So it seems to me that the real problem with the newborn metabolic screening is with the test for Galactosemia and not the 11ty billion other metabolic disorders that don't require cessation of bf-ing. Right?
IANAD but I was reading up on Galactosemia and it seems that there are 2 types of the disease (and being a carrier since it is recessive). There is classical Galactosemia where there are pretty severe symptoms at birth and Duarte Galactosemia that is more mild with not obvious symptoms from birth. I'd think if you had symptoms from birth AND the screen came back + for Galactosemia, the wise thing to do is stop bf-ing.
From this page on Duarte Galactosemia:
|Babies who are breastfed and have no symptoms (i.e., - 1 - failure to thrive) and normal laboratory results are allowed to continue breastfeeding but are followed more frequently in the metabolic clinic and with more frequent laboratory tests to monitor galactose levels than those babies who are on soy formula.
So wouldn't it stand to reason that if the baby didn't have symptoms and wasn't actually diagnosed (only had the + screen), then cessation of bf-ing isn't mandatory?