Originally Posted by thismama
I refused the PKU with my first. I did it with my second, who didn't cry, but with my first it was that I wanted to avoid the extra 'ouch.' The disorders it tests for, while very severe, are also extremely rare. To make the ever vaulted driving a car comparison, we can say that we should not risk our children's lives for our convenience, shame on us, we should not drive our vehicles, no? I don't think it's omgz end of the world to refuse the PKU test. I would do it in future, but I fail to see the reason for this level of rage really.
because metabolic disorders can be devastating beyond what parents of healthy kids could even imagine.
The car analogy doesn't fit here, either (it rarely does), because sometimes you HAVE to use a car (like me, I live in the boonies and we can't sell our house right now and live elsewhere), so it's not always *just* convenience.
So yeah, to me, it's omgz the end of the world for someone to refuse it JUST because it's a millisecond of pain, or because they think it's silly, or because they 'don't do medical interventions'. I still maintain every one of you would move heaven and earth to get help for your child if they got as sick as mine has been.
Maybe my perspective on my child going through a heel prick is different, since he's been through multiple surgeries and more pain than my husband and me combined. and i'd put him through it again if i had to, because he's alive and in my lap right now.