We decline everything except the PKU (actually it's tons of things they test for in CA). It's relatively non-invasive and if my baby does have something rare and life-threatening, I definitely want to know about it. FWIW, the only prenatal test I got (besides baseline bloodwork) was the GBS.
post #27 of 63
I am thinking we will do PKU and the hearing test
post #28 of 63
Not doing: circ, eye drops, vit k, hep b or anything else foreign to baby

Doing: PKU, hearing test, bath (but DH has to watch they don't retract AT ALL.

Hoping I don't have too much trouble with the nurses since I already have the support of the L&D nurse Manager, but just to be sure we're going to butter them up with fresh doughnuts and bagels the morning of the section! Hopefully they won't be too bad then
post #29 of 63
We did the PKU & hearing test, but declined everything else for DS (aside from basic assements & temperature checks), including the bath He was in the nursery for maybe 20 minutes total in the 36+ hours that he was in the hospital with me... and DH was with him when he was... they did pretty much everything in the room, including the hearing test, and they seemed pretty OK with that, though the nurses would have obviously preffered they didn't have to haul everything back and forth from the nursery... but they did
post #30 of 63
I'm just starting to read up on the procedures and test they do after birth since we haven't had our hospital tour yet. I know we are def not doing the hep b or vit K. Haven't read anything about the eye drops, hearing test, or bath yet. Just wondering what are the reasons you guys don't want them done? With the PKU I'm a little torn. When I first read what it was I didn't see any harm in it. They weren't injecting anything into your baby just taking some blood, and the info you get could save them from some very horrible problems later. Then I asked my husband about it and he said that he heard of a guy who, when they took his blood, sold his DNA to the government or something and it was this big mess and someone ended up sueing someone else. I dunno sounds crazy to me. Anyone else heard of such a thing? We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.

http://www.wnd.com/index.php?fa=PAGE.view&pageId=96787
post #31 of 63
Quote:
Originally Posted by ldybg610 View Post
We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.
please research this some more.
post #32 of 63
Quote:
Originally Posted by ldybg610 View Post
We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.

http://www.wnd.com/index.php?fa=PAGE.view&pageId=96787
Mama- please do some sound research on this issue.
post #33 of 63
We're doing nothing to our baby boy when he arrives! We're having him in the living room and I don't plan to get any routine testing or vaccines or cutting of any body parts done.
I am not inherently against the metabolic testing, as I prefer they take blood out of our baby as opposed to putting things in his body! But I really don't think he truly needs the testing, and so I will discuss it with his holistic doctor at a later time.
Instead of the Vitamin K injection, I am taking Vitamin K supplements now and will continue to do so as I breastfeed. Definitely no eye ointment. I don't have any STD's, and it's amusing to me that they do that routinely even to babies that clearly aren't going to be exposed to STD's.
All natural, all the way. :
post #34 of 63
And here, on MDC, there is a whole forum dedicated to circ. info:

http://www.mothering.com/discussions...splay.php?f=44
post #35 of 63
Thread Starter 
Quote:
Originally Posted by ldybg610 View Post
Haven't read anything about the eye drops, hearing test, or bath yet. Just wondering what are the reasons you guys don't want them done? With the PKU I'm a little torn. Anyone else heard of such a thing? We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.

http://www.wnd.com/index.php?fa=PAGE.view&pageId=96787
ldybg610 - Here's a few of my thoughts and opinions from the questions in your post...

As far as the eye ointment, there are a couple of reasons I'm choosing not to use it. One is that it is to protect the baby's eyes from possible infection with chlamydia or gonorrhea. Since this is a test typically given to pregnant women, one should know if they are positive or not if they are in a monogamous relationship. It is really important for the newborn to have the ability to clearly look around at its new surroundings and bond with its mother. When the eye ointment is used, it blurs the vision for quite some time and can interfere with this process. So for me, I do not want to do anything that will make it more challenging to bond as much as possible, and as early as possible with my little one.

Don't know much about the hearing test, but I know that it's something that does not need to be done in the time immediately post-birth. There's so many other things to measure, etc. and the hearing test can wait. Again, the bonding time with Mom is much more important.

For baby bath, again the main issue has to do with mother/infant bonding. Besides being able to gaze at each other, breastfeed, and connect skin-to-skin, there is an aspect to the bonding process that is related to olfactory (smell) senses. The smell of the natural body fluids on the baby is an just one of the important aspects leading to the maternal response kicking in in the mother. If all fluids and substances are cleaned off the baby immediately following delivery, especially using any type of cleanser/soap to do so, it interferes with the mom's ability to sense her baby through the olfactory receptors. If the baby is all covered in vernix, it's a great skin moisturizer and can just be rubbed in (take a bit to use for yourself if you need it!). Other than that, there isn't really any need to bathe your babe right after birth.

As far as your concerns for PKU...I suppose it could be valid, but not very likely. And very hard to prove!! I would suggest making the decision based on whether or not you think the information you get from the screening test will be useful to you.

And I agree with several others that you might want to research the circumcision issue a bit further. Besides the fact that you have to pay out of pocket for the procedure, there have been no recent studies showing that circumcision leads to decreased rates of infection or STD transmission. In fact, there are many reasons why many now feel it is more beneficial to not circumsize for the health of the male and his penis. And even the American Academy of Pediatrics no longer recommends it to be done routinely, as too many studies have shown it just does not have the benefits they once believed it to have.

I hope this helps!
post #36 of 63
Griffin's PKU test just came back with "questionable results". This never happened with my other 3 kids! I went back to the hospital for more bloodwork today ...
post #37 of 63
Hope all is well Genomics!

~~~~~~~~
Just a random factoid... in New York State the eye goop and vit K are required. They are not covered by religious or personal exemption laws and a hospital, birth center, or homebirth provider is required by law to report a family that declines these interventions (to CPS). What CPS does with the information varies. Now, there are individual care providers who will simply check off the appropriate box and hospitals/birth centers where they are more flexible about how this is handled (the hospital I used with dd1 and dd2 for example would allow parents to apply the eye goop and not "notice" if the parent missed getting it near the babe's eyes). But it is something to be aware of if you are giving birth in NYS. (there is also a province in Canada with a similar "no exceptions" rule regarding eye goop and vit k but you'd have to search Birth & Beyond because I can't remember which one it is!).

So... we do the eye goop and vit k. Generally we wait till the babe is asleep or nursing, about an hour after the birth. This way there's less stress for the babe and bonding isn't impacted as much.

We do the metabolic screening (in the hospital and at the one week baby visit) since these are conditions that are unpredictable (there usually isn't a family history), often easy to treat with dietary intervention, but which cause serious and often permanent damage if not detected quickly. Nursing babe during the heel stick, and making sure to ask for a nurse or phlebotomist who is good with babes, can help. Neither of my daughters noticed the heel stick... I think it was harder for me!

We also do the hearing test. The hospital we've used in the past does the test while the babe is asleep... you call a nurse when babe is "out" and they bring a little gizmo to your room and check right then and there. We were told it's actually more accurate when the babe is asleep.

Other than that we don't do anything. No newborn vax, no non-necessary medical or surgical procedures, no leaving the babe with strangers in the nursery (DH or I go with the babe if they need to leave our room). We do have a family practice dr that cares for our whole family (and has for about 5 years now)... we adore her, the whole practice is very crunchy/friendly/open to alternative medicine so we go with a fairly standrad schedule of well baby visits but space out any vax and generally don't anticipate problems.
post #38 of 63
Quote:
Originally Posted by ldybg610 View Post
I'm just starting to read up on the procedures and test they do after birth since we haven't had our hospital tour yet. I know we are def not doing the hep b or vit K. Haven't read anything about the eye drops, hearing test, or bath yet. Just wondering what are the reasons you guys don't want them done? With the PKU I'm a little torn. When I first read what it was I didn't see any harm in it. They weren't injecting anything into your baby just taking some blood, and the info you get could save them from some very horrible problems later. Then I asked my husband about it and he said that he heard of a guy who, when they took his blood, sold his DNA to the government or something and it was this big mess and someone ended up sueing someone else. I dunno sounds crazy to me. Anyone else heard of such a thing? We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.

http://www.wnd.com/index.php?fa=PAGE.view&pageId=96787
If you're concerned the government is going to snatch away your child's DNA... You may want to ask for your son's foreskin back. It too contains DNA.
post #39 of 63
Quote:
Originally Posted by ldybg610 View Post
I'm just starting to read up on the procedures and test they do after birth since we haven't had our hospital tour yet. I know we are def not doing the hep b or vit K. Haven't read anything about the eye drops, hearing test, or bath yet. Just wondering what are the reasons you guys don't want them done? With the PKU I'm a little torn. When I first read what it was I didn't see any harm in it. They weren't injecting anything into your baby just taking some blood, and the info you get could save them from some very horrible problems later. Then I asked my husband about it and he said that he heard of a guy who, when they took his blood, sold his DNA to the government or something and it was this big mess and someone ended up sueing someone else. I dunno sounds crazy to me. Anyone else heard of such a thing? We are also circ. DH doesn't really want to, but only because its gonna cost $325 lol. I want to because I don't want him to grow up running the risk of getting infections and things.

http://www.wnd.com/index.php?fa=PAGE.view&pageId=96787
I'm a touch confused: you're considering foregoing a heel prick because of the off-chance there's a government DNA-selling conspiracy, but are willing to have a part of your son's genitalia cut off for fear of "infections and things"?

There's a great forum on here dedicated to circumcision and I'm sure it could be invaluable to you.
post #40 of 63
Quote:
Originally Posted by Raene View Post
People all feel differently about PKU. For us, the brochure we were given sounded silly, it's an extra ouch for baby, and if we found out there was a problem we wouldn't do anything differently. So...it's unnecessary in our family.
What do you mean that you wouldn't do anything differently if you knew your child had PKU or another diet-treatable but otherwise extremely damaging metabolic disorder? That doesn't make a lot of sense. Many of the disorders tested for cause irreversible brain damage unless a special diet is followed.
So surely you don't mean that you would feed your child foods that would cause brain damage and death. Is it possible that you are confusing the metabolic screen with some sort of prenatal testing?
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